Neuroendocrine Tumors (NETs) Support Group

I live in Louisville,KY. Just diagnosed with net on pancreas, following endoscopy with ultrasound. Pathology says...

https://connect.mayoclinic.org/comment/984672/

Discussion: Should I see a NET specialist?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 21, 2023

My father is diagnosed with NET in pancreas. He is 79 years old and he is...

https://connect.mayoclinic.org/comment/1204658/

Discussion: Any advice for someone recently diagnosed with NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 5, 2025

Dear stevestenberg31, I have NET in pancreas( debulked) with liver metastases. Had 2 Lan injections with...

https://connect.mayoclinic.org/comment/846399/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 20, 2023

Hello @taf and welcome to the NETs support group on Mayo Connect. I can understand your...

https://connect.mayoclinic.org/comment/1269777/

Discussion: Just diagnosed with PNET: Any thoughts on watch & wait approach?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 30, 2025

@pete1962 Sorry I didn’t see your post until just recently. My wife had primary NET on...

https://connect.mayoclinic.org/comment/832543/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 26, 2023

@lanamarie: I’m glad you are being proactive in your cancer healthcare. I would first check with...

https://connect.mayoclinic.org/comment/1279715/

Discussion: Just diagnosed with PNET: Any thoughts on watch & wait approach?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 12, 2025

I was diagnosed almost 2 years ago with NET primary pancreas that metastasized to liver(over 100)...

https://connect.mayoclinic.org/comment/859321/

Discussion: TACE Procedure: What is it like?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 13, 2023

Good morning, My NET is Pancreas to Liver also to numerous to operate, some were over...

https://connect.mayoclinic.org/comment/913398/

Discussion: Anyone with an insulinoma have only therapies instead of surgery?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 15, 2023

@frankwc I have to comment on the Geiger counter! I had purchased one also, and about...

https://connect.mayoclinic.org/comment/1588455/

Discussion: PRRT Treatment: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 1 1:37pm

I was diagnosed in November with a 5.5CM NET at the head of my pancreas and...

https://connect.mayoclinic.org/comment/1584299/

Discussion: Need more information on NET in head of pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 27 7:15am

@dtkach37 Hello DT and thank you for posting. I am 65 and I have roughly the...

https://connect.mayoclinic.org/comment/1585397/

Discussion: Need more information on NET in head of pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 28 12:13pm

Diagnosed with pancreatic NET in 12/23 after a couple months of symptoms. Main factor in prognosis...

https://connect.mayoclinic.org/comment/1584365/

Discussion: Need more information on NET in head of pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 27 8:09am

@kaiulani sorry to hear Carol can I ask what city you are in I’m in Edmonton...

https://connect.mayoclinic.org/comment/1590388/

Discussion: Need more information on NET in head of pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 4 8:30am

@hammerhead: It’s been a while since your post regarding your pancreatic NET progression. Have you made...

https://connect.mayoclinic.org/comment/1598033/

Discussion: Complicated NET Surgery Needed

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 14 4:02pm

@lamz Hi and welcome to Mayo Connect. I have to admit that I am confused as...

https://connect.mayoclinic.org/comment/1589110/

Discussion: Hi. Does anyone have NET in neck on spjne at C7 T3?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 2 12:43pm

I just had my #40 Lanreotide. Pancreatic NET with liver mets. Distal pancreatectomy, splenectomy, cholecystectomy, partial...

https://connect.mayoclinic.org/comment/1594270/

Discussion: Octreotide or Lanreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 9 10:28am

@michaela258 I appreciate your response and 1 can understand your concerns regarding whether to have a...

https://connect.mayoclinic.org/comment/1584131/

Discussion: Need more information on NET in head of pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 26 8:33pm

@michael258 I'm sorry to hear of your diagnosis I know how scary and confusing things are...

https://connect.mayoclinic.org/comment/1584554/

Discussion: Need more information on NET in head of pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 27 11:19am

@michaela258 I was diagnosed with a stage 4 PNET that spread primarily to my liver in...

https://connect.mayoclinic.org/comment/1584376/

Discussion: Need more information on NET in head of pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 27 8:21am

Hello! My name is Carol, I live in Alberta, Canada where options for my treatment have...

https://connect.mayoclinic.org/comment/1589933/

Discussion: Need more information on NET in head of pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 3 2:06pm