Head & Neck Cancer Support Group

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Comments (991)

Jody, Did you mention awhile back that you were looking for the name of the device...

https://connect.mayoclinic.org/comment/1367204/

Discussion: Always something!

Support Group: Head & Neck Cancer

Posted: Aug 9, 2025

Voice changes, trouble swallowing, breathing difficulties but if you are experiencing voice changes best to have...

https://connect.mayoclinic.org/comment/1362573/

Discussion: Neck cancer

Support Group: Head & Neck Cancer

Posted: Aug 3, 2025

Hi Jane! I was diagnosed in 2014 and was also referred for a total laryngectomy, at...

https://connect.mayoclinic.org/comment/1359603/

Discussion: Cricoid (laryngeal) Chondrosarcoma: Anyone else?

Support Group: Head & Neck Cancer

Posted: Jul 29, 2025

I have always asked the medical team prior to any surgical/ medical procedure to be allowed...

https://connect.mayoclinic.org/comment/1337087/

Discussion: How to get thru colonoscopy with severe dry mouth

Support Group: Head & Neck Cancer

Posted: Jun 28, 2025

The OT who does my Myo treatment is on staff at Mayo at the Cancer Center...

https://connect.mayoclinic.org/comment/1327144/

Discussion: Myofascial Release Therapy for longterm effects of cancer treatment

Support Group: Head & Neck Cancer

Posted: Jun 14, 2025

Hi JG, I've been toughing it out since 06, and many of the suggestions here I...

https://connect.mayoclinic.org/comment/1324760/

Discussion: How do I know when I can get off my feeding tube?

Support Group: Head & Neck Cancer

Posted: Jun 11, 2025

I was in the same boat and one day I just made my mind up that...

https://connect.mayoclinic.org/comment/1324044/

Discussion: How do I know when I can get off my feeding tube?

Support Group: Head & Neck Cancer

Posted: Jun 10, 2025

I forgot to add....hot, not iced tea and coffee. I'm a decaf person but either one,...

https://connect.mayoclinic.org/comment/1323569/

Discussion: How do I know when I can get off my feeding tube?

Support Group: Head & Neck Cancer

Posted: Jun 9, 2025

kudos ... hear you! I totally believe in quality of life to quantity - since my...

https://connect.mayoclinic.org/comment/1312662/

Discussion: 15 years after parotid cancer

Support Group: Head & Neck Cancer

Posted: May 25, 2025

@pampou : Thank you for sharing the details of all you have been through. When I...

https://connect.mayoclinic.org/comment/1312576/

Discussion: 15 years after parotid cancer

Support Group: Head & Neck Cancer

Posted: May 25, 2025

From what I had goggled - "... severe neck fibrosis can lead to dysphagia (difficulty swallowing)...

https://connect.mayoclinic.org/comment/1307682/

Discussion: Relief from Radiation Fibrosis Syndrome

Support Group: Head & Neck Cancer

Posted: May 19, 2025

Hello @bupster and welcome to Connect. I had 7 weeks of radiation and a targeted therapy...

https://connect.mayoclinic.org/comment/1294223/

Discussion: What is the survival rate for 65 yr Male w/ squamous cell carcinoma

Support Group: Head & Neck Cancer

Posted: May 1, 2025

Hey Virginia, I was on feeding tube for nearly a year. I could barely get small...

https://connect.mayoclinic.org/comment/1246412/

Discussion: How long after radiation would you see teeth issues?

Support Group: Head & Neck Cancer

Posted: Feb 27, 2025

ohhhh how painful for you. how about asking your pain team for this :Oral lidocaine, often...

https://connect.mayoclinic.org/comment/1238613/

Discussion: How do I go through 6 weeks radiation and chemotherapy, alone?

Support Group: Thyroid Cancer

Posted: Feb 16, 2025

Razor blades is an apt description. My throat/swallowing pain got progressively worse during 6 weeks of...

https://connect.mayoclinic.org/comment/1228837/

Discussion: Swallowing feels like razor blades

Support Group: Head & Neck Cancer

Posted: Feb 3, 2025

At age 39, I was officially Stage IVB T2N3M0 tonsil cancer on my left side caused...

https://connect.mayoclinic.org/comment/1226981/

Discussion: Primary Squamous Cell Carcinoma of the Oropharynx and level 11 LN

Support Group: Head & Neck Cancer

Posted: Feb 1, 2025

Week 6 5 radiation treatments Cisplatin chemotherapy session cancelled; blood platelet count, white blood cell count,...

https://connect.mayoclinic.org/comment/1211589/

Discussion: New HPV-16 back of tongue cancer diagnosis and treatment to date

Support Group: Head & Neck Cancer

Posted: Jan 14, 2025

Welcome to the group that nobody ever wants to join. Lots of great folks on here...

https://connect.mayoclinic.org/comment/1194744/

Discussion: Newly diagnosed and scared: How did you cope?

Support Group: Head & Neck Cancer

Posted: Dec 21, 2024

Nasopharyngeal and lymph node Mets. 20 yrs out from radiation/chemo. Now at 68 yrs old battling...

https://connect.mayoclinic.org/comment/1185604/

Discussion: What is the probability of reccurrence with T1N1 tonsil cancer?

Support Group: Head & Neck Cancer

Posted: Dec 6, 2024

Hi ljones98280. I'm not sure anyone will be able to communicate a probability of recurrence. As...

https://connect.mayoclinic.org/comment/1184747/

Discussion: What is the probability of reccurrence with T1N1 tonsil cancer?

Support Group: Head & Neck Cancer

Posted: Dec 5, 2024

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