Support Groups

Head & Neck Cancer Support Group

Public Support Group
1,851 total results
Discussions (147)
Squamous cell carcinoma (SSC) with perineural invasion (PNI)
Hi,my name is Pam and I am 63 retired from Massachusetts. I was diagnosed with SSC with PNI of the right nostril after being originally...
Support Group: Head & Neck Cancer
Last active: May 18 11:23am
Struggling with shortness of breath and lump in throat
I’m new here so still a little lost. After two chemo sessions and 33 radiation treatments to my throat I am finding every day more...
Support Group: Head & Neck Cancer
Last active: Sep 14, 2021
Difficulty swallowing liquids
I’m 69 and about 22 years out from throat cancer. I was treated with three rounds of chemo and 6 weeks radiation. My swallowing issues...
Support Group: Head & Neck Cancer
Last active: 29 minutes ago
Strange taste - change in taste
I had a radical tonsillectomy in April to remove a HPV tumor on my right tonsil- had left removed as well - just to be...
Support Group: Head & Neck Cancer
Last active: Feb 22 3:26pm
20 weeks Post Treatment What to Eat?
I'm twenty weeks post radiation (35 sessions) for tonsil cancer. Doing well and back to living my life except for eating. I still can only...
Support Group: Head & Neck Cancer
Last active: 4 days ago
Mandible Reconstruction with Fibula Free Flap. Is this an option?
In cases of radiation to the jaw resulting in Osteoradionecrosis (radiation bone death) or Ameloblastoma or similar growths on the mandible, reconstruction surgery is sometimes...
Support Group: Head & Neck Cancer
Last active: Oct 23 3:41pm
How soon did treatment start? Dental issues first
My dad was diagnosed with tonsil cancer the beginning of January and is supposed to start chemo and radiation but due to dental issues he...
Support Group: Head & Neck Cancer
Last active: Feb 24 2:40pm
How to help a cancer patient undergoing treatment with nutrition?
Hello, family member is currently going through chemo and radiation but is barely eating anything at all due to nausea. Could anyone provide me with...
Support Group: Head & Neck Cancer
Last active: Jan 9 9:52am
Cancer wrapped around carotid artery
We were preparing for radiation and chemo but my husband ended up in ER coughing up clots if blood. He survived surgery to stop the...
Support Group: Head & Neck Cancer
Last active: May 5 8:40am
Starting de-escalated treatment for base of tongue
I am beginning de-escalated chemoraddiation treatment for base of tounge cancer. Ten days twice a day for radiation. I would like to hear from others...
Support Group: Head & Neck Cancer
Last active: Dec 7, 2021
Were you able to work during cancer treatment?
I have a tumor on my tonsil that has spread to my lymph nodes under my jaw. I am told I will have to do...
Support Group: Head & Neck Cancer
Last active: Aug 8, 2023
Chemo delayed due to low white blood count: Disappointed
My husband was suppose to have chemo today but his white blood count was low so will go next week instead. Did that happen to...
Support Group: Head & Neck Cancer
Last active: Feb 19 4:26pm
Squamous Cell Cancer of head and neck
Does anyone know of a treatment for squamous cell cancer stage IV? My son is 47 and was given weeks to live but he is...
Support Group: Head & Neck Cancer
Last active: Dec 3, 2022
Getting sick during treatment
My husband will be having chemo & radiation for tonsil cancer and lymph note spread. I am concerned he will contract some contagious flu/virus/covid as...
Support Group: Head & Neck Cancer
Last active: Jul 2, 2023
Horrible coughing fits
My husband had extensive TORS surgery late January and just started radiation. But he has terrible coughing spells. Sounds and looks like he'll cough up...
Support Group: Head & Neck Cancer
Last active: May 22 10:02am
Bleeding Lingual Artery Aneurysm = Changes, like liquid diet and more
Another chapter for my adventure. I had stage 3 squamous cell carcinoma of the right base of the tongue. My final radiation treatment was July...
Support Group: Head & Neck Cancer
Last active: Mar 9, 2022
When in treatment for head and neck cancer: Beard or no beard?
Starting radiation and chemo in 2 weeks. Post surgery I have grown a beard. Can I, should I keep it? Might it help with skin...
Support Group: Head & Neck Cancer
Last active: Nov 3, 2023
Myofascial Release Therapy for longterm effects of cancer treatment
I have started Myofacial Release Therapy for long term side effects from surgery and radiation for head and neck cancer. Does anyone have thoughts to...
Support Group: Head & Neck Cancer
Last active: Dec 1, 2023
Mouth sores, no taste and no saliva and other side effects
I was diagnosed with Squamous Cell Carcinoma of base of tongue. Level II and Level III nodes less than 1cm. in October 2015. I started...
Support Group: Head & Neck Cancer
Last active: Jun 1, 2017
Vocal cord tumor: Anyone else?
I have been diagnosed with squamous cell invasive carcinoma on one of my vocal cords. I’ve been told the survival rate is very high and...
Support Group: Head & Neck Cancer
Last active: Jun 6, 2023