Support Groups

Head & Neck Cancer Support Group

Public Support Group
2,224 total results
Discussions (189)
How I was diagnosed with Parotid Gland Cancer (High-grade NETs)
I would like to share some of my symptoms I experienced when I was first diagnosed with High Grade Neuroendocrine Carcinoma in my parotid gland....
Last active: Feb 16, 2021
Difficulty swallowing meds: Resorted to DIY pharmaceutical compounding
I was irradiated for cancer of the nasopharynx in the mid-1970s. Over the years it has gotten increasingly difficult for me to swallow food and...
Support Group: Digestive Health
Last active: May 2, 2024
Anyone dealing with long-term dysphagia and chronic cough?
Asking for my husband who is 61 and 12 years post chemo/radiation for stage IV scc base of tongue w/lymph node involvement. He is now...
Support Group: Head & Neck Cancer
Last active: Jun 11, 2024
Checking in again after starting treatment
Hi everybody. Just started my treatment for HPV-negative Base of Tongue Cancer. 6 of 35 radiation sessions done, 2 of 7 Chemos with Cisplatin done....
Support Group: Head & Neck Cancer
Last active: Sep 28, 2024
Recurring squamous cell cancer
I had my lower right jaw and tumor removed in August + 44 lymph nodes on right side removed, then 35 radiation treatments and 5...
Support Group: Head & Neck Cancer
Last active: Mar 14 6:01pm
Going my way: Decided to stop cancer treatments
To make a 18 yr long story short, I was diagnosed with stage 3 breast cancer in Nov. of 2000 at the age of 48....
Support Group: Breast Cancer
Last active: Sep 5, 2023
How to deal with constant stress and worry as caregiver?
I feel guilty that i feel so much stress and constant worry when it's my husband going through the cancer. And we haven't even started...
Support Group: Head & Neck Cancer
Last active: Apr 30, 2024
Best muscle cream
I suffer from radiation damage due to throat cancer 10 years ago which causes neck spasms at least 5 times a day especially if I...
Last active: Jun 8, 2024
It's difficult to get used to the radial forearm free flap. Tips?
I have had a radial free flap grafted in my mouth. It is extremely difficult for me to get used to it and causes me...
Support Group: Head & Neck Cancer
Last active: Jun 17, 2021
Would you get a Laryngectomy or stay with a Trach? How to cope?
Hello members. I've had cancer twice. 1st one was if the left vocal cord. 2nd one was in April 2018 base of the tongue and...
Support Group: Head & Neck Cancer
Last active: Apr 14, 2021
Husband fighting neck cancer, depressed and gloomy
My husband was diagnosed with oral cancer in July 2021, had extensive surgery to remove the tumor followed by chemo and radiation . 9 months...
Support Group: Caregivers
Last active: Nov 3, 2022
Husband diagnosed with tonsil cancer: looking for tips and support
I am writing for my husband who was recently diagnose with Tonsil Cancer. He finished the biopsy and PET scan but we do not know...
Support Group: Head & Neck Cancer
Last active: Jan 12 8:51am
Late effect stage 4 tonsil & tongue cancer 18 years ago
I have questions/comments I need some input about which I can’t seem to find. I am 18 years out from surgery, chemo and radiation. I...
Support Group: Head & Neck Cancer
Last active: 22 hours ago
Seeking Support: First Mayo Appointment for Husband's Cancer
Hi everyone,My husband and I are feeling a bit anxious as we prepare for his first appointment at the Mayo Clinic in Rochester, and we'd...
Support Group: Head & Neck Cancer
Last active: Feb 22 7:08am
My life in remission
It’s been a very long time since I have posted an update. This will be long and boring but hopefully this will give some newly...
Support Group: Head & Neck Cancer
Last active: Jan 29 10:02am
Anyone have a severe earache and sore throat weeks after chemo and ra?
My chemo and radiation treatments for tonsil cancer ended on April 7, 2023. I expected to feel really bad afterwards which I did. Everything I...
Support Group: Head & Neck Cancer
Last active: Jun 11, 2023
5-Aminolevulinic Acid and Pulsed Dye Laser for Oral Leukoplakia
Hello all. I have a question. After having a Novocain injection to fill a bottom middle tooth, I developed a raw patch on the floor...
Support Group: Head & Neck Cancer
Last active: Jan 29 1:49pm
Caretaker: Laryngectomy alternatives?
My partner was treated in 2015 for Stage IVa left true vocal fold SCC. Treated with Chemo (Cisplatin) and Radiation. Followed by bilateral neck dissection....
Support Group: Head & Neck Cancer
Last active: Apr 7 6:21am
Cordotomy versus Tracheotomy
I am faced with a dilemma. My vocal cords are paralyzed bilaterally from radiation treatment that ended approximately one year ago. Because of this, I...
Support Group: Head & Neck Cancer
Last active: Jul 18, 2021
Head and Neck Cancer and the possible consequences.
I am a survivor of squamous cell carcinoma at the base of my tongue. I'm now 18 years out. Everyone seems to have the usual...
Support Group: Head & Neck Cancer
Last active: 3 days ago