Breast Cancer Support Group

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Comments (291)

Sorry Lubular Breast Cancer. They called mine Invasive Lobular Cancer so I did not recognize.

https://connect.mayoclinic.org/comment/945362/

Discussion: Lobular Breast Cancer: Let's share and support each other

Support Group: Breast Cancer

Posted: Oct 10, 2023

Newly diagnosed with invasive lobular cancer as well as DCIS. I am very interested in all...

https://connect.mayoclinic.org/comment/804582/

Discussion: Lobular Breast Cancer: Let's share and support each other

Support Group: Breast Cancer

Posted: Jan 31, 2023

Hi @lindahco, I add my welcome. I moved your post to this existing discussion: - Anyone...

https://connect.mayoclinic.org/comment/874519/

Discussion: Anyone with invasive lobular cancer stage 4 that has metastasized?

Support Group: Breast Cancer

Posted: Jun 7, 2023

4 and one half years ago I had Triple negative invasive lobular cancer. I had chemo...

https://connect.mayoclinic.org/comment/1514795/

Discussion: invasive lobular carcinoma and invasive lobular in situ

Support Group: Breast Cancer

Posted: Feb 26 6:32am

@tinksmom, I moved your message to this existing discussion: - Radiation and Invasive Lobular Cancer https://connect.mayoclinic.org/discussion/radiation-and-invasive-lobular-cancer/...

https://connect.mayoclinic.org/comment/797231/

Discussion: Radiation and Invasive Lobular Cancer

Support Group: Breast Cancer

Posted: Jan 15, 2023

Also, I was never able to take the AI type drugs or Tamoxifen due to side...

https://connect.mayoclinic.org/comment/248670/

Discussion: High risk, NOT from BRCA but from typia, such as ALH, ADH, LCIS

Support Group: Breast Cancer

Posted: Feb 22, 2019

Just diagnosed with invasive ductal cancer and invasive lobular cancer in same breast. Planning on double...

https://connect.mayoclinic.org/comment/943983/

Discussion: Double lumpectomies in same breast

Support Group: Breast Cancer

Posted: Oct 8, 2023

I too had invasive lobular cancer in my left breast. my cancer was HER2 + I...

https://connect.mayoclinic.org/comment/1065111/

Discussion: Lobular Breast Cancer: Let's share and support each other

Support Group: Breast Cancer

Posted: May 9, 2024

Hello @wews, we are always improving Mayo Clinic Connect which includes opening new groups when the...

https://connect.mayoclinic.org/comment/1564905/

Discussion: Lobular Breast Cancer: Let's share and support each other

Support Group: Breast Cancer

Posted: May 2 1:31pm

Has anyone beed faced with a recurrence, after diagnosis and treatment for early stage ILC? Having...

https://connect.mayoclinic.org/comment/914286/

Discussion: Lobular Breast Cancer: Let's share and support each other

Support Group: Breast Cancer

Posted: Aug 16, 2023

@denisesjourney123, you may also be interested in other discussions about ILC. Using the group search, I...

https://connect.mayoclinic.org/comment/1015176/

Discussion: Invasive lobular cancer and treatment choices

Support Group: Breast Cancer

Posted: Feb 13, 2024

Hi @ja5747, and welcome to Connect. I'm bringing in @marybe and @bowhunt1969 who also have invasive...

https://connect.mayoclinic.org/comment/238511/

Discussion: Metastatic Lobular Breast Cancer in Stomach

Support Group: Breast Cancer

Posted: Jan 6, 2019

Thank you, briarrose, I already tried Letrozole for 2 months and the side effects were worse,...

https://connect.mayoclinic.org/comment/1395098/

Discussion: Exemestane side effects

Support Group: Breast Cancer

Posted: Sep 17, 2025

@francinemoran, I hope you saw the helpful, supportive posts from @momc and @gbnana who also have...

https://connect.mayoclinic.org/comment/793767/

Discussion: Just diagnosed with invasive lobular carcinoma (ILC): Any advice?

Support Group: Breast Cancer

Posted: Jan 7, 2023

I have been on Anastrazole for 3 years following mastectomy for grade 1 invasive lobular cancer...

https://connect.mayoclinic.org/comment/86659/

Discussion: Concerned about the side effects of anastrozole

Support Group: Breast Cancer

Posted: Jan 2, 2019

I have been on letrozole for 8 months. I have joints that ache and have had...

https://connect.mayoclinic.org/comment/1434490/

Discussion: Concerned about the side effects of anastrozole

Support Group: Breast Cancer

Posted: Nov 9, 2025

I was a bit hesitant too but my endo felt imperative I treat osteoporosis that my...

https://connect.mayoclinic.org/comment/1101534/

Discussion: Bone meds while on AI: What questions to ask at next appointment?

Support Group: Breast Cancer

Posted: Jul 8, 2024

There is a wonderful FB group: Invasive Lobular Cancer Science and Support, just use the search...

https://connect.mayoclinic.org/comment/1161954/

Discussion: Lobular Breast Cancer: Let's share and support each other

Support Group: Breast Cancer

Posted: Oct 24, 2024

My initial pathology report indicated that I had LCIS (which unlike DCIS, is not cancer). I’m...

https://connect.mayoclinic.org/comment/772280/

Discussion: LCIS: What treatment(s) did you choose?

Support Group: Breast Cancer

Posted: Nov 12, 2022

Welcome, @kks. there are a few members here living with invasive lobular cancer who have had...

https://connect.mayoclinic.org/comment/756772/

Discussion: Radiation and Invasive Lobular Cancer

Support Group: Breast Cancer

Posted: Oct 3, 2022

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