Head & Neck Cancer Support Group

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Comments (585)

Hi diacona. Praying for you to have great result on your Pet scan on Feb 10....

https://connect.mayoclinic.org/comment/1222787/

Discussion: New HPV-16 back of tongue cancer diagnosis and treatment to date

Support Group: Head & Neck Cancer

Posted: Jan 27, 2025

@kamrin I definitely did not enjoy drinking it either. The worse I felt during treatment the...

https://connect.mayoclinic.org/comment/1490656/

Discussion: HPV Tonsil cancer: I'm very nervous about chemo and radiation

Support Group: Head & Neck Cancer

Posted: Jan 25 8:38pm

Hey sorry it took so long I haven’t been on for a while. My taste buds...

https://connect.mayoclinic.org/comment/174539/

Discussion: Meet others living with Head & Neck Cancer: Introduce yourself

Support Group: Head & Neck Cancer

Posted: Aug 27, 2020

Malt powder!!!!! Add malt powder to your magic concoction!!!!! I'm currently undergoing treatment for cancer round...

https://connect.mayoclinic.org/comment/877530/

Discussion: Radiation side effects with H&N cancer. When will they ever end?

Support Group: Head & Neck Cancer

Posted: Jun 13, 2023

@56tburd That was exactly my choice either take the treatment or die. I just think before...

https://connect.mayoclinic.org/comment/1470623/

Discussion: Your tips for recovery after 35 radiation treatments for tonsil cancer

Support Group: Head & Neck Cancer

Posted: Dec 30, 2025

Hello @ louisejewell. I was on Libtayo for 2 years and 4 months for metastatic SCC...

https://connect.mayoclinic.org/comment/1098191/

Discussion: Libtayo (cemiplimab) treatment for SCC...any comments?

Support Group: Melanoma & Skin Cancer

Posted: Jul 2, 2024

Thank you for your encouraging comments. I will listen to your thoughts and ideas. Kudos to...

https://connect.mayoclinic.org/comment/1176491/

Discussion: 9 days after end of treatment, mouth and throat questions

Support Group: Head & Neck Cancer

Posted: Nov 19, 2024

I checked with md Anderson as they were the ones that said acupuncture would help that’s...

https://connect.mayoclinic.org/comment/1010770/

Discussion: Does acupuncture help saliva glands damaged from radiation?

Support Group: Head & Neck Cancer

Posted: Feb 6, 2024

Me too, water is the worst. I need powdered drinks as well. I have noticed that...

https://connect.mayoclinic.org/comment/828387/

Discussion: HPV P16 positive cancer

Support Group: Head & Neck Cancer

Posted: Mar 19, 2023

I can’t taste anything. So my brain doesn’t know what it is and says don’t swallow....

https://connect.mayoclinic.org/comment/1092765/

Discussion: Are there ways to help me swallow better?

Support Group: Head & Neck Cancer

Posted: Jun 23, 2024

Hi Kamrin , No can't taste the blueberries or much of anything else. The texture of...

https://connect.mayoclinic.org/comment/1516941/

Discussion: HPV Tonsil cancer: I'm very nervous about chemo and radiation

Support Group: Head & Neck Cancer

Posted: Mar 1 7:05am

A close relative went through treatment for this at Mayo several years ago and had the...

https://connect.mayoclinic.org/comment/1242638/

Discussion: New HPV-16 back of tongue cancer diagnosis and treatment to date

Support Group: Head & Neck Cancer

Posted: Feb 21, 2025

I'm in Wisconsin, too. But I went to Mayo Rochester. I had no nausea or really...

https://connect.mayoclinic.org/comment/1145097/

Discussion: Checking in again after starting treatment

Support Group: Head & Neck Cancer

Posted: Sep 21, 2024

Hi Thank you for your input. I did not have radiation, but I have had four...

https://connect.mayoclinic.org/comment/948847/

Discussion: Following tongue resection, I have no appetite. Is this normal?

Support Group: Head & Neck Cancer

Posted: Oct 16, 2023

I was diagnosed squamous cell cancer at the base of my tongue. It had spread into...

https://connect.mayoclinic.org/comment/920234/

Discussion: How long before my taste buds recover after H&N treatments?

Support Group: Head & Neck Cancer

Posted: Aug 28, 2023

Hi @doug85254 and welcome. It can take a while for an appetite to come back however...

https://connect.mayoclinic.org/comment/944318/

Discussion: Following tongue resection, I have no appetite. Is this normal?

Support Group: Head & Neck Cancer

Posted: Oct 8, 2023

Well as for me I was dependent upon a feeding tube for nearly a year because...

https://connect.mayoclinic.org/comment/1470412/

Discussion: What foods worked best during chemo & radiation for throat cancer?

Support Group: Head & Neck Cancer

Posted: Dec 29, 2025

I was diagnosed with lymphoma on the base of my tongue and tonsils in October 2023....

https://connect.mayoclinic.org/comment/1067998/

Discussion: Just Diagnosed with Tonsil Cancer - How to Treat?

Support Group: Head & Neck Cancer

Posted: May 14, 2024

I lost my taste buds for approximately 11 months but I gained them back in percentages....

https://connect.mayoclinic.org/comment/1026343/

Discussion: Stage 1 Tongue cancer: What are the chances of recurrence?

Support Group: Head & Neck Cancer

Posted: Mar 2, 2024

@johnschaar You should be on that cusp of returning to some normalization when it comes to...

https://connect.mayoclinic.org/comment/1415406/

Discussion: HPV Tonsil cancer: I'm very nervous about chemo and radiation

Support Group: Head & Neck Cancer

Posted: Oct 14, 2025

Cancer: Managing Symptoms

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Ear, Nose & Throat (ENT)

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Visiting Mayo Clinic

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