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Esophageal Cancer Support Group

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Discussions (130)
Mom 57 Diagnosed with Stage 3 Adenocarcinoma - Looking for experiences
Hi, Mom, 57 was diagnosed with Stage 3(T3 N0 M0, HER2+) in GE junction, back in April. Treatment completed 7/10: - FLOT (Oxaliplatin and 5FU)...
Support Group: Esophageal Cancer
Last active: Jan 3 4:57am
Recently diagnosed with Esophageal Cancer SCC.
I was just diagnosed 8/20 with Esophageal Cancer SCC. I am headed to Mayo 9/17. It is a very large tumor, 8.5cm in the lower...
Support Group: Esophageal Cancer
Last active: Sep 26, 2024
Post surgical pain. Any suggestions
I was diagnosed with stage 4 esophageal cancer in 2019. I went through chemo and radiation and the team decided surgery could be an option....
Support Group: Esophageal Cancer
Last active: Nov 28, 2025
Newly Diagnosed with Esophageal SCC – What to Expect Next?
Hi everyone, I was diagnosed with squamous cell carcinoma of the lower esophagus on October 10, 2025. My CT scan showed no other growths outside...
Support Group: Esophageal Cancer
Last active: Nov 9, 2025
What Does Everyone Have For Pain Medication?
My husband is two months out from chemo/radiation treatment for stage 3 esophageal cancer. There is lymph node involvement (2), but the oncologist said he'd...
Support Group: Esophageal Cancer
Last active: Nov 13, 2023
Esophageal adenocarcinoma with brain metastasis
My husband’s stage 4 esophageal cancer responded very well to FOLFOX with keytruda and trazimera. PET scan revealed no evidence of cancer. Fast forward to...
Support Group: Esophageal Cancer
Last active: Jan 7, 2024
Share experience at Mayo (Rochester)? MD Anderson anyone?
I just celebrated one year cancer free for breast cancer and was diagnosed with Esophageal Cancer on 10/4/2024. I had a wonderful experience at Mayo...
Support Group: Esophageal Cancer
Last active: Oct 26, 2024
Living life after treatment and surgery for Esophageal Cancer.
In December of 2020 I was diagnosed with stage 3 Esophageal Cancer. After chemo and radiation in February and March of 2021, I had surgery...
Support Group: Esophageal Cancer
Last active: Apr 9 1:57pm
Eating Problems 6 years post esophagectomy
After a stage 4 esophageal cancer diagnosis, followed by chemo, radiation, and surgery I am 6 years cancer free. I am unable to eat normally,...
Support Group: Esophageal Cancer
Last active: Apr 16, 2025
Looking for info regarding esophageal cancer mets to lungs stories?
I started with SCC Oesophageal Cancer Nov 22. Radiation & chemo Jan & Feb. Sadly I’ve been informed I have a couple of small tumours...
Support Group: Esophageal Cancer
Last active: Oct 3, 2023
Are you still feeling a burning mouth and tongue after a few months?
4 months after radiation and low dose chemo my mouth and tongue still burn and feels like a mouthfull of hot peppers whenever I try...
Support Group: Esophageal Cancer
Last active: Apr 11, 2023
Wait and watch versus Trastuzumab + Pertuzumab + Keytruda?
Hi. I am on dialysis (28 years) having Chronic Liver Disease as well for about 19 years. Well to moderately differentiated adenocarcinoma in the GE...
Support Group: Esophageal Cancer
Last active: Jul 16, 2025
What was your experience immediately following RT/chemo?
My husband Jeff completed 6 weeks of RT/chemo on Friday. He was told the first few weeks could be the most difficult of all and...
Support Group: Esophageal Cancer
Last active: Apr 10, 2025
Asking for pre-op and first trip travel questions/tips.
My brother was diagnosed with EC in Feb. 2023 (T3 N1). He has been through 5 chemo and 27 radiation treatments. We live in NM...
Support Group: Esophageal Cancer
Last active: Aug 23, 2023
Just need to vent
After going through trouble swallowing back in 2022 I was diagnosed with stage 3 esophageal adenocarcinoma. Went through FLOT all pre-surgery and while it sucked...
Support Group: Esophageal Cancer
Last active: May 25 7:41pm
Chemo every two weeks for the rest of my life?!?
Hi, I got a Stage 4 squamous cell esophageal cancer diagnosis on October 2. The tumor is near my stomach and cannot be removed surgically,...
Support Group: Esophageal Cancer
Last active: Mar 24 10:40am
Phlegm after esophogectomy
My husband had chemo and radiation treatment followed by esophogectomy. Through this process he lost 88 lbs. his surgery was March 21, 2024. He now...
Support Group: Esophageal Cancer
Last active: Sep 3, 2024
Esophageal adenocarcinoma signet ring cell
Are there any esophageal adenocarcinoma signet ring cell survivors here? My husband was diagnosed Dec '23 as stage 3. He completed 6 rounds of carboplatin/paclitaxel...
Support Group: Esophageal Cancer
Last active: Jul 9, 2025
Rough start to Chemo Regimen
Age 78 w/Stage 3 diagnosis resulted in 5-wk Chemo + Radiation treatment regimen, specifically Monday C+R, Tues - Fri R only. Yesterday was Day 1...
Support Group: Esophageal Cancer
Last active: Apr 15, 2025
Esophageal Cancer: Surgery Or Not?
I just completed my 8 Chemo and 28 radiation treatments with a follow up Pet Scan. My wife and I were excited with the images...
Support Group: Esophageal Cancer
Last active: Sep 5, 2025