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Breast Cancer Support Group

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Discussions (65)
Aromatase Inhibitors: How to choose and manage side effects?
I was diagnosed in April 2024 stage 1 invasive ductal carcinoma - estrogen positive. I had lumpectomy and radiation my onco score was 12 so...
Support Group: Breast Cancer
Last active: Apr 6 12:04pm
How do you find the anti-estrogen therapy that's right for you?
I have been on Anastrozole for four weeks. I have brain fog, joint pain and extreme fatigue. My Doctor wants to switch me to Exemestane.I...
Support Group: Breast Cancer
Last active: May 13, 2022
Anyone on AI back of knee pain, leg collapse?
I was on Anastrozole for six months but it gave me too many side effects. Took a month break and have been on Letrozole for...
Support Group: Breast Cancer
Last active: Aug 11, 2024
Advice on Exemestane
I've been prescribed Exemestane after severe jaw pain from Anastrozole. The listed side effects of both drugs are terrifying to me. Even more terrifying after...
Support Group: Breast Cancer
Last active: Apr 21 7:47am
Anastrozole and osteoporosis
I am 72, and after a suspicious area was found on my annual mammogram this spring I ended up getting a biopsy, then a partial...
Support Group: Breast Cancer
Last active: Jul 16, 2025
Neuropathy after surgery/radiation but before anastrozole
I've seen many posts about neuropathy as a side effect of AIs, however, my foot pain (burning sensation) started about 4 months after I completed...
Support Group: Breast Cancer
Last active: May 5, 2025
Why are dosages for estrogen suppression drugs one-size-fits-all?
Why is the dosage for Anastrozole (and any other AI) the same for everyone no matter your weight or size? Does this-one size-fits-all approach have...
Support Group: Breast Cancer
Last active: Apr 19 1:45pm
Anyone switch from Aromatase inhibitors to Tamoxifen?
I have tried anastrozle, letrozole and Emestane with terrible side effects (joint pain/damage, teeth pain extreme dry mouth, vaginal and uniary pain...)Now possibly Tamoxifen but...
Support Group: Breast Cancer
Last active: 1 day ago
What experiences have you had taking Xgeva for MBC in the bones?
My oncologist is wanting to start me on Xgeva to help strengthen my bones following a diagnosis of MBC in my bones. I am currently...
Support Group: Breast Cancer
Last active: Apr 7, 2024
Exemestane and Anastrozole
Diagnosed with Her2 triple+ September 2019. After chemo and radiation, took Anastrozole for 1 1/2 months, experienced diarrhea then after 3 week rest began Exemestane...
Support Group: Breast Cancer
Last active: Dec 22, 2024
Pros and cons of endocrine therapy
My stage 1 breast tumor’s ER positivity was retested and this time it came up 60% positive vs 1-10% positive during the CNB. My oncologist...
Support Group: Breast Cancer
Last active: Dec 27, 2024
Do cognitive abilities return after stopping aromatase inhibitors?
I was taking anastrozole and I had severe short-term memory issues. I also had cognitive issues. And I was generally confused to the point I...
Support Group: Breast Cancer
Last active: Oct 12, 2025
Anastrozole and bladder pain
I have been on Anastrozole for 3 years and bladder pain has become my top issue. Feels like a UTI, but when I have my...
Support Group: Breast Cancer
Last active: Nov 22, 2025
Anastrozole vs Letrozole vs Tamoxifen
Over two years out from initial Stage1 diagnosis. Lumpectomy followed by radiation, then began taking anastrozole for about 6-7 months. Side effects, mostly bone pain...
Support Group: Breast Cancer
Last active: Aug 27, 2022
Taking testosterone to help with aromatase inhibitors
I have tried only one AI, anastrozole, and could only take the side effects for 10 days. I’m about to try Letrozole next week. I’m...
Support Group: Breast Cancer
Last active: Oct 26, 2025
Dealing with heart issues and aromatase inhibitors and surgery
Has anyone developed heart issues after taking anastrozle, letrozole or emestane (I was not able to tolerate any of the 3 due to side effects)?...
Support Group: Breast Cancer
Last active: Feb 22 7:09am
Anyone taking cyclin-dependent kinase (CDK) 4/6 inhibitors?
I am a very active 72 and have been in very good health (other than osteoporosis) until the diagnose of stage III ICL end of...
Support Group: Breast Cancer
Last active: Jun 20, 2025
What helped you make treatment decisions following DCIS lumpectomy?
I had a stage 0 grade 1 low grade. Decided against radiation. Little difference between reoccurence percentages. Spoke to oncologist today about hormone treatment. I...
Support Group: Breast Cancer
Last active: Mar 18, 2024
Cognitive impairment, forgetfulness with hormone blockers
I was diagnosed with breast cancer stage 2A last year. I had surgery to remove the tumor, and followed by radiation. Thankfully I was spared...
Support Group: Breast Cancer
Last active: Apr 4, 2019
Allergic Reaction to Afinitor
Hello, I started on Afintor and Exemastane on January 24 after 19 months on Kisqali and Anastrozole which unfortunately stopped working. I was working through...
Support Group: Breast Cancer
Last active: Oct 27, 2023