MAC & Bronchiectasis Support Group

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Comments (478)

@cila Yikes! 100 colonies! No wonder you aren't feeling so good. Do they know what specie...

https://connect.mayoclinic.org/comment/206164/

Discussion: The psychological aspect of dealing with bronchiectasis and MAC.

Support Group: MAC & Bronchiectasis

Posted: Oct 28, 2018

--Apple-Mail-DC5840FE-EB76-43A2-BD3A-54A360FC377E Content-Type: text/html; charset=utf-8 Content-Transfer-Encoding: quoted-printable Sue,Thank you for your response. I use= d the ProNeb...

https://connect.mayoclinic.org/comment/841056/

Discussion: Anyone have any nebulizer recommendations?

Support Group: MAC & Bronchiectasis

Posted: Apr 10, 2023

This is the nebulizer I use. You do not need a Rx. Customer service is excellent...

https://connect.mayoclinic.org/comment/989230/

Discussion: Nebulizer

Support Group: MAC & Bronchiectasis

Posted: Dec 31, 2023

@kayskid I found that nebulising helped me get samples whereas before I couldnt get a sputum...

https://connect.mayoclinic.org/comment/311726/

Discussion: Two bits of good news!! (and nebulizing with saline)

Support Group: MAC & Bronchiectasis

Posted: Jul 5, 2020

Thank you. Perhaps someone else was talking about one ; Pari Pro Neb Max, There are...

https://connect.mayoclinic.org/comment/616747/

Discussion: Have you had your water tested?

Support Group: MAC & Bronchiectasis

Posted: Jul 15, 2021

I bought the Pari Trek S in May of 2023 and have used it daily since,...

https://connect.mayoclinic.org/comment/1099188/

Discussion: Omron NE-U100 have you used it?

Support Group: MAC & Bronchiectasis

Posted: Jul 4, 2024

Hello, Lilianna-- Thank you for the tip about the Ombre compressor! The information about sterilizing the...

https://connect.mayoclinic.org/comment/1083945/

Discussion: 7% Saline in Nebulizer for Mac

Support Group: MAC & Bronchiectasis

Posted: Jun 9, 2024

@anniepie yes I purchased from USA Pari. Here is the link about it, such a great...

https://connect.mayoclinic.org/comment/66650/

Discussion: (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

Support Group: MAC & Bronchiectasis

Posted: Dec 16, 2019

I use the Innospire Go and I love it. Drawbacks for me is that it is...

https://connect.mayoclinic.org/comment/605402/

Discussion: Living Dangerously - Nebulizer Cleaning

Support Group: MAC & Bronchiectasis

Posted: May 28, 2021

Thank you, this is very helpful for those using nebulizer with compatible parts like my Pari...

https://connect.mayoclinic.org/comment/677210/

Discussion: Cleaning + disinfecting nebulizer and aerobica

Support Group: MAC & Bronchiectasis

Posted: Feb 2, 2022

From discussions on this forum I ended up purchasing the PARI travel nebulizer and think it...

https://connect.mayoclinic.org/comment/713823/

Discussion: Video demonstrating inhaler/nebulizer devices, cleaning and disinfecti

Support Group: MAC & Bronchiectasis

Posted: Jun 3, 2022

I can do back to back nebulizing but Pari, the compressor company, said the compressor would...

https://connect.mayoclinic.org/comment/1164891/

Discussion: Waiting between nebulizing

Support Group: MAC & Bronchiectasis

Posted: Oct 29, 2024

What kind of compressor do you use? I use a Pari VIOS green and it takes...

https://connect.mayoclinic.org/comment/646330/

Discussion: Bronchiectasis what are the stages and symptoms

Support Group: MAC & Bronchiectasis

Posted: Oct 19, 2021

Am curious about the microwave too. I purchased a baby bottle sterilizer for my Aerobika and...

https://connect.mayoclinic.org/comment/188958/

Discussion: Tips for travelling with MAC

Support Group: MAC & Bronchiectasis

Posted: Jan 5, 2019

I’m a first timer too. My Pari Vios wasn’t paid for by my Medicare Advantage plan...

https://connect.mayoclinic.org/comment/988081/

Discussion: dry medical nebulizer

Support Group: MAC & Bronchiectasis

Posted: Dec 29, 2023

I use the Ombra. Love it! I know it National Jewish health they pretty much exclusively,...

https://connect.mayoclinic.org/comment/966214/

Discussion: Need Advice for Traveling Internationally

Support Group: MAC & Bronchiectasis

Posted: Nov 17, 2023

Hi, Everyone, I haven't been active in a while but follow all the emails. I thought...

https://connect.mayoclinic.org/comment/66639/

Discussion: (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

Support Group: MAC & Bronchiectasis

Posted: Dec 10, 2019

I've been on nebulized hypertonic saline 3% followed by Tobi for 5 years. In the past...

https://connect.mayoclinic.org/comment/1078645/

Discussion: Losing voice on tobramycin

Support Group: MAC & Bronchiectasis

Posted: May 31, 2024

Hi Helen the best site to buy anything is just nebulizers because they are very reliable....

https://connect.mayoclinic.org/comment/1156748/

Discussion: Why is breath holding important during airway clearance?

Support Group: MAC & Bronchiectasis

Posted: Oct 14, 2024

I too am at a loss - my InnospireGo gave up the ghost last week, my...

https://connect.mayoclinic.org/comment/840627/

Discussion: Anyone have any nebulizer recommendations?

Support Group: MAC & Bronchiectasis

Posted: Apr 9, 2023