Support Groups

Head & Neck Cancer Support Group

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2,532 total results
Discussions (223)
Interest in an in-person support group?
I am eight months out of surgery/radiation for Stage IV Oral SCC and live in the Twin Cities (Minnesota). Are others in the area interested...
Support Group: Head & Neck Cancer
Last active: Jul 3 1:07pm
When in treatment for head and neck cancer: Beard or no beard?
Starting radiation and chemo in 2 weeks. Post surgery I have grown a beard. Can I, should I keep it? Might it help with skin...
Support Group: Head & Neck Cancer
Last active: Nov 3, 2023
Horrible coughing fits
My husband had extensive TORS surgery late January and just started radiation. But he has terrible coughing spells. Sounds and looks like he'll cough up...
Support Group: Head & Neck Cancer
Last active: May 22, 2024
Diagnosed with tongue cancer (2nd cancer): Worried about treatment
In 2011, I’ve had ambeplastoma(lower jaw cancer), I now was diagnosed with tongue cancer on October 11, 2024, I did radiation treatment in 2011, but...
Support Group: Head & Neck Cancer
Last active: Mar 9 4:21pm
Myofascial Release Therapy for longterm effects of cancer treatment
I have started Myofacial Release Therapy for long term side effects from surgery and radiation for head and neck cancer. Does anyone have thoughts to...
Support Group: Head & Neck Cancer
Last active: Jun 20 10:54am
Today I'm grateful for... (add yours below)
1. This wisdom of this community (and the encouragement and shared experience). 2. Seeing the stars when I go to radiation at 7am, then the...
Support Group: Head & Neck Cancer
Last active: Feb 8 2:58pm
Mouth sores, no taste and no saliva and other side effects
I was diagnosed with Squamous Cell Carcinoma of base of tongue. Level II and Level III nodes less than 1cm. in October 2015. I started...
Support Group: Head & Neck Cancer
Last active: Jun 1, 2017
SCC in tonsil/throat spreading: What should be next step?
HelloI am looking help for my uncle.Squamous cell carcinoma started in tonsil/throat, P16 positive,Went through radiation, it came back and spreadWent through chemo, had rough...
Support Group: Head & Neck Cancer
Last active: Oct 29, 2024
How do you clear the HPV16 virus to prevent cancer recurrence?
Has anyone (Male) had any success totally clearing the HPV virus with Supplements/Diet changes or seeing a Naturopathic Doctor after having Cancer and going through...
Support Group: Head & Neck Cancer
Last active: May 11 4:34pm
Dry Mouth. Particularly at night. Solutions?
I was diagnosed with Squamous of the tongue and lymph nodes. Following surgery, radiation and chemo/cysplatin I've had chronic dry mouth. A friend of my...
Support Group: Head & Neck Cancer
Last active: Jul 13 1:31pm
Nighttime urination mishaps
My husband had TORS surgery for throat cancer in January. He is very weak from some hospitalizations for pneumonia and now radiation. Caregivers I hire...
Support Group: Head & Neck Cancer
Last active: Jun 28, 2024
Vocal cord tumor: Anyone else?
I have been diagnosed with squamous cell invasive carcinoma on one of my vocal cords. I’ve been told the survival rate is very high and...
Support Group: Head & Neck Cancer
Last active: Jun 6, 2023
Taste Buds Not Quite Right
I had a radical tonsillectomy and neck dissection in April due to a tumor on my tonsil from HPV. I did not have radiation. That...
Support Group: Head & Neck Cancer
Last active: Dec 27, 2023
Mandible Reconstruction with Fibula Free Flap. Is this an option?
In cases of radiation to the jaw resulting in Osteoradionecrosis (radiation bone death) or Ameloblastoma or similar growths on the mandible, reconstruction surgery is sometimes...
Support Group: Head & Neck Cancer
Last active: Oct 23, 2024
Mucositis
Does anyone have experience with mucositis? I’m over 8 weeks post radiation and anything I can find on this states it should be cleared up...
Support Group: Head & Neck Cancer
Last active: Sep 8, 2021
Newly diagnosed and scared: How did you cope?
Hi folx, my "Thanksgiving Eve" tongue biopsy revealed stage 1 HPV squamous cell carcinoma. I understand it's treatable and the 7 weeks of chemo/radiation sounds...
Support Group: Head & Neck Cancer
Last active: Jan 29 9:48am
Squamous Cell Carcinoma in the eye orbit and on face
My husband 73 years old had 2022 Squamous Cell Carcinoma in the Orbit right eye. Strong Chemo and Immuno therapy destroy the Cancer. Now, the...
Support Group: Melanoma & Skin Cancer
Last active: Feb 4 2:51pm
Three months post treatment with Ongoing Mouth Pain
Hi everyone, I’m so grateful to have this forum! I’m a 43 year old female who received 35 rounds of radiation with chemo for metastatic...
Support Group: Head & Neck Cancer
Last active: Aug 24 1:46pm
How do I know when I can get off my feeding tube?
It's been over 7 months since my last radiation treatment for throat cancer. I could not eat because of the pain for months. I can...
Support Group: Head & Neck Cancer
Last active: Jun 11 7:51am
Anybody that had adenoid cystic carcinoma in sinus cavity?
I had this tumor removed from my right sinus, and then radiation, it's been 2 years. I have such issues with congestion, ear feeling "plugged"...
Support Group: Head & Neck Cancer
Last active: Aug 7, 2023