Support Groups

Head & Neck Cancer Support Group

Public Support Group
1,851 total results
Discussions (147)
Gastrostomy Tube (G-Tube): Difficulty finding a formula that works
My husband is currently starting week 4 of his 7 week treatment with Cistplatin and radiation but is having the worst time with finding a...
Support Group: Head & Neck Cancer
Last active: Apr 14 9:43am
Seeking advice for eating challenges
Good morning, I am recovering from oropharyngeal cancer radiation treatment which ended late last July. I have been working with a swallow therapist but am...
Support Group: Head & Neck Cancer
Last active: May 26 12:56pm
Sore on tongue from treatments: What helps?
Hi everybody, My husband has 9 more radiation treatments & 1 more chemo to go. He is having bad pain due to a huge, quarter...
Support Group: Head & Neck Cancer
Last active: Nov 25, 2023
Parotid cancer
I am new at this so not sure how this all works. But, I would like to know if there are any clinical trials for...
Support Group: Head & Neck Cancer
Last active: Feb 14, 2021
Husband diagnosed with Squamous cell tumor on his neck.
After 5 weeks 19 treatments it fell off. He was in extreme pain after that during radiation because of the way they were positioning his...
Support Group: Head & Neck Cancer
Last active: Mar 11 10:09am
Anyone dealing with long-term dysphagia and chronic cough?
Asking for my husband who is 61 and 12 years post chemo/radiation for stage IV scc base of tongue w/lymph node involvement. He is now...
Support Group: Head & Neck Cancer
Last active: Jun 11 1:03pm
How I was diagnosed with Parotid Gland Cancer (High-grade NETs)
I would like to share some of my symptoms I experienced when I was first diagnosed with High Grade Neuroendocrine Carcinoma in my parotid gland....
Last active: Feb 16, 2021
Difficulty swallowing meds: Resorted to DIY pharmaceutical compounding
I was irradiated for cancer of the nasopharynx in the mid-1970s. Over the years it has gotten increasingly difficult for me to swallow food and...
Support Group: Digestive Health
Last active: May 2 8:05pm
Recurring squamous cell cancer
I had my lower right jaw and tumor removed in August + 44 lymph nodes on right side removed, then 35 radiation treatments and 5...
Support Group: Head & Neck Cancer
Last active: May 14 8:08am
Going my way: Decided to stop cancer treatments
To make a 18 yr long story short, I was diagnosed with stage 3 breast cancer in Nov. of 2000 at the age of 48....
Support Group: Breast Cancer
Last active: Sep 5, 2023
How to deal with constant stress and worry as caregiver?
I feel guilty that i feel so much stress and constant worry when it's my husband going through the cancer. And we haven't even started...
Support Group: Head & Neck Cancer
Last active: Apr 30 12:26pm
Best muscle cream
I suffer from radiation damage due to throat cancer 10 years ago which causes neck spasms at least 5 times a day especially if I...
Last active: Jun 8 6:43pm
Husband fighting neck cancer, depressed and gloomy
My husband was diagnosed with oral cancer in July 2021, had extensive surgery to remove the tumor followed by chemo and radiation . 9 months...
Support Group: Caregivers
Last active: Nov 3, 2022
Husband diagnosed with tonsil cancer: looking for tips and support
I am writing for my husband who was recently diagnose with Tonsil Cancer. He finished the biopsy and PET scan but we do not know...
Support Group: Head & Neck Cancer
Last active: Apr 4 11:41am
Would you get a Laryngectomy or stay with a Trach? How to cope?
Hello members. I've had cancer twice. 1st one was if the left vocal cord. 2nd one was in April 2018 base of the tongue and...
Support Group: Head & Neck Cancer
Last active: Apr 14, 2021
It's difficult to get used to the radial forearm free flap. Tips?
I have had a radial free flap grafted in my mouth. It is extremely difficult for me to get used to it and causes me...
Support Group: Head & Neck Cancer
Last active: Jun 17, 2021
Anyone have a severe earache and sore throat weeks after chemo and ra?
My chemo and radiation treatments for tonsil cancer ended on April 7, 2023. I expected to feel really bad afterwards which I did. Everything I...
Support Group: Head & Neck Cancer
Last active: Jun 11, 2023
What’s left after my cure for nasopharyngeal cancer
I was “cured” from my stage 4 non-small cell Nasopharyngeal carcinoma after 8 months of living hell treatments in 2012. After the forth dose of...
Support Group: Head & Neck Cancer
Last active: Oct 30 11:45am
Cordotomy versus Tracheotomy
I am faced with a dilemma. My vocal cords are paralyzed bilaterally from radiation treatment that ended approximately one year ago. Because of this, I...
Support Group: Head & Neck Cancer
Last active: Jul 18, 2021
Saying hello and a question or two or three
Hi everybody. So I’m one day out from getting the dreaded phone call from the doctor wanting to discuss my CT scan. The highlights: 1)...
Support Group: Head & Neck Cancer
Last active: Aug 5 7:24pm