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Discussions (33)
Anyone had Atypical Lobular Hyperplasia in their pathology margins?
Hi! Grateful for this forum. Just got my pathology from Lumpectomy back and it's mostly good news! All margins and nodes negative, total tumour ILC...
Provider Bingo
I was diagnosed with ILC in Feb 2022. Had lumpectomy and radiation at the time. At present, am doing OK. I will have a 6...
Anxiety level soaring
Hello, I was dx with ILC in June, I’m on letrozole to shrink tumor before lumpectomy or mastectomy. I am wondering how everyone is managing...
Invasive Lobular carcinoma history. 9 years ago. New symptoms
Had a double mastectomy 9 years ago for ILC. Started recently experiencing general malaise. Nausea and headaches daily now, start later day into evening. Sometimes...
Lumpectomy or mastectomy that is the dilema. Any insight would help.
Hello, I have been reading posts since shortly after I was diagnosed in early June with ILC. It has been quite informative, has made me...
Likely metastatic lobular cancer: How do you deal with fear, PTSD?
Hi there. First time posting. I had ILC in 2011 and every kind of tx there was-chemo, lumpectomy, radiation, BMX, Tamox and Aromasin (currently 12...
What is considered expected follow-up?
I am s/p ILC diagnosis, s/p SMX with immediate DIEP reconstruction 3/28/24. Early stage and no lymph involvement. Strongly ER+/PR+/HER2-. I met with med onc....
Painful lump/spots after lumpectomy not going away?
Hello all I am 10 weeks post last surgery (ILC with lumpectomy and then re-excision). I have had some painful spots since the 1st surgery,...
Foot pain with Anastrozole?
Hello all- I have read on this topic from posts that were from 4-5 years ago but looking for your experience from more recently. I...
Atypical Ductal Hyperplasia AND Invasive Lobular Carcinoma
Hi all, My first time here. Never did this before. But here goes. I was just diagnosed with Invasive Lobular Carcinoma (ILC) Stage 1, less...
Invasive Lobular Carcinoma
Message: Hello, My mother (age 47) was recently diagnosed with Invasive Lobular Carcinoma (ILC) of the left breast. Initial pathology findings show: • ER positive...
Taxotere & Cytoxin Chemotherapy/ Symptom management
Hello, I am in treatment for an ILC BC recurrence, Stage 1b or 1c. I had the same 23 years ago, and was treated with...
Is being mentally numb at all normal?
So, I need to say after scanning through some of the posts I feel like an idiot mentioning my issue at all. However, I am...