Support Groups

Kidney & Bladder Support Group

Public Support Group
1,301 total results
Discussions (55)
Declining gfr
Hi I am 37year old female and I have RA which is well under control( all my inflammatory are normal) . I do take hydroxycloriquine...
Support Group: Kidney & Bladder
Last active: Mar 13 2:46pm
Polycystic kidney disease (PKD) and future planning
Hello am new to the group. My story is that am a pkd patient at stage 3 with clearace at 175. I've been on salt...
Support Group: Kidney & Bladder
Last active: Sep 26, 2023
Living Long-Term at Stage 4 Kidney Disease
Hi, I've contributed to several discussions regarding kidney disease at various stages. I'm interested in experiences living long-term at stage 4. My eGFR (creatinine) is...
Support Group: Kidney & Bladder
Last active: May 23, 2024
GFR estimates: How can I improve them?
I was just diagnosed with stage 3B kidney disease about two weeks ago. My GFR number is 28. Everything I’ve read has my numbers in...
Support Group: Kidney & Bladder
Last active: Jun 22, 2021
My catheter and urine smell like a campfire
Since this morning, I woke up with my catheter smelling like smoke, as in a campfire. My urine also had this odor. As I drink...
Support Group: Kidney & Bladder
Last active: Mar 13, 2023
Partial nephrectomy in October 2021
I was diagnosed with a mass in left kidney and it was removed in 12 days. My robotic urologist said you will be fine. Part...
Support Group: Kidney & Bladder
Last active: Aug 5, 2023
Plant based “meat”
I’m ckd stage 3a - I’ve been on a plant based diet and it’s helped the protein in my urine numbers and it’s been suggested...
Support Group: Kidney & Bladder
Last active: Mar 16 5:22pm
CKD Meals & Recipe Collection by Members
Hello All, I am really getting bored with eating primarily veggies so much. There must be some easy recipes out there and if you have...
Support Group: Kidney & Bladder
Last active: Dec 23, 2022
What are things I can do to live well with 3b kidney disease?
I have recently been diagnosed with stage 3b CKD Since February I changed my diet lost 23 lbs and discontinued several meds I meet with...
Support Group: Kidney & Bladder
Last active: Jun 4, 2022
What is a safe method to detox or clean one's kidneys?
I have had two attempts to laser out a kidney stone in the last 6 months. The first failed but the second try succeeded. The...
Support Group: Kidney & Bladder
Last active: Mar 27 2:20am
My kidney function went from 53 to 35 in 3 weeks: What next?
Routine blood draw three weeks ago. My doctor had me in how we later to discuss my blood work. He had been a little concerned...
Support Group: Kidney & Bladder
Last active: Aug 11, 2022
What to eat when you have diabetes, heart and kidney issues?
I am a caregiver trying to balance my husband's diet. The diabetes and low sodium are under control but potassium levels keep spiking. I want...
Support Group: Kidney & Bladder
Last active: Jul 13, 2020
Starting Peritoneal Dialysis: What do I need to know?
Have just has surgery to install a catheter for Parenteral Dialysis. Will have to wait 3 weeks for healing. I have a really good group...
Support Group: Kidney & Bladder
Last active: Mar 5 11:03am
Exercise and Creatinine
My creatinine rises when I exercise. I walk every day and swim 3 times/a week. Creatinine goes up because of muscle strain. Am I damaging...
Support Group: Kidney & Bladder
Last active: Aug 9, 2023
Will radiation from medical procedures affect my kidneys?
My current eGFR is 25. I question any medical procedure involving radiation if not necessary. My reasoning is: that I've been getting mammograms for 30+...
Support Group: Kidney & Bladder
Last active: Nov 5, 2023
How does GFR move up and down so dramatically?
Hello! I've been reading many posts saying GFR has improved pretty dramatically. I was told kidneys do not repair themselves or get better. I have...
Support Group: Kidney & Bladder
Last active: Nov 23, 2024
How can I stabilize or improve my eGFR?
Hi, my eGFR came down from 38 to 28. My nephrologist put me on spironolactone 25mg to replace my Verapamil 180 mg, to stabilize my...
Support Group: Kidney & Bladder
Last active: Jan 25 1:05pm
How do you stick to your dietary plan when traveling for medical care?
Wanted: Your best tips. Sticking to diet requirements or restrictions can be a challenge at the best of times. But what about when you have...
Support Group: Just Want to Talk
Last active: Dec 16, 2020
Hydrogen water or tablets any benefits for kidney
My eGfr ranges from 52 To 60. I have blood test every three months and these numbers have been over a two year period. My...
Support Group: Kidney & Bladder
Last active: Feb 19 2:10pm
Why take NOT take notice when eGFR is under 90 rather than 60?
From my reading, it appears that "normal" eGFR is 90 or even above.Meanwhile the reference range for blood testing is 60 or above...and then you...
Support Group: Kidney & Bladder
Last active: Mar 30 2:05pm