MAC & Bronchiectasis Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

593 total results

Comments (559)

I have a 3 drawer plastic chest unit that I purchased from Walmart. The top can...

https://connect.mayoclinic.org/comment/1170266/

Discussion: Bronchiectasis , MAC nebulizing and airway clearance equipment

Support Group: MAC & Bronchiectasis

Posted: Nov 8, 2024

@cindyrnc, Cindy, can't remember if I have given you the below resources on Bronchiectasis already .....

https://connect.mayoclinic.org/comment/62273/

Discussion: (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

Support Group: MAC & Bronchiectasis

Posted: Jul 5, 2017

Well, I've been gone for a few weeks with family & house guests, but I wanted...

https://connect.mayoclinic.org/comment/65300/

Discussion: (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

Support Group: MAC & Bronchiectasis

Posted: Sep 16, 2018

Sue, very clear explanation. Now I have another question. You mentioned a 1:10 ratio of Dawn...

https://connect.mayoclinic.org/comment/1129823/

Discussion: Lung Matters Protocol

Support Group: MAC & Bronchiectasis

Posted: Aug 24, 2024

Reporting in on the Pari e-Flow after a week. It is FAST! it is SILENT! and...

https://connect.mayoclinic.org/comment/1358735/

Discussion: Looking for a decent portable nebulizer

Support Group: MAC & Bronchiectasis

Posted: Jul 28 5:45pm

@bronchiectasaurus Yes - Salty - Wow! And I just learned to slow the flow by placing...

https://connect.mayoclinic.org/comment/1370848/

Discussion: Pari eRapid/eFlow first impressions

Support Group: MAC & Bronchiectasis

Posted: Aug 14 7:16pm

Hi! I hope I’m not too late in responding. I recently returned from a trip to...

https://connect.mayoclinic.org/comment/966462/

Discussion: Need Advice for Traveling Internationally

Support Group: MAC & Bronchiectasis

Posted: Nov 17, 2023

susanp64, I live north of Austin in Ceorgetown, which is a 4 hr commute to Tyler.You...

https://connect.mayoclinic.org/comment/902141/

Discussion: Pulmonologist in the Austin/SA Area and Airway Clearance Devices

Support Group: MAC & Bronchiectasis

Posted: Jul 25, 2023

Just completed participation in Arina-1 study in New Orleans at LSU Medical On the first 3...

https://connect.mayoclinic.org/comment/975335/

Discussion: ARINA-1 Clinical Trial UPDATE- (not an antibiotic)

Support Group: MAC & Bronchiectasis

Posted: Dec 5, 2023

What to consider when CHOOSING a nebulizer: Most nebulizers are NOT designed for multiple uses every...

https://connect.mayoclinic.org/comment/1206592/

Discussion: Recommendations for nebulizer machine

Support Group: MAC & Bronchiectasis

Posted: Jan 8 8:45am

The base is the same, but the handset may be different. I went right to their...

https://connect.mayoclinic.org/comment/1388965/

Discussion: Pari eRapid/eFlow first impressions

Support Group: MAC & Bronchiectasis

Posted: Sep 7 5:20pm

So it was somewhat a watch and wait for you with not having started the antibiotics...

https://connect.mayoclinic.org/comment/1172302/

Discussion: MAC patients: Did you take probiotics during your treatment?

Support Group: MAC & Bronchiectasis

Posted: Nov 12, 2024

Hi prispal. You can use a Life Straw water bottle for washing and rinsing, and those...

https://connect.mayoclinic.org/comment/1085428/

Discussion: What are your recommendations for travel nebulizer?

Support Group: MAC & Bronchiectasis

Posted: Jun 12, 2024

Hi, Bayarea58! That was me. In 2020, while on the Big 3, I took Aerobikas and...

https://connect.mayoclinic.org/comment/1229773/

Discussion: Is there any successful story?

Support Group: MAC & Bronchiectasis

Posted: Feb 5 6:54am

Barbara, yes, I only started the antibiotics this year. The nodule that grew was one I...

https://connect.mayoclinic.org/comment/1171555/

Discussion: MAC patients: Did you take probiotics during your treatment?

Support Group: MAC & Bronchiectasis

Posted: Nov 11, 2024

According to their Web site, it produce smaller particles, which are supposed to penetrate better. https://www.pari.com/us/products/nebulizers-cups-us/lc-star-reusable-nebulizer-us/

https://connect.mayoclinic.org/comment/1230607/

Discussion: More mucus changed color

Support Group: MAC & Bronchiectasis

Posted: Feb 6 9:44am

Thank you, Sue @sueinmn, for your response. The YouTube videos about breathing techniques (there are many)...

https://connect.mayoclinic.org/comment/680287/

Discussion: Newly-diagnosed with Bronchiectasis and shocked

Support Group: MAC & Bronchiectasis

Posted: Feb 13, 2022

On Feb 27 I watched a 90 minute webinar entitled "Updates from European BE Workshop Forum...

https://connect.mayoclinic.org/comment/1251268/

Discussion: Brensocatib timetable to market

Support Group: MAC & Bronchiectasis

Posted: Mar 5 5:23pm

Good find! Have you requested a quote? I did. The setup looks similar to Pari's portable....

https://connect.mayoclinic.org/comment/1084298/

Discussion: Has anyone heard of/used the AeroNeb Go mesh nebulizer?

Support Group: MAC & Bronchiectasis

Posted: Jun 10, 2024