Support Groups

Head & Neck Cancer Support Group

Public Support Group
2,377 total results
Discussions (210)
Lymphedema of the neck: What did you do?
Hello I have Lymphedema of the neck amd face following radiation/chemo for base of tongue cancer. Has anyone else experienced this? What did you do?I...
Support Group: Head & Neck Cancer
Last active: May 22 5:54pm
When will my sense of taste and smell return?
I've had chemo and radiation for my throat cancer. It's been three weeks now since I've had my last treatments, and I'm wondering when anyone...
Support Group: Head & Neck Cancer
Last active: May 2 8:33am
Cancer wrapped around carotid artery
We were preparing for radiation and chemo but my husband ended up in ER coughing up clots if blood. He survived surgery to stop the...
Support Group: Head & Neck Cancer
Last active: May 24 9:14pm
Leaving group as husband passed away
After many months of struggling with his cancer, 35 rounds of radiation, and several hospital stays due to aspiration pneumonia because he could not swallow...
Support Group: Head & Neck Cancer
Last active: Jan 4 10:07am
Chemo with bad kidneys?
Hello, I have had two separate surgeries within the last 2 years to remove large SCC tumors. One was on the one side and involved...
Support Group: Head & Neck Cancer
Last active: Apr 15 8:30am
Squamous Cell Cancer of head and neck
Does anyone know of a treatment for squamous cell cancer stage IV? My son is 47 and was given weeks to live but he is...
Support Group: Head & Neck Cancer
Last active: Dec 3, 2022
Getting sick during treatment
My husband will be having chemo & radiation for tonsil cancer and lymph note spread. I am concerned he will contract some contagious flu/virus/covid as...
Support Group: Head & Neck Cancer
Last active: Jul 2, 2023
Any long term survivors have issues with blood pressure stability?
Hi. I'm curious if any long term survivors in the group have issues with blood pressure stability.I am 16 years post treatment for tonsil cancer....
Support Group: Head & Neck Cancer
Last active: Dec 26, 2024
Starting de-escalated treatment for base of tongue
I am beginning de-escalated chemoraddiation treatment for base of tounge cancer. Ten days twice a day for radiation. I would like to hear from others...
Support Group: Head & Neck Cancer
Last active: Dec 7, 2021
Were you able to work during cancer treatment?
I have a tumor on my tonsil that has spread to my lymph nodes under my jaw. I am told I will have to do...
Support Group: Head & Neck Cancer
Last active: Aug 8, 2023
Chemo delayed due to low white blood count: Disappointed
My husband was suppose to have chemo today but his white blood count was low so will go next week instead. Did that happen to...
Support Group: Head & Neck Cancer
Last active: Feb 19, 2024
When in treatment for head and neck cancer: Beard or no beard?
Starting radiation and chemo in 2 weeks. Post surgery I have grown a beard. Can I, should I keep it? Might it help with skin...
Support Group: Head & Neck Cancer
Last active: Nov 3, 2023
Bleeding Lingual Artery Aneurysm = Changes, like liquid diet and more
Another chapter for my adventure. I had stage 3 squamous cell carcinoma of the right base of the tongue. My final radiation treatment was July...
Support Group: Head & Neck Cancer
Last active: Mar 9, 2022
Diagnosed with tongue cancer (2nd cancer): Worried about treatment
In 2011, I’ve had ambeplastoma(lower jaw cancer), I now was diagnosed with tongue cancer on October 11, 2024, I did radiation treatment in 2011, but...
Support Group: Head & Neck Cancer
Last active: Mar 9 4:21pm
Horrible coughing fits
My husband had extensive TORS surgery late January and just started radiation. But he has terrible coughing spells. Sounds and looks like he'll cough up...
Support Group: Head & Neck Cancer
Last active: May 22, 2024
Today I'm grateful for... (add yours below)
1. This wisdom of this community (and the encouragement and shared experience). 2. Seeing the stars when I go to radiation at 7am, then the...
Support Group: Head & Neck Cancer
Last active: Feb 8 2:58pm
Mouth sores, no taste and no saliva and other side effects
I was diagnosed with Squamous Cell Carcinoma of base of tongue. Level II and Level III nodes less than 1cm. in October 2015. I started...
Support Group: Head & Neck Cancer
Last active: Jun 1, 2017
SCC in tonsil/throat spreading: What should be next step?
HelloI am looking help for my uncle.Squamous cell carcinoma started in tonsil/throat, P16 positive,Went through radiation, it came back and spreadWent through chemo, had rough...
Support Group: Head & Neck Cancer
Last active: Oct 29, 2024
How do you clear the HPV16 virus to prevent cancer recurrence?
Has anyone (Male) had any success totally clearing the HPV virus with Supplements/Diet changes or seeing a Naturopathic Doctor after having Cancer and going through...
Support Group: Head & Neck Cancer
Last active: May 11 4:34pm
Nighttime urination mishaps
My husband had TORS surgery for throat cancer in January. He is very weak from some hospitalizations for pneumonia and now radiation. Caregivers I hire...
Support Group: Head & Neck Cancer
Last active: Jun 28, 2024