Head & Neck Cancer Support Group

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Comments (130)

So interesting, thanks for sharing. December 28, 2021, I had adenoid cystic carcinoma in my right...

https://connect.mayoclinic.org/comment/908934/

Discussion: Mandible Reconstruction with Fibula Free Flap. Is this an option?

Support Group: Head & Neck Cancer

Posted: Aug 7, 2023

@pauley I have good news! I had a alt flap from my thigh to the roof...

https://connect.mayoclinic.org/comment/1426632/

Discussion: Leg hair growing in my mouth after mandible flap reconstruction.

Support Group: Head & Neck Cancer

Posted: Oct 30, 2025

Hi @ggg80206 I didn't get a chance to welcome you to our group. I see you...

https://connect.mayoclinic.org/comment/1227970/

Discussion: Primary Squamous Cell Carcinoma of the Oropharynx and level 11 LN

Support Group: Head & Neck Cancer

Posted: Feb 2, 2025

I got prosthetic teeth for the lower left after my mandiblectomy. I did not have tongue...

https://connect.mayoclinic.org/comment/956472/

Discussion: Radiation side effects with H&N cancer. When will they ever end?

Support Group: Head & Neck Cancer

Posted: Oct 30, 2023

Sounds like everything I have gone through. Thank God for mayo. No one in my area...

https://connect.mayoclinic.org/comment/978500/

Discussion: Radiation side effects with H&N cancer. When will they ever end?

Support Group: Head & Neck Cancer

Posted: Dec 11, 2023

Hello mikecarroll1937. It took me a good year to be able to talk again after radiation...

https://connect.mayoclinic.org/comment/1147927/

Discussion: Anyone have difficulty with speech (forming words) after radiation?

Support Group: Head & Neck Cancer

Posted: Sep 27, 2024

I do hope your decision to bypass radiation therapy has worked out for you. Radiation therapy...

https://connect.mayoclinic.org/comment/1169655/

Discussion: Throat Radiation After-Effects, Aspiration & Suffocating Mucous

Support Group: Head & Neck Cancer

Posted: Nov 7, 2024

Has anyone recommended for him to go to physical therapy, from what I have read up...

https://connect.mayoclinic.org/comment/1118109/

Discussion: Nerve damage and unable to open mouth much. Stiff jaw.

Support Group: Head & Neck Cancer

Posted: Aug 5, 2024

@jen75, I have written extensively about my experiences undergoing radiation for cancer of the Pyriform Sinus....

https://connect.mayoclinic.org/comment/842931/

Discussion: How long after radiation did it take to get your voice back?

Support Group: Head & Neck Cancer

Posted: Apr 14, 2023

Hello @preyn. I am a 64-year-old-woman, diagnosed with Pyriform Sinus cancer in 2018. If you go...

https://connect.mayoclinic.org/comment/907365/

Discussion: Diagnosed with 5 mm tumor in pyriform sinus

Support Group: Head & Neck Cancer

Posted: Aug 4, 2023

Thanks Al! I am feeling much better now, the painful neck and ear has subsided so...

https://connect.mayoclinic.org/comment/1368130/

Discussion: Always something!

Support Group: Head & Neck Cancer

Posted: Aug 11, 2025

My husband had a sinus cancer last year, on Cisplatin & radiation, same issues. Senna is...

https://connect.mayoclinic.org/comment/1342889/

Discussion: Radiation & cisplatin

Support Group: Head & Neck Cancer

Posted: Jul 7, 2025

William, glad to hear it has been years since having cancer. I had cancer in my...

https://connect.mayoclinic.org/comment/1189397/

Discussion: Anyone had surgery (TORS) with no radiation or chemo after?

Support Group: Head & Neck Cancer

Posted: Dec 12, 2024

Well tonight will be my 4th dose of Flonase and Claritin and about 8-9 sinus flushes...

https://connect.mayoclinic.org/comment/1366506/

Discussion: Always something!

Support Group: Head & Neck Cancer

Posted: Aug 8, 2025

We are in Central Florida. Luckily, there is a specialist in St. Pete who was recommended...

https://connect.mayoclinic.org/comment/1208377/

Discussion: HPV Tonsil cancer: I'm very nervous about chemo and radiation

Support Group: Head & Neck Cancer

Posted: Jan 10, 2025

Thank you to all who contributed to this article. I am presently going to be scheduled...

https://connect.mayoclinic.org/comment/1009807/

Discussion: What is your quality of life after a partial maxillectomy?

Support Group: Head & Neck Cancer

Posted: Feb 5, 2024

Hello @phylissg, Knowing nothing about your situation, I can only relate my own experience. For approximately...

https://connect.mayoclinic.org/comment/1104723/

Discussion: Preventing pneumonia

Support Group: Head & Neck Cancer

Posted: Jul 13, 2024

Hello all, I have been diagnosed with adenoid cystic carcinoma of the minor salivary gland. It...

https://connect.mayoclinic.org/comment/1276861/

Discussion: Meet others living with Head & Neck Cancer: Introduce yourself

Support Group: Head & Neck Cancer

Posted: Apr 8, 2025

Hello kth. I had radiation for cancer of the Pyriform Sinus, which is located down by...

https://connect.mayoclinic.org/comment/1071344/

Discussion: Seeking advice for eating challenges

Support Group: Head & Neck Cancer

Posted: May 20, 2024

@tiatia11, after many false diagnoses (even after a CT scan and many scopes) the third-opinion ENT...

https://connect.mayoclinic.org/comment/770579/

Discussion: Diagnosed with 5 mm tumor in pyriform sinus

Support Group: Head & Neck Cancer

Posted: Nov 8, 2022