Breast Cancer Support Group

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Comments (555)

@mimi09 each story is valuable to the rest of us. Do you mind sharing what your...

https://connect.mayoclinic.org/comment/1520302/

Discussion: Post radiation after breast cancer

Support Group: Breast Cancer

Posted: Mar 5 11:53am

I was 70 last year when diagnosed with ILC. Same result stage 1A and no cancer...

https://connect.mayoclinic.org/comment/1511728/

Discussion: What treatment decisions did you make with stage 1, Oncotype 34?

Support Group: Breast Cancer

Posted: Feb 22 7:04am

I am interested in hearing from long term survivors of ILC. I understand that ILC has...

https://connect.mayoclinic.org/comment/1451390/

Discussion: Amy long-term survivors in our group?

Support Group: Breast Cancer

Posted: Dec 2, 2025

@buckokey Hang in there! The Letrozole may in fact be shrinking the ILC tumor for lumpectomy...

https://connect.mayoclinic.org/comment/1475794/

Discussion: Stage 1 lobular breast cancer, anyone no treatment after surgery?

Support Group: Breast Cancer

Posted: Jan 6 11:17am

Hello ILC team mates. Any current members with metastatic ILC? My original go-round was in 2017-18....

https://connect.mayoclinic.org/comment/1271347/

Discussion: Lobular Breast Cancer: Let's share and support each other

Support Group: Breast Cancer

Posted: Mar 31, 2025

Hi! Just recently diagnosed with ILC - just starting journey-in 2 weeks I meet with a...

https://connect.mayoclinic.org/comment/771847/

Discussion: Lobular Breast Cancer: Let's share and support each other

Support Group: Breast Cancer

Posted: Nov 11, 2022

With ILC I would go with a double mastectomy because ILC is so hard to see...

https://connect.mayoclinic.org/comment/1168762/

Discussion: Diagnosed with ILC . Thoughts on bilateral mastectomy?

Support Group: Breast Cancer

Posted: Nov 5, 2024

Hi Deb, 1. Lobular breast cancer(ILC) invasive lobular carcinoma (science & support). 2. ILC Sisters: lobular...

https://connect.mayoclinic.org/comment/996861/

Discussion: Lobular Breast Cancer: Let's share and support each other

Support Group: Breast Cancer

Posted: Jan 14, 2024

I'm grateful for the discussions about ILC. It is helpful to know more about the experiences...

https://connect.mayoclinic.org/comment/910180/

Discussion: Lobular Breast Cancer: Let's share and support each other

Support Group: Breast Cancer

Posted: Aug 9, 2023

@brightlight66 I had understood that ILC does not respond to chemo. I am surprised that it...

https://connect.mayoclinic.org/comment/1514741/

Discussion: invasive lobular carcinoma and invasive lobular in situ

Support Group: Breast Cancer

Posted: Feb 25 11:20pm

Couldn't find ILC specialist there. Do you know if one?

https://connect.mayoclinic.org/comment/942792/

Discussion: Does Mayo Clinic have oncologists who specialize in Lobular BC?

Support Group: Breast Cancer

Posted: Oct 6, 2023

@tdw10 ILC is harder to see on imaging I have been told. It does not form...

https://connect.mayoclinic.org/comment/873893/

Discussion: Atypical Ductal Hyperplasia AND Invasive Lobular Carcinoma

Support Group: Breast Cancer

Posted: Jun 6, 2023

@buckokey thanks for your insight. I had ILC too but had surgery first. The fatigue seems...

https://connect.mayoclinic.org/comment/1522627/

Discussion: Has anyone on letrozole experienced extreme fatigue?

Support Group: Breast Cancer

Posted: Mar 8 3:35pm

Following in your footsteps. Ductal & ILC going on Wednesday for DMX.

https://connect.mayoclinic.org/comment/1028344/

Discussion: Invasive lobular cancer and treatment choices

Support Group: Breast Cancer

Posted: Mar 5, 2024

Hello Tamworth, I was diagnosed with ILC a couple of years ago, I had a lumpectomy,...

https://connect.mayoclinic.org/comment/1317650/

Discussion: Lobular Breast Cancer: Let's share and support each other

Support Group: Breast Cancer

Posted: Jun 1, 2025

@kherman8434 my situation is similar, diagnosed in August with early stage 1 ILC, lumpectomy & 5-day...

https://connect.mayoclinic.org/comment/1520963/

Discussion: Why are dosages for estrogen suppression drugs one-size-fits-all?

Support Group: Breast Cancer

Posted: Mar 6 11:32am

Thinking of you and totally understand - have you been diagnosed with ILC? I'm assuming you've...

https://connect.mayoclinic.org/comment/1006432/

Discussion: Lobular Breast Cancer: Let's share and support each other

Support Group: Breast Cancer

Posted: Jan 30, 2024

thks for the 'hug.' started treatment for metastatic ILC Oct 2024. all good. great team of...

https://connect.mayoclinic.org/comment/1271677/

Discussion: Lobular Breast Cancer: Let's share and support each other

Support Group: Breast Cancer

Posted: Apr 1, 2025

@otas thank you for sharing your ILC experience. Like others have commented, I saw neg for...

https://connect.mayoclinic.org/comment/1415680/

Discussion: Diagnosed with ILC: Any reconstruction input, implants vs DIEP?

Support Group: Breast Cancer

Posted: Oct 14, 2025

Which cancer marker tests did you use to monitor your ILC? Thank you!!

https://connect.mayoclinic.org/comment/946418/

Discussion: Beyond Breast Cancer - new Mayo Clinic book

Support Group: Breast Cancer

Posted: Oct 12, 2023

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