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Head & Neck Cancer Support Group

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Discussions (263)
SCC HPV+ on right tonsil and nodes treatment plan.
Hi all. My 70 year young husband has been diagnosed with SCC HPV+ on right tonsil, only detected by lump on neck. RO says N1....
Support Group: Head & Neck Cancer
Last active: Mar 29, 2023
Thank God for Hope-Miracles and Mashed Potatoes & Gravy
Hi everyone, I am Julie, 18 years out from Stage 4 tonsil and tongue “HPV” cancer. I can legitimately say I have experienced just about...
Support Group: Head & Neck Cancer
Last active: Nov 27, 2025
Dental treatment before rad denied by insurance
Hi- I'm not sure if this is the right forum for this. I'm a 53yoM with SCC of the tongue. I completed chemo/radiation at Mayo....
Support Group: Head & Neck Cancer
Last active: Nov 30, 2025
Radical Neck Dissection concerns
Hello, This is my first post. So let me introduce myself. I am the caregiver, and my husband is the patient. He was diagnosed with...
Support Group: Head & Neck Cancer
Last active: May 22, 2023
Sarcoma of nasal cavity - any input?
New member here -- hello friends! I've been reading the posts for a few weeks. My healthy 81 year-old husband has been diagnosed with a...
Support Group: Head & Neck Cancer
Last active: Nov 16, 2023
Kidney recovery after H&N treatments
Hello! I was diagnosed with H&N SSC cancer last August and had 35 treatments of radiation and 7 rounds of Cisplatin. My last chemo was...
Support Group: Head & Neck Cancer
Last active: Jan 12, 2024
Preventing pneumonia
For those who cannot swalliw at all, like my husband, have you any advice on how to stop getting pneumonia? Does it improve after radiation...
Support Group: Head & Neck Cancer
Last active: Jul 13, 2024
Adenoid cystic carcinoma - left tongue base
Primary radiation Jan 2013 and re-radiation Oct 2016. CT Angio Apr 2017. to view deep ulcer in left tongue base which may be cancerous and...
Support Group: Head & Neck Cancer
Last active: Dec 27, 2018
Anyone on dabrafenib (Tafinlar) & trametinib (Mekinst) oral chemo?
is anyone else taking mekinist and dabrafenib for oral chemo. very nervous about the situation. onconologist agree on no target radiation. have no idea to...
Support Group: Head & Neck Cancer
Last active: Dec 13, 2023
Recently diagnosed with cancer on left tonsil with swollen lymph nodes
The only treatment options i have been offered is chemo and radiation. Radiation 5 times a week for 7 weeks and chemo once a week...
Support Group: Head & Neck Cancer
Last active: Dec 29, 2023
Has anyone had surgery to remove scar tissue?
I have a lot of scar tissue from radiation leaving me with a challenged airway - it has also ratcheted down on my vocal cords...
Support Group: Head & Neck Cancer
Last active: Mar 25 4:19pm
Nerve damage effecting tongue, muscle, swallowing.
Hello, Back in 2015 /2016 I had tonsil cancer after going though chemo & radiation. (I'm cancer free :)) but I do have nerve damage...
Support Group: Head & Neck Cancer
Last active: Dec 30, 2025
Extranodal marginal zone lymphoma
Hi, I was recently diagnosed with extranodal marginal zone lymphoma to the base of tongue and palatine tonsils. I also have Sjogren's Syndrome and Lymphocytic...
Support Group: Cancer
Last active: Feb 15, 2024
HELP! Post Cancer Throat Pain
My dad (now 83 years old) had tonsil cancer 10 years ago. 35 radiation treatments plus chemo killed the tumor. This past year, radiation fibrosis/necrosis...
Support Group: Head & Neck Cancer
Last active: Oct 3, 2024
Tonsil Cancer from HPV
I discovered I had a tumor on my right tonsil in April and it had moved to one lymph node - I had robotic surgery...
Support Group: Head & Neck Cancer
Last active: Feb 23, 2025
Navigating my way through throat cancer
Hello, my wife discovered this site a little over a week ago after I was diagnosed with HPV+ tonsil cancer. I had a couple of...
Support Group: Head & Neck Cancer
Last active: Mar 31 11:06am
Tongue and tonsil HPV found.
Just diagnosed hpv viral back of tongue etc. I'm not sure how quality of life will be during and after. 76 male good shape. Would...
Support Group: Head & Neck Cancer
Last active: Jan 4, 2024
Constipation, 911 and bm talk
I just completed 35 radiation Treatments for thyroid & trachea cancer. This included 6 chemotherapy.I have been on oxycodone and tylenol for throat pain and...
Support Group: Head & Neck Cancer
Last active: Apr 4, 2025
15 years after parotid cancer
As a female at the age of 60, in November of 2010 I was diagnosed with parotid (salivary gland) cancer. In December I underwent surgery...
Support Group: Head & Neck Cancer
Last active: May 25, 2025
Struggling with shortness of breath and lump in throat
I’m new here so still a little lost. After two chemo sessions and 33 radiation treatments to my throat I am finding every day more...
Support Group: Head & Neck Cancer
Last active: Sep 14, 2021