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Head & Neck Cancer Support Group

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Navigating my way through throat cancer
Hello, my wife discovered this site a little over a week ago after I was diagnosed with HPV+ tonsil cancer. I had a couple of...
Support Group: Head & Neck Cancer
Last active: Mar 31 11:06am
Discussion
Anyone have a severe earache and sore throat weeks after chemo and ra?
My chemo and radiation treatments for tonsil cancer ended on April 7, 2023. I expected to feel really bad afterwards which I did. Everything I...
Support Group: Head & Neck Cancer
Last active: Jun 11, 2023
Discussion
Severe pain eating 7 weeks post radiation: Any tips?
Hi all,First-time poster here. 40M, stage 1 P16 / HPV+ tonsil cancer. Completed 33 fx, 70 gy proton radiation about 7 weeks ago. No chemo.Problem...
Support Group: Head & Neck Cancer
Last active: Dec 24, 2025
Discussion
Has anyone experienced a tonsillectomy and soft palate reconstruction?
Any experience or suggestions? I’m my wife’s caregiver. Early May 9th she was diagnosed with tonsil cancer. She made her first appointment within 2 weeks...
Support Group: Head & Neck Cancer
Last active: Mar 25, 2025
Discussion
How do you clear the HPV16 virus to prevent cancer recurrence?
Has anyone (Male) had any success totally clearing the HPV virus with Supplements/Diet changes or seeing a Naturopathic Doctor after having Cancer and going through...
Support Group: Head & Neck Cancer
Last active: Jun 17 11:04am
Discussion
Damage to the epoglottic flap from radiation treatments.
I had head and neck cancer (tonsil and tongue base) in 2009. Trismus is a issue that I had been working with since then. Back...
Support Group: Head & Neck Cancer
Last active: 7 hours ago
Discussion
Follow-up PET Scan shows something
Has anyone had a false positive for their Pet Scan for scc hpv 16+? Previously, I had clear margins after Tors near the tonsil and...
Support Group: Head & Neck Cancer
Last active: Jun 7 9:23am
Discussion
Just 2 and a half weeks into recovery after 33 radiation treatments
I had 33 radiation treatments and 4 chemo treatments for HPV cancer of the left tonsil/base of neck area… last radiation hit was 2.5 weeks...
Support Group: Head & Neck Cancer
Last active: Jun 15 6:56am
Discussion
Is it better to do DART Radiation after TORS Surgery or just Follow Up
Asking for input on our decision to do 2 week DART Radiation after TORS Surgery or just follow up every 3 month for 2 years....
Support Group: Head & Neck Cancer
Last active: May 13 10:07am
Discussion
Test for HPV and cryoablation for tonsils
I came across Connect when researching for a friend recently diagnosed with cancer in one tonsil and one lymph node. I have read of the...
Support Group: Head & Neck Cancer
Last active: May 17, 2023