Head & Neck Cancer Support Group | Mayo Clinic Connect

Support Group: Head & Neck Cancer

Posted: Mar 10 11:41am

I hope this follow up finds everyone doing well. I completed my dart 2.0 trial for...

https://connect.mayoclinic.org/comment/1539619/

Discussion: Cancer Free After Radiation and Chemo DART 2.0 Trial

Support Group: Head & Neck Cancer

Posted: Mar 31 11:55am

@dragonfire Wonderful news,so happy for you. It must be a great feeling to get a clear...

https://connect.mayoclinic.org/comment/1504119/

Discussion: Your tips for recovery after 35 radiation treatments for tonsil cancer

Support Group: Head & Neck Cancer

Posted: Feb 12 1:25pm

@dragonfire PET scan all clear is great news. I would say being at 50% taste at...

https://connect.mayoclinic.org/comment/1523297/

Discussion: Your tips for recovery after 35 radiation treatments for tonsil cancer

Support Group: Head & Neck Cancer

Posted: Mar 9 1:09pm

@lizzyj58 15 weeks post radiation and taste still very limited. PET scan is today will know...

https://connect.mayoclinic.org/comment/1487856/

Discussion: Your tips for recovery after 35 radiation treatments for tonsil cancer

Support Group: Head & Neck Cancer

Posted: Jan 21 8:14am

@Colleen, Xmelts have helped alot at night alongside my humidifier. I cannot really taste much except...

https://connect.mayoclinic.org/comment/1520265/

Discussion: How to deal with nausea, eating and phlegm?

Support Group: Head & Neck Cancer

Posted: Mar 5 11:14am

@woodsy1 You're tasting more than I did at 2 week post radiation. I'm 6 months and...

https://connect.mayoclinic.org/comment/1517106/

Discussion: HPV Tonsil cancer: I'm very nervous about chemo and radiation

Support Group: Head & Neck Cancer

Posted: Mar 1 10:13am

@dragonfire Same situation here,he finished his treatments Dec 31st. Some days he can taste savory for...

https://connect.mayoclinic.org/comment/1488207/

Discussion: Your tips for recovery after 35 radiation treatments for tonsil cancer

Support Group: Head & Neck Cancer

Posted: Jan 21 2:15pm

@dragonfire The good news is my PET scan was clear. My oncologist and ENT both say...

https://connect.mayoclinic.org/comment/1523159/

Discussion: Your tips for recovery after 35 radiation treatments for tonsil cancer

Support Group: Head & Neck Cancer

Posted: Mar 9 10:25am

MSK do a specific pet scan at the 2 week stage for head and neck cancer....

https://connect.mayoclinic.org/comment/1531827/

Discussion: Proton versus Photon for HPV tonsil cancer

Support Group: Head & Neck Cancer

Posted: Mar 21 6:11am

My husband went through this last year. About 4 month after treatment ended, his taste was...

https://connect.mayoclinic.org/comment/756196/

Discussion: How long before my taste buds recover after H&N treatments?

Support Group: Head & Neck Cancer

Posted: Oct 2, 2022

Hi, my husband had radiation & chemo for tonsil p16+. He finished treatment almost 9 months...

https://connect.mayoclinic.org/comment/1067242/

Discussion: How long before my taste buds recover after H&N treatments?

Support Group: Head & Neck Cancer

Posted: May 13, 2024

@lizzyj58 I think this is an individual thing. In my case the saliva glands were effected...

https://connect.mayoclinic.org/comment/1489436/

Discussion: Your tips for recovery after 35 radiation treatments for tonsil cancer

Support Group: Head & Neck Cancer

Posted: Jan 23 11:54am

How long did you have metallic taste? I have had initially metallic taste….now more bitter taste...

https://connect.mayoclinic.org/comment/1018987/

Discussion: Strange taste - change in taste

Support Group: Head & Neck Cancer

Posted: Feb 20, 2024

@hrhwilliam Hopefully not years for taste since I do not have that many left at my...

https://connect.mayoclinic.org/comment/1504857/

Discussion: Your tips for recovery after 35 radiation treatments for tonsil cancer

Support Group: Head & Neck Cancer

Posted: Feb 13 12:07pm

At 3 months I was at about 25% taste. 6 months to get to 50% taste....

https://connect.mayoclinic.org/comment/1213561/

Discussion: Diagnosed with squamous cell carcinoma of the epiglottis: Anyone?

Support Group: Head & Neck Cancer

Posted: Jan 15, 2025

Hi @naznaz, "forcing" yourself to do something doesn't sound like a healthy approach to me. I...

https://connect.mayoclinic.org/comment/924963/

Discussion: How long before my taste buds recover after H&N treatments?

Support Group: Head & Neck Cancer

Posted: Sep 5, 2023

@hopeblos my husband still has his feeding tube after completing chem and radiation in Dec. He...

https://connect.mayoclinic.org/comment/1545618/

Discussion: HPV 16 neck cancer journey…

Support Group: Head & Neck Cancer

Posted: Apr 8 10:22am

@bjh369- I hear you. How did your CT scan of January 17th go? Have you found...

https://connect.mayoclinic.org/comment/232827/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Jan 13, 2019

@lizzyj58 I can taste baloney, pickles, mustard the best. My next step will be back to...

https://connect.mayoclinic.org/comment/1470103/

Discussion: Your tips for recovery after 35 radiation treatments for tonsil cancer

Support Group: Head & Neck Cancer

Posted: Dec 29, 2025