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Head & Neck Cancer Support Group

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Discussions (72)
How soon did treatment start? Dental issues first
My dad was diagnosed with tonsil cancer the beginning of January and is supposed to start chemo and radiation but due to dental issues he...
Support Group: Head & Neck Cancer
Last active: Feb 24, 2024
Has anyone gone through the 30gy DART therapy, what is recovery like?
I was diagnosed with HPV tonsil cancer SCC. Did TORS surgery with neck dissection. All margins clear but tumor had PNI-peri neural involvement. They are...
Support Group: Head & Neck Cancer
Last active: 2 days ago
Fractured jaw from radiation - What treatment options are there?
Hi all, My name is Paul and i have a fractured jaw due to the effects of long term aggressive radiation for tonsil cancer in...
Support Group: Head & Neck Cancer
Last active: Apr 22 10:21am
I just started radiation, what kind of side effects should I expect?
I had surgery on 3/20 for tonsil cancer that was HPV positive. I started radiation on 4/16. Im half way done and I have a...
Support Group: Head & Neck Cancer
Last active: 3 days ago
Oncology Dentist: Is it recommended to see a specialist?
Hi, my husband is 2 weeks in his radiation and chemo for tonsil cancer. He has seen our family dentist and he is not given...
Support Group: Head & Neck Cancer
Last active: Dec 6, 2023
Swelling at site of tumour 6 weeks post radiation
I am 6 weeks post 35 sessions radiation for HPV + tonsil cancer T2N0. Have had all the usual after effects but fortunately not to...
Support Group: Head & Neck Cancer
Last active: Dec 11, 2025
Fat grafting for swallowing and speech issues caused by radiation?
I’m a 16 year tonsil cancer survivor, but I had stage IV and got hit with high dose of radiation and have been dealing with...
Support Group: Head & Neck Cancer
Last active: 2 hours ago
How long after cancer treatment for bloodwork to go to normal again?
My husband had tonsil cancer, finished treatments so it’s been 3 months since done. Still has eating issues, dry mouth, throat etc. he’s still going...
Last active: Jun 1, 2024
Has anyone tried Joven therapeutic nutrition powder?
I am now one year after radiation treatment for stage 3 tonsil cancer. I am still struggling with dry mouth, slight irritation, and mucous. My...
Support Group: Head & Neck Cancer
Last active: Nov 1, 2025
20 weeks Post Treatment What to Eat?
I'm twenty weeks post radiation (35 sessions) for tonsil cancer. Doing well and back to living my life except for eating. I still can only...
Support Group: Head & Neck Cancer
Last active: Dec 28, 2025
Swallowing liquids after throat surgery and lymph node dissection
I had a second surgery three weeks ago to remove residual tonsil cancer and to remove two lymph nodes. I am struggling to swallow liquids....
Support Group: Head & Neck Cancer
Last active: Sep 20, 2023
Nerve damage effecting tongue, muscle, swallowing.
Hello, Back in 2015 /2016 I had tonsil cancer after going though chemo & radiation. (I'm cancer free :)) but I do have nerve damage...
Support Group: Head & Neck Cancer
Last active: Dec 30, 2025
Roof of mouth still severely irritated 4 weeks post radiation
I was diagnosed with tongue and tonsil cancer in February. I had 35 rounds of radiation which I completed 4 weeks ago. The roof of...
Support Group: Head & Neck Cancer
Last active: Jul 23, 2024
2 consecutive PET scans show two different results
My husband was diagnosed with tonsil cancer bone e metastasis due to HVP16 positive 6 months ago. After 4 rounds of chemotherapy and immunotherapy a...
Support Group: Head & Neck Cancer
Last active: Nov 7, 2025
Recently diagnosed with cancer on left tonsil with swollen lymph nodes
The only treatment options i have been offered is chemo and radiation. Radiation 5 times a week for 7 weeks and chemo once a week...
Support Group: Head & Neck Cancer
Last active: Dec 29, 2023
HELP! Post Cancer Throat Pain
My dad (now 83 years old) had tonsil cancer 10 years ago. 35 radiation treatments plus chemo killed the tumor. This past year, radiation fibrosis/necrosis...
Support Group: Head & Neck Cancer
Last active: Oct 3, 2024
HPV tonsil, throat cancer spread to lymph node chains & clumped
This has exploded out of the neck and is inoperable. First round of aggressive Chemotherapy was given. Extreme fatigue has resulted while waiting for second...
Support Group: Head & Neck Cancer
Last active: Oct 31, 2025
Navigating my way through throat cancer
Hello, my wife discovered this site a little over a week ago after I was diagnosed with HPV+ tonsil cancer. I had a couple of...
Support Group: Head & Neck Cancer
Last active: Mar 31 11:06am
Any long term survivors have issues with blood pressure stability?
Hi. I'm curious if any long term survivors in the group have issues with blood pressure stability.I am 16 years post treatment for tonsil cancer....
Support Group: Head & Neck Cancer
Last active: Dec 26, 2024
Late effect stage 4 tonsil & tongue cancer 18 years ago
I have questions/comments I need some input about which I can’t seem to find. I am 18 years out from surgery, chemo and radiation. I...
Support Group: Head & Neck Cancer
Last active: Apr 19, 2025