Neuroendocrine Tumors (NETs): Discussions

Hello. As mentioned by others, Lanreotide is expected to keep the tumors stable. My husband was...

https://connect.mayoclinic.org/comment/1449250/

Discussion: Anyone had positive results from Lanreotide injections?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 29 6:51am

@destinjim Like dbamos1945 I have been taking Lanreotide injections for three years. I have the same...

https://connect.mayoclinic.org/comment/1467934/

Discussion: Lanreotide side effects

Support Group: Neuroendocrine Tumors (NETs)

Posted: 5 days ago

Hello @destinjim and welcome to the NETs support group on Mayo Connect. I see that many...

https://connect.mayoclinic.org/comment/1468454/

Discussion: Lanreotide side effects

Support Group: Neuroendocrine Tumors (NETs)

Posted: 4 days ago

When i had my monthly Lanreotide injection yesterday I was told they were switching to Octreotide....

https://connect.mayoclinic.org/comment/1427574/

Discussion: PET Ga-68 Dodatate Scan & Octreotide LAR Injections

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 31 11:13am

@destinjim: We are LIVE real humans! You have a problem with NETS and your Lanreotide injections?

https://connect.mayoclinic.org/comment/1462452/

Discussion: Lanreotide and blood pressure

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 17 1:14am

@rose4jim2417 Lanreotide injections

https://connect.mayoclinic.org/comment/1408712/

Discussion: Y90 AND Captem Combo

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 5 9:03am

Before I was put on Lanreotide I had no symptoms Lanreotide gave me such a horrible...

https://connect.mayoclinic.org/comment/1249217/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 3 7:52am

Hey Mark, I've had Octreotide, Lanreotide, and SI resection surgery. I'm currently doing monthly Lanreotide shots....

https://connect.mayoclinic.org/comment/1410494/

Discussion: NET's Metastasis to Brain

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 7 11:58am

Taking Lanreotide? This might be helpful (thanks Dr. Google) https://www.drugs.com/sfx/lanreotide-side-effects.html

https://connect.mayoclinic.org/comment/971093/

Discussion: Anyone had nauseous, gas burping as symptoms for NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 27, 2023

I had intestine resection to remove discover nets in my intestines. Removal of ovaries to remove...

https://connect.mayoclinic.org/comment/1425191/

Discussion: NETs with Liver metastasis: starting lanreotide injections

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 28 10:26am

Are you referring to the generic version of lanreotide (Somatuline Depot) vs. the brand name drug...

https://connect.mayoclinic.org/comment/1334782/

Discussion: Should NET w/liver met patient stop rx that has Seratonin?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 25 9:41am

Not sure if IPSEN Cares program for Lanreotide injections is available in your area but you...

https://connect.mayoclinic.org/comment/1415346/

Discussion: Cost of treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 14 10:05am

@pavlina60, I'm sure that's one upgrade you didn't want to get. You may appreciate this discussion...

https://connect.mayoclinic.org/comment/824676/

Discussion: PNET Surgery: My recovery journey

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 11, 2023

Had lanreotide injected Oct 2, and Ga 68 Dototate PET scan 3 weeks later.

https://connect.mayoclinic.org/comment/1425312/

Discussion: PET Ga-68 Dodatate Scan & Octreotide LAR Injections

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 28 12:37pm

Hi from Cheshire UK. I had same but opted to have surgery. This NET evil spreads...

https://connect.mayoclinic.org/comment/1444694/

Discussion: S4, G2 NETS in mesentery. Declined Exploratory Surgery

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 22 10:02am

I get Lanreotide once a month.

https://connect.mayoclinic.org/comment/855807/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 7, 2023

Hello @lbaron54915 and welcome to Mayo Connect. I am glad to hear that you have had...

https://connect.mayoclinic.org/comment/792344/

Discussion: NET-VIPoma pancreatic tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 4, 2023

Interesting, hope the lanreotide works better. My husband had the rash before his shots, so not...

https://connect.mayoclinic.org/comment/1269534/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 29 3:46pm

Hello @arleighna, I am sorry to hear of the problems you are having with lanreotide. It...

https://connect.mayoclinic.org/comment/1215188/

Discussion: I have 3 neuroendocrine tumors in left lung: Can I handle radiation?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 17 8:11pm

Lanreotide is supposed to stop the NETs from growing.

https://connect.mayoclinic.org/comment/933192/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 20, 2023

Neuroendocrine Tumors (NETs) Support Group