MAC & Bronchiectasis Support Group

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Comments (120)

@gaelawree welcome to this group! I am Nick an I have bronchiectasis and had a MAC!...

https://connect.mayoclinic.org/comment/64349/

Discussion: (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

Support Group: MAC & Bronchiectasis

Posted: May 20, 2018

Hello again. Many, many thanks for all the responses to my post. The insights shared were...

https://connect.mayoclinic.org/comment/180309/

Discussion: Bronchiectasis: Understanding symptoms

Support Group: MAC & Bronchiectasis

Posted: Jan 12, 2018

Thanks Terri M. have been felling well since I'm off on the big 3 but about...

https://connect.mayoclinic.org/comment/63366/

Discussion: (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

Support Group: MAC & Bronchiectasis

Posted: Nov 8, 2017

Cid120....I went there in NJH in January 2017 for a second opinion for the MAC that...

https://connect.mayoclinic.org/comment/164339/

Discussion: Possible causes of MAC/MAI Re-Infections

Support Group: MAC & Bronchiectasis

Posted: Aug 31, 2017

Hi all, it's Jen Taylor, I haven't been in touch with you via "connect" for 2...

https://connect.mayoclinic.org/comment/61256/

Discussion: (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

Support Group: MAC & Bronchiectasis

Posted: May 27, 2017

Hello Jan, I can offer my experience with MAC. Was misdiagnosed for 2-3 years (erroneously treated...

https://connect.mayoclinic.org/comment/58458/

Discussion: (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

Support Group: MAC & Bronchiectasis

Posted: Mar 29, 2016

I have been on the Big 3 for 18 months. I started with a 3 day...

https://connect.mayoclinic.org/comment/824661/

Discussion: MAC Big Three Side Effects

Support Group: MAC & Bronchiectasis

Posted: Mar 11, 2023

I was very nervous about starting the Big 3 but I have now been on them...

https://connect.mayoclinic.org/comment/799683/

Discussion: Just started big 3 for MAC: Questions about dosing and more

Support Group: MAC & Bronchiectasis

Posted: Jan 21, 2023

So, it took me almost 2 years to start big 3. I have bronchiectasis and Mac....

https://connect.mayoclinic.org/comment/666770/

Discussion: Starting MAC treatment with "big three" drugs: What to expect?

Support Group: MAC & Bronchiectasis

Posted: Dec 31, 2021

Hello bmiller, Welcome to the group, there is a wealth of information here. I have been...

https://connect.mayoclinic.org/comment/305249/

Discussion: Just started big 3 for MAC: Questions about dosing and more

Support Group: MAC & Bronchiectasis

Posted: Apr 8, 2020

First off, most people have some minor side effects during the first couple weeks of starting...

https://connect.mayoclinic.org/comment/1396871/

Discussion: Starting BIG 3 tonight ….

Support Group: MAC & Bronchiectasis

Posted: Sep 19, 2025

Hello, I have been on the big 3 for now for 10 months. I take them...

https://connect.mayoclinic.org/comment/1380300/

Discussion: Side effects of the.BIG 3

Support Group: MAC & Bronchiectasis

Posted: Aug 27, 2025

@sheila7a Stomach pain, nausea and other unpleasant gastrointestinal side effects are part of taking the Big3....

https://connect.mayoclinic.org/comment/1331993/

Discussion: Stomachache

Support Group: MAC & Bronchiectasis

Posted: Jun 21, 2025

I’m 54. Was Asymptomatic when diagnosed w/ MAC incidentally on cardiac chest CT (+ ofc pulmonary...

https://connect.mayoclinic.org/comment/1268632/

Discussion: Life while being treated

Support Group: MAC & Bronchiectasis

Posted: Mar 28, 2025

I am now 70 years old. I have been an athletic person my whole life. I...

https://connect.mayoclinic.org/comment/1193136/

Discussion: has anybody taken azithromycin and amikacin

Support Group: MAC & Bronchiectasis

Posted: Dec 18, 2024

My understanding is that azithromycin (a macrolide) helps with inflammation. Not so much as an antimicrobial....

https://connect.mayoclinic.org/comment/1174388/

Discussion: Antibiotic effect on mucus

Support Group: MAC & Bronchiectasis

Posted: Nov 16, 2024

@flib That's so scary! Do you have trouble making yourself eat? Are you on treatment for...

https://connect.mayoclinic.org/comment/270047/

Discussion: Losing weight due to MAC

Support Group: MAC & Bronchiectasis

Posted: Jul 25, 2019

@megan123 Hi Jennifer, I'm sorry about the stomach cramping coming so late in the game (after...

https://connect.mayoclinic.org/comment/251051/

Discussion: The big 3 antibiotics for MAC

Support Group: MAC & Bronchiectasis

Posted: Feb 24, 2019

@dglaude I have been on the BIG 3 since November 2017. I have not had too...

https://connect.mayoclinic.org/comment/65681/

Discussion: (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

Support Group: MAC & Bronchiectasis

Posted: Jan 4, 2019

@reneeplus6 .....everyone’s situation is so unique.....I am a firm believer and practice getting 2nd and 3...

https://connect.mayoclinic.org/comment/183627/

Discussion: No symptoms- do I have to be treated?

Support Group: MAC & Bronchiectasis

Posted: Feb 6, 2018

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