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Head & Neck Cancer Support Group

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Discussions (75)
Navigating my way through throat cancer
Hello, my wife discovered this site a little over a week ago after I was diagnosed with HPV+ tonsil cancer. I had a couple of...
Support Group: Head & Neck Cancer
Last active: Mar 31 11:06am
Anyone have a severe earache and sore throat weeks after chemo and ra?
My chemo and radiation treatments for tonsil cancer ended on April 7, 2023. I expected to feel really bad afterwards which I did. Everything I...
Support Group: Head & Neck Cancer
Last active: Jun 11, 2023
Severe pain eating 7 weeks post radiation: Any tips?
Hi all,First-time poster here. 40M, stage 1 P16 / HPV+ tonsil cancer. Completed 33 fx, 70 gy proton radiation about 7 weeks ago. No chemo.Problem...
Support Group: Head & Neck Cancer
Last active: Dec 24, 2025
Has anyone experienced a tonsillectomy and soft palate reconstruction?
Any experience or suggestions? I’m my wife’s caregiver. Early May 9th she was diagnosed with tonsil cancer. She made her first appointment within 2 weeks...
Support Group: Head & Neck Cancer
Last active: Mar 25, 2025
How do you clear the HPV16 virus to prevent cancer recurrence?
Has anyone (Male) had any success totally clearing the HPV virus with Supplements/Diet changes or seeing a Naturopathic Doctor after having Cancer and going through...
Support Group: Head & Neck Cancer
Last active: Jun 17 11:04am
Damage to the epoglottic flap from radiation treatments.
I had head and neck cancer (tonsil and tongue base) in 2009. Trismus is a issue that I had been working with since then. Back...
Support Group: Head & Neck Cancer
Last active: 12 hours ago
Follow-up PET Scan shows something
Has anyone had a false positive for their Pet Scan for scc hpv 16+? Previously, I had clear margins after Tors near the tonsil and...
Support Group: Head & Neck Cancer
Last active: Jun 7 9:23am
Just 2 and a half weeks into recovery after 33 radiation treatments
I had 33 radiation treatments and 4 chemo treatments for HPV cancer of the left tonsil/base of neck area… last radiation hit was 2.5 weeks...
Support Group: Head & Neck Cancer
Last active: Jun 15 6:56am
Is it better to do DART Radiation after TORS Surgery or just Follow Up
Asking for input on our decision to do 2 week DART Radiation after TORS Surgery or just follow up every 3 month for 2 years....
Support Group: Head & Neck Cancer
Last active: May 13 10:07am
Test for HPV and cryoablation for tonsils
I came across Connect when researching for a friend recently diagnosed with cancer in one tonsil and one lymph node. I have read of the...
Support Group: Head & Neck Cancer
Last active: May 17, 2023
SCC in tonsil/throat spreading: What should be next step?
HelloI am looking help for my uncle.Squamous cell carcinoma started in tonsil/throat, P16 positive,Went through radiation, it came back and spreadWent through chemo, had rough...
Support Group: Head & Neck Cancer
Last active: Oct 29, 2024
Types of radiation therapy and chemo therapy combinations
Hello - my brother was just diagnosed with HPV cancer and had removal of lymphs nodes through right neck dissection and removal of right tonsil....
Support Group: Head & Neck Cancer
Last active: Nov 27, 2023
Excessive mucous after throat cancer treatment: How did you cope?
My husband is a week post op TORS surgery for throat cancer,, at the base of his tongue, he also had his tonsils removed as...
Support Group: Head & Neck Cancer
Last active: Apr 30 8:00am
Were you able to work during cancer treatment?
I have a tumor on my tonsil that has spread to my lymph nodes under my jaw. I am told I will have to do...
Support Group: Head & Neck Cancer
Last active: Aug 8, 2023
Laser treatment for scar tissue post radiation of the throat
My husband had squamous cell cancer of the tonsils and had radiation and chemo. He is a year out from treatment it is now developing...
Support Group: Head & Neck Cancer
Last active: Jul 17, 2023
Anyone had surgery (TORS) with no radiation or chemo after?
Has anyone had just TORS with no radiation or chemo after and been cancer free? I had TORS 2 days ago on < 1clm primary...
Support Group: Head & Neck Cancer
Last active: Apr 6 3:00pm
Chronic ear pain and stuffy nose after throat cancer treatment
My husband is experiencing pain in his left ear 3 months after completing radiation and chemotherapy for cancer on his left tonsil. He describes the...
Support Group: Head & Neck Cancer
Last active: Dec 3, 2023
Hypopharyngeal cancer: Anyone treated with proton radiation?
My husband diagnosed with hypopharyngeal cancer in late June. He had a tonsillectomy and the right tonsil was removed. He will be ready for radiation...
Support Group: Head & Neck Cancer
Last active: Dec 17, 2022
New cancer 2 months after TORS Surgery chemo+radiation
My husband had extensive TORS surgery Jan 25 for HPV + SSC. While hospitalized for aspiration pneumonia catscan showed cancer is back and biopsy revealed...
Support Group: Head & Neck Cancer
Last active: Aug 30, 2025
Husband shutting down emotionally
My husband is almost finished his treatment for SCC Tonsil/base of tongue HPV+ cancer. He is not communication and is actually being quite abusive towards...
Support Group: Head & Neck Cancer
Last active: Dec 27, 2022