Head & Neck Cancer Support Group

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Comments (693)

Welcome to the group that nobody ever wants to join. Lots of great folks on here...

https://connect.mayoclinic.org/comment/1194744/

Discussion: Newly diagnosed and scared: How did you cope?

Support Group: Head & Neck Cancer

Posted: Dec 21, 2024

Nasopharyngeal and lymph node Mets. 20 yrs out from radiation/chemo. Now at 68 yrs old battling...

https://connect.mayoclinic.org/comment/1185604/

Discussion: What is the probability of reccurrence with T1N1 tonsil cancer?

Support Group: Head & Neck Cancer

Posted: Dec 6, 2024

Hi ljones98280. I'm not sure anyone will be able to communicate a probability of recurrence. As...

https://connect.mayoclinic.org/comment/1184747/

Discussion: What is the probability of reccurrence with T1N1 tonsil cancer?

Support Group: Head & Neck Cancer

Posted: Dec 5, 2024

What kind of treatments did you have? I had scc of nasal mucosa. It ate part...

https://connect.mayoclinic.org/comment/1183020/

Discussion: What’s left after "cured" of nasopharyngeal cancer?

Support Group: Head & Neck Cancer

Posted: Dec 2, 2024

Sorry to read about everyones swallowing issues health problems. My wife had a radical neck dissection...

https://connect.mayoclinic.org/comment/1179113/

Discussion: Difficulty swallowing liquids

Support Group: Head & Neck Cancer

Posted: Nov 24, 2024

William, thanks so much. At my age would be happy to go on as it is....

https://connect.mayoclinic.org/comment/1170062/

Discussion: Dentures plus implants after radiation

Support Group: Head & Neck Cancer

Posted: Nov 8, 2024

hi josk, lilyann here. my goodness, thank you for telling us about your journey. i am...

https://connect.mayoclinic.org/comment/1164804/

Discussion: What’s left after "cured" of nasopharyngeal cancer?

Support Group: Head & Neck Cancer

Posted: Oct 29, 2024

Week 6 5 radiation treatments Cisplatin chemotherapy session cancelled; blood platelet count, white blood cell count,...

https://connect.mayoclinic.org/comment/1211589/

Discussion: New HPV-16 back of tongue cancer diagnosis and treatment to date

Support Group: Head & Neck Cancer

Posted: Jan 14 6:48pm

At age 39, I was officially Stage IVB T2N3M0 tonsil cancer on my left side caused...

https://connect.mayoclinic.org/comment/1226981/

Discussion: Primary Squamous Cell Carcinoma of the Oropharynx and level 11 LN

Support Group: Head & Neck Cancer

Posted: Feb 1 12:37pm

Biotene line of products for dry mouth. Spray is effective for me, especially epiglottis/swallowing. Xylimelts also...

https://connect.mayoclinic.org/comment/1077637/

Discussion: Dry Mouth. Particularly at night. Solutions?

Support Group: Head & Neck Cancer

Posted: May 30, 2024

@phyllisg you and your husband are right to be concerned. Please ask about therapy for swallowing...

https://connect.mayoclinic.org/comment/1130324/

Discussion: Inability to swallow timeframe: Can one relearn to swallow?

Support Group: Head & Neck Cancer

Posted: Aug 25, 2024

@josk this is a perfect example of us not using muscles and they atrophy from lack...

https://connect.mayoclinic.org/comment/1130308/

Discussion: Inability to swallow timeframe: Can one relearn to swallow?

Support Group: Head & Neck Cancer

Posted: Aug 25, 2024

It’s helpful to hear I’m not alone with swallowing issues. Mine came 14yrs after breast radiation...

https://connect.mayoclinic.org/comment/1130006/

Discussion: Inability to swallow timeframe: Can one relearn to swallow?

Support Group: Head & Neck Cancer

Posted: Aug 24, 2024

I’ve been fighting that for nearly 8 years. Speech therapy was a waste of time and...

https://connect.mayoclinic.org/comment/1128431/

Discussion: Nerve damage and unable to open mouth much. Stiff jaw.

Support Group: Head & Neck Cancer

Posted: Aug 22, 2024

I also have fibrosis affecting my carotid arteries and swallowing. I have regular NIVA ultrasound studies....

https://connect.mayoclinic.org/comment/1113093/

Discussion: Looking for help with radiation fibrosis; Tips?

Support Group: Head & Neck Cancer

Posted: Jul 28, 2024

Hello @robolobo. What are your symptoms? Do you have trouble swallowing, pain or changes in speech?...

https://connect.mayoclinic.org/comment/1113060/

Discussion: Saying hello and a question or two or three

Support Group: Head & Neck Cancer

Posted: Jul 28, 2024

Pain has definitely increased and more trouble swallowing day 4-5. 2 tramadol every 4 hours. Barely...

https://connect.mayoclinic.org/comment/1105930/

Discussion: Getting Transoral robotic surgery (TORS): What can I expect?

Support Group: Head & Neck Cancer

Posted: Jul 15, 2024

Swallowing requires the use of roughly fifty separate muscles and the communication and reflex between all...

https://connect.mayoclinic.org/comment/1067436/

Discussion: Oral Cancer, surgery done..waiting for further treatment

Support Group: Head & Neck Cancer

Posted: May 13, 2024

Hi Sue Thanks for your feedback - and yes, my doctor is aware of my severe...

https://connect.mayoclinic.org/comment/1060713/

Discussion: Nerve damage

Support Group: Head & Neck Cancer

Posted: May 2, 2024

I had similar damage from radiation. My treatments completed May 5th, 2023. At my 1st follow-up...

https://connect.mayoclinic.org/comment/997525/

Discussion: Getting frustrated with throat pain post radiation

Support Group: Head & Neck Cancer

Posted: Jan 15, 2024

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