Support Groups

Head & Neck Cancer Support Group

Public Support Group
484 total results
Discussions (34)
Inability to swallow - timeframe
Has anyone gone 5 months without swallowing at all and still been able to relearn?
Support Group: Head & Neck Cancer
Last active: Jun 12 2:29pm
Are there ways to help me swallow better?
Hi I'm here to try and get some kind of help with my eating, since i don't make saliva it hurts for me to eat...
Support Group: Head & Neck Cancer
Last active: 4 days ago
Inability to swallow and never ending foamy saliva
My 76 yr old husband had TORS surgery for SCC (HPV 16+) of the tonsils, back of throat and base of tongue in late January....
Support Group: Head & Neck Cancer
Last active: Apr 3 7:36pm
After radiation: Tracheotomy, feeding tube and hard to swallow
After radiation I cannot even take a sip of water I have a tracheotomy and feeding tube 60 % of the time I suffer even...
Last active: Aug 3, 2021
Swallowing liquids after throat surgery and lymph node dissection
I had a second surgery three weeks ago to remove residual tonsil cancer and to remove two lymph nodes. I am struggling to swallow liquids....
Support Group: Head & Neck Cancer
Last active: Sep 20, 2023
Difficulty swallowing meds: Resorted to DIY pharmaceutical compounding
I was irradiated for cancer of the nasopharynx in the mid-1970s. Over the years it has gotten increasingly difficult for me to swallow food and...
Support Group: Digestive Health
Last active: May 2 8:05pm
Anyone notice cognitive impairment with throat cancer or treatment?
My husband has had his 13th radiation treatment for throat cancer. Surgery did not get it all. He can't swallow. Has anyone else notice any...
Support Group: Head & Neck Cancer
Last active: Jun 17 8:30am
squamous cell in throat
I started developing a lesion in my throat about two months ago. It has recently become more aggressive to the point it has opened a...
Support Group: Head & Neck Cancer
Last active: Jan 18, 2020
Horrible coughing fits
My husband had extensive TORS surgery late January and just started radiation. But he has terrible coughing spells. Sounds and looks like he'll cough up...
Support Group: Head & Neck Cancer
Last active: May 22 10:02am
Trach stoma not closing.
I had a tracheostomy due to stage four larynx cancer. I completed chemoradiation without surgery. The trach was removed in March 2022 but has not...
Support Group: Head & Neck Cancer
Last active: Feb 12 3:27pm
Seeking advice for eating challenges
Good morning, I am recovering from oropharyngeal cancer radiation treatment which ended late last July. I have been working with a swallow therapist but am...
Support Group: Head & Neck Cancer
Last active: May 26 12:56pm
How long is your mouth sore after oral surgery?
About 3 months ago I had a tumor removed from the back of my mouth, the surgery went fine. However, it still hurts when I...
Support Group: Head & Neck Cancer
Last active: Dec 17, 2023
Phlegm and Saliva filling in the mouth after tongue sarcoma
My husband had a sarcoma of the tongue and throat He was diagnosed in 10/20 and has been cured by radiation and immunotherapy. Now his...
Support Group: Head & Neck Cancer
Last active: May 17, 2023
Adenoid cystic carcinoma - left tongue base
Primary radiation Jan 2013 and re-radiation Oct 2016. CT Angio Apr 2017. to view deep ulcer in left tongue base which may be cancerous and...
Support Group: Head & Neck Cancer
Last active: Dec 27, 2018
Excess phlegm after oral cancer surgery: What helps?
I had oral cancer surgery in September of 2022. I did not receive radiation or chemo after the surgery. Since then, I have had copious...
Support Group: Head & Neck Cancer
Last active: Feb 11 8:25am
Recently diagnosed with cancer on left tonsil with swollen lymph nodes
The only treatment options i have been offered is chemo and radiation. Radiation 5 times a week for 7 weeks and chemo once a week...
Support Group: Head & Neck Cancer
Last active: Dec 29, 2023
How to deal with constant stress and worry as caregiver?
I feel guilty that i feel so much stress and constant worry when it's my husband going through the cancer. And we haven't even started...
Support Group: Head & Neck Cancer
Last active: Apr 30 12:26pm
Struggling with shortness of breath and lump in throat
I’m new here so still a little lost. After two chemo sessions and 33 radiation treatments to my throat I am finding every day more...
Support Group: Head & Neck Cancer
Last active: Sep 14, 2021
Has anyone had radiation induced dysphagia?
I was diagnosed with nasal pharyngeal carcinoma when I was 16 years old (20 years ago!) was the first case in New Zealand and underwent...
Support Group: Head & Neck Cancer
Last active: Dec 23, 2023
Mouth sores, no taste and no saliva and other side effects
I was diagnosed with Squamous Cell Carcinoma of base of tongue. Level II and Level III nodes less than 1cm. in October 2015. I started...
Support Group: Head & Neck Cancer
Last active: Jun 1, 2017