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Head & Neck Cancer Support Group

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Discussions (264)
Vocal cord tumor: Anyone else?
I have been diagnosed with squamous cell invasive carcinoma on one of my vocal cords. I’ve been told the survival rate is very high and...
Support Group: Head & Neck Cancer
Last active: Jun 6, 2023
SCC in tonsil/throat spreading: What should be next step?
HelloI am looking help for my uncle.Squamous cell carcinoma started in tonsil/throat, P16 positive,Went through radiation, it came back and spreadWent through chemo, had rough...
Support Group: Head & Neck Cancer
Last active: Oct 29, 2024
Dry Mouth. Particularly at night. Solutions?
I was diagnosed with Squamous of the tongue and lymph nodes. Following surgery, radiation and chemo/cysplatin I've had chronic dry mouth. A friend of my...
Support Group: Head & Neck Cancer
Last active: Jul 13, 2025
Mandible Reconstruction with Fibula Free Flap. Is this an option?
In cases of radiation to the jaw resulting in Osteoradionecrosis (radiation bone death) or Ameloblastoma or similar growths on the mandible, reconstruction surgery is sometimes...
Support Group: Head & Neck Cancer
Last active: Sep 19, 2025
Nighttime urination mishaps
My husband had TORS surgery for throat cancer in January. He is very weak from some hospitalizations for pneumonia and now radiation. Caregivers I hire...
Support Group: Head & Neck Cancer
Last active: Jun 28, 2024
Taste Buds Not Quite Right
I had a radical tonsillectomy and neck dissection in April due to a tumor on my tonsil from HPV. I did not have radiation. That...
Support Group: Head & Neck Cancer
Last active: Dec 27, 2023
Squamous Cell Carcinoma in the eye orbit and on face
My husband 73 years old had 2022 Squamous Cell Carcinoma in the Orbit right eye. Strong Chemo and Immuno therapy destroy the Cancer. Now, the...
Support Group: Melanoma & Skin Cancer
Last active: Feb 4, 2025
Newly diagnosed and scared: How did you cope?
Hi folx, my "Thanksgiving Eve" tongue biopsy revealed stage 1 HPV squamous cell carcinoma. I understand it's treatable and the 7 weeks of chemo/radiation sounds...
Support Group: Head & Neck Cancer
Last active: Jan 29, 2025
Continued vomiting after treatment has ended: Is this normal?
My partner finished radiation treatment on 10/20/25 for neck cancer. He has a PET scan scheduled for later next month (01/26). He has been experiencing...
Support Group: Head & Neck Cancer
Last active: Dec 23, 2025
Does anyone have experience with mucositis?
Does anyone have experience with mucositis?I’m over 8 weeks post radiation and anything I can find on this states it should be cleared up by...
Support Group: Head & Neck Cancer
Last active: Sep 8, 2021
Has anyone gone through the 30gy DART therapy, what is recovery like?
I was diagnosed with HPV tonsil cancer SCC. Did TORS surgery with neck dissection. All margins clear but tumor had PNI-peri neural involvement. They are...
Support Group: Head & Neck Cancer
Last active: Feb 5 7:06am
Anyone dealt with cough after head and neck cancer treatments?
My bf had neck/throat cancer about 8 years ago and had major surgery to his neck, jaw, and back of tongue. He also had radiation...
Support Group: Head & Neck Cancer
Last active: Nov 14, 2022
Has anyone tried Joven therapeutic nutrition powder?
I am now one year after radiation treatment for stage 3 tonsil cancer. I am still struggling with dry mouth, slight irritation, and mucous. My...
Support Group: Head & Neck Cancer
Last active: Nov 1, 2025
Primary Squamous Cell Carcinoma of the Oropharynx and level 11 LN
Last month, I was told by my ENT and confirmed by my oncologist that I have primary SCC of the oropharynx (left tonsil) and secondary...
Support Group: Head & Neck Cancer
Last active: Oct 19, 2025
Anybody that had adenoid cystic carcinoma in sinus cavity?
I had this tumor removed from my right sinus, and then radiation, it's been 2 years. I have such issues with congestion, ear feeling "plugged"...
Support Group: Head & Neck Cancer
Last active: Aug 7, 2023
Blisters in mouth & lips - treatment suggestions?
I am half way through radiation treatment and now have massive number of blisters in my mouth and lips.The blisters are likely down my esophagus...
Support Group: Head & Neck Cancer
Last active: Dec 21, 2025
HPV tonsil, throat cancer spread to lymph node chains & clumped
This has exploded out of the neck and is inoperable. First round of aggressive Chemotherapy was given. Extreme fatigue has resulted while waiting for second...
Support Group: Head & Neck Cancer
Last active: Oct 31, 2025
Hypopharyngeal cancer -management of saliva and mucus at night
My dear friend has been diagnosed with hypo pharyngeal cancer, and is in preparation for chemo radiation. She has been struggling to manage her saliva...
Support Group: Head & Neck Cancer
Last active: Nov 11, 2025
How long before my taste buds recover after H&N treatments?
I have completed 35 treatments of radiation and chemotherapy two weeks ago for squamous cell cancer in my tongue and lymph node. I’m just wondering...
Support Group: Head & Neck Cancer
Last active: Oct 2, 2025
Phlegm and Saliva filling in the mouth after tongue sarcoma
My husband had a sarcoma of the tongue and throat He was diagnosed in 10/20 and has been cured by radiation and immunotherapy. Now his...
Support Group: Head & Neck Cancer
Last active: May 17, 2023