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Discussions (415)
Recurring breast cancer and rash that is spreading
Has anyone had a rash on skin come back months after chemo, mastectomy and radiation after triple negative diagnosis? Went back for more chemo but...
Aromatase Inhibitor side effects - dry mouth
I started taking Letrozole a month ago following lumpectomy and radiation for stage 1 Grade 1 breast cancer. The only noticeable side effect I have...
Having a MRI to rule out recurrence in other breast
I was diagnosed with invasive lobular breast cancer in Early 2022. Had a lumpectomy and radiation, then Tamoxifen. Will have a MRI this week to...
Tumor Invasion to Pectoral Muscle?
My tumor was in a very strange location- practically IN the cleavage- I mean, looking at the MRI it's right on top of the sternum...
Lymphedema in the chest wall
I just got back from my oncologists office and I found out that I have lymphedema in my chest wall. I was surprised because I...
Second opinions: I'm so glad I got one.
I am so glad I went for a second opinion on treatment after breast cancer surgery. With low Oncotype DC and a low Ki-67 score,...
Breast Cancer No Treatment: Any insights?
Anyone been offered the option of having no treatment. My reoccurrence percentage is 10% and the Dr said that I could choose not to have...
Struggling-cancer is back, switching to TDM1
I have metastatic breast cancer, triple positive I made it over two years on Herceptin and was NEAD. My PET scan today showed there is...
Anastrozole withdrawal
After only one month on anastrozole after my lumpectomy and radiation, my dr took me off it bc I couldn’t cope with side affects. Now...
“5 year survival” starts at diagnosis or when therapy ends?
My surgeon said I had an “82%” chance of surviving 5 years. I was so blown away I didn’t ask when does that 5 years...
Conflicting surgical opinions? What now?
I had 2 consults this week. One recommended lumpectomy followed by radiation, then AI, and one for mastectomy with AI. One surgeon confident I didn’t...
DCIS and Sjogrens
Diagnosed with DCIS grade 2 and stage 0 in 10/23. I also have Sjogrens (auto immune disease) with lung involvement. Surgeon and medical team have...
Completed 5 years of anastrozole. Withdrawal symptoms? Side effects?
Monday, July 23rd, after consulting with Dr. Loprinzi, we decided to have me stop taking anastrozole. (Arimidex). It has been 5 years since I started...
ER positive breast ca preventative hysterectomy
48 perimenopausal estrogen postive breast ca. Co.pleted radiation and now told to take lupron and tamoxifen. Im thinking of habubg full hysterectomy jnstead of taking...
Deciding whether to go on abemaciclib (brand name Verzenio)
Hi everyone and thank you for my membership. I was diagnosed with stage III breast cancer and just finished all my treatments which included 20...
DCIS first follow up since surgery in September.
Diagnosed with DCIS stage 0, grade 3. No lymph node involvement, lumpectomy, 5 weeks radiation. Very dense breasts. Had two consults both said lumpectomy, radiation,...
Anyone on tamoxifen who is in their 70's or 80's?
I was told to take tamoxifen for 5 years after my radiation, I am afraid of the side effects. I am 81 and think I...
2nd opinion with team approach
Do you offer the option of having a team provide a second opinion as opposed to one doctor. As I understand it, breast cancer is...
Post Mastectomy Pain Syndrome: How are you coping?
Has anyone been diagnosed with post mastectomy pain syndrome and how are they coping with it? I had bilateral mastectomies almost 4 years ago and...
Single mastectomy with reconstruction and symmetry surgery
Hi. I am scheduled for a single mastectomy with reconstruction and symmetry surgery on my right side but I’m not sure when I’m having the...
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