Head & Neck Cancer Support Group

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Comments (2,948)

@gratefuldad, any update? Did you decide to start radiation therapy or did you find a clinical...

https://connect.mayoclinic.org/comment/1275007/

Discussion: Seeking alternatives to Radiation post-TORS tonsillectomy

Support Group: Head & Neck Cancer

Posted: Apr 5, 2025

No cognitive impairment before the cancer. He has radiation 5 days a week. 19 down, 16...

https://connect.mayoclinic.org/comment/1083854/

Discussion: Anyone notice cognitive impairment with throat cancer or treatment?

Support Group: Head & Neck Cancer

Posted: Jun 9, 2024

No surgery. He underwent 35 rounds of radiation. Because of his age, cisplatin (chemo) was not...

https://connect.mayoclinic.org/comment/788432/

Discussion: Tongue Cancer: What are my treatment options?

Support Group: Head & Neck Cancer

Posted: Dec 24, 2022

Hi @winter23, I can imagine that you are worried and terrified for your daughter. I'm tagging...

https://connect.mayoclinic.org/comment/800452/

Discussion: Synovial sarcoma: Proton or conventional radiation after surgery?

Support Group: Sarcoma

Posted: Jan 22, 2023

Chamst, HPV infections are not uncommon. So it is entirely possible for both your mom and...

https://connect.mayoclinic.org/comment/596777/

Discussion: HPV P16 positive cancer

Support Group: Head & Neck Cancer

Posted: Apr 24, 2021

William, thanks so much. At my age would be happy to go on as it is....

https://connect.mayoclinic.org/comment/1170062/

Discussion: Dentures plus implants after radiation

Support Group: Head & Neck Cancer

Posted: Nov 8, 2024

@woodsy1 Hi. I’m currently in this study as well. This study is designed for a very...

https://connect.mayoclinic.org/comment/1482700/

Discussion: How to fight cisplatin side effects like nausea & fatigue?

Support Group: Head & Neck Cancer

Posted: Jan 15 5:04am

Hi Thank you for reaching out! I’m actually meeting with Mayo tomorrow in Rochester and will...

https://connect.mayoclinic.org/comment/994468/

Discussion: Meet others living with Head & Neck Cancer: Introduce yourself

Support Group: Head & Neck Cancer

Posted: Jan 9, 2024

@roblem Thank you for the info. I quit after 29 rounds of radiation and 3 cisplatin....

https://connect.mayoclinic.org/comment/1470291/

Discussion: HPV Tonsil cancer: I'm very nervous about chemo and radiation

Support Group: Head & Neck Cancer

Posted: Dec 29, 2025

Hi sharonlee I try to maintain a bi-wkly session for myofascial therapy, and a daily 10-15...

https://connect.mayoclinic.org/comment/1340323/

Discussion: Anyone dealing with long-term dysphagia and chronic cough?

Support Group: Head & Neck Cancer

Posted: Jul 3, 2025

Mouth cancer, had surgery snd 30 rounds of radiation. Trismos stomach tube feeding. All painful

https://connect.mayoclinic.org/comment/1444004/

Discussion: Meet others living with Head & Neck Cancer: Introduce yourself

Support Group: Head & Neck Cancer

Posted: Nov 21, 2025

Actually when it came to bloodwork, the radiation bruised my thyroid which resulted in a thyroid...

https://connect.mayoclinic.org/comment/1079380/

Discussion: Lymphoepithelial Carcinoma Right Parotid + Accessory Parotid Gland

Support Group: Head & Neck Cancer

Posted: Jun 2, 2024

Thanks so much for commenting. We recently saw the radiation oncologist and he will be referring...

https://connect.mayoclinic.org/comment/993106/

Discussion: Permanent loss of smell after surgery. Food suggestions?

Support Group: Head & Neck Cancer

Posted: Jan 7, 2024

Welcome new members @sammy15 @kdjoch and @agelessspirit. I think you might also be interested in these...

https://connect.mayoclinic.org/comment/619715/

Discussion: Meet others living with Head & Neck Cancer: Introduce yourself

Support Group: Head & Neck Cancer

Posted: Jul 25, 2021

Tonsil and tongue were both negative for cancer cells. A month later I had a neck...

https://connect.mayoclinic.org/comment/1429463/

Discussion: Negative NavDx Pre Treatment HPV16 Squamous Cell Cervical Lymph Node

Support Group: Head & Neck Cancer

Posted: Nov 2, 2025

Hello @pherlocher and welcome to the Head and Neck group. I myself had a bit of...

https://connect.mayoclinic.org/comment/1113947/

Discussion: Looking for help with radiation fibrosis; Tips?

Support Group: Head & Neck Cancer

Posted: Jul 29, 2024

I had TORS surgery April 2023 to remove base of tongue tumor ( negative margins during...

https://connect.mayoclinic.org/comment/1106481/

Discussion: Anyone had surgery (TORS) with no radiation or chemo after?

Support Group: Head & Neck Cancer

Posted: Jul 16, 2024

Hello @alexandra24 and welcome to Head and Neck Connect. Also sorry that you need to be...

https://connect.mayoclinic.org/comment/1276921/

Discussion: Meet others living with Head & Neck Cancer: Introduce yourself

Support Group: Head & Neck Cancer

Posted: Apr 8, 2025

Hello @jjansencg. I think there may be a small error in your question as usually photon...

https://connect.mayoclinic.org/comment/1425132/

Discussion: Proton versus photon radiation

Support Group: Head & Neck Cancer

Posted: Oct 28, 2025

I vote for Proton all the way. Yes people travel a long way for it. I...

https://connect.mayoclinic.org/comment/1529678/

Discussion: Proton versus Photon for HPV tonsil cancer

Support Group: Head & Neck Cancer

Posted: Mar 18 8:45am