Breast Cancer Support Group

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Comments (602)

Glad I found this forum! I just had a lumpectomy for a confirmed ILC tumour, 1.4...

https://connect.mayoclinic.org/comment/1246035/

Discussion: Atypical lobular hyperplasia: Did you have surgery?

Support Group: Breast Cancer

Posted: Feb 26, 2025

@wews I'm interested that you had a bilateral mastectomy with stage 1a ILC & no lymph...

https://connect.mayoclinic.org/comment/1546036/

Discussion: Why are dosages for estrogen suppression drugs one-size-fits-all?

Support Group: Breast Cancer

Posted: Apr 8 8:57pm

@jmab wow. That is great information. My oncologist just dismissed tamoxifen for me. But I had...

https://connect.mayoclinic.org/comment/1565826/

Discussion: Lobular Breast Cancer: Let's share and support each other

Support Group: Breast Cancer

Posted: May 3 6:26pm

Hi Nancy: I am ILC with pleomorphic in situ. Discovered August 2022 and surgery Nov. 21,...

https://connect.mayoclinic.org/comment/816086/

Discussion: Lobular Breast Cancer: Let's share and support each other

Support Group: Breast Cancer

Posted: Feb 23, 2023

Very sorry to hear of your struggle. I support the use of MRI over mammogram and...

https://connect.mayoclinic.org/comment/1080413/

Discussion: DCIS first follow up since surgery in September.

Support Group: Breast Cancer

Posted: Jun 3, 2024

Hello: I recently went to Mayo for Invasive Lubular Carcinoma. I had surgery on 9/22. I...

https://connect.mayoclinic.org/comment/945385/

Discussion: Does Mayo Clinic have oncologists who specialize in Lobular BC?

Support Group: Breast Cancer

Posted: Oct 10, 2023

Thank you Queue555 for the reply. Today I did find I have ER+, HER2- ILC. Did...

https://connect.mayoclinic.org/comment/794820/

Discussion: Just diagnosed with invasive lobular carcinoma (ILC): Any advice?

Support Group: Breast Cancer

Posted: Jan 10, 2023

Thank you for sharing. What side effects if any did you experience? Was the shrinkage on...

https://connect.mayoclinic.org/comment/1181747/

Discussion: Anyone taking cyclin-dependent kinase (CDK) 4/6 inhibitors?

Support Group: Breast Cancer

Posted: Nov 29, 2024

@kristiengelman0912 I add my welcome. I'd like to add @joiful and @kk57 to this discussion as...

https://connect.mayoclinic.org/comment/774064/

Discussion: Anyone else diagnosed with IDC & ILC, at the same time?

Support Group: Breast Cancer

Posted: Nov 16, 2022

Thank you so much!! I am going to try (as I call them my 'icky pills')...

https://connect.mayoclinic.org/comment/86364/

Discussion: Concerned about the side effects of anastrozole

Support Group: Breast Cancer

Posted: Jan 6, 2017

I made the choice to stop Letrozole in 2020 after lumpectomy and radiation for ILC Stage...

https://connect.mayoclinic.org/comment/1383447/

Discussion: Aromatase Inhibitors: How to choose and manage side effects?

Support Group: Breast Cancer

Posted: Aug 31, 2025

Thanks for that tip! Had no idea you could get IV hydration to lessen the effects...

https://connect.mayoclinic.org/comment/1014313/

Discussion: Has the contrast used in an MRI caused anyone to have kidney damage?

Support Group: Breast Cancer

Posted: Feb 12, 2024

You are on the right track! ILC is harder to detect and the MRI will give...

https://connect.mayoclinic.org/comment/967824/

Discussion: Lobular Breast Cancer: Let's share and support each other

Support Group: Breast Cancer

Posted: Nov 20, 2023

And it is preventative. Maybe . I have a 12 percent chance of reoccurrence . I...

https://connect.mayoclinic.org/comment/219839/

Discussion: Aromatase Inhibitors: Did you decide to go on them or not?

Support Group: Breast Cancer

Posted: Apr 30, 2019

This just out . . . Report from ESMO breast cancer 2024 Exemastane plus ovarian suppression...

https://connect.mayoclinic.org/comment/1075684/

Discussion: Lobular Breast Cancer: Let's share and support each other

Support Group: Breast Cancer

Posted: May 27, 2024

I have been diagnosed with Invasive Lobular Carcinoma (ILC) also found in Lymph nodes. I am...

https://connect.mayoclinic.org/comment/778710/

Discussion: Lobular Breast Cancer: Let's share and support each other

Support Group: Breast Cancer

Posted: Nov 29, 2022

I had pain in my feet, knees, hips and occasionally my back. My mood swings were...

https://connect.mayoclinic.org/comment/1204579/

Discussion: Anastrozole experience: Any tips for managing side effects?

Support Group: Breast Cancer

Posted: Jan 5, 2025

No it was not in my nodes. Grade 3 mixed IDC and ILC with some DCIS,...

https://connect.mayoclinic.org/comment/976172/

Discussion: Metastatic breast cancer: Anyone else?

Support Group: Breast Cancer

Posted: Dec 6, 2023

@eleanorrigby I chose to have the cryoablation procedure over surgery. I am 72 years old and...

https://connect.mayoclinic.org/comment/1468628/

Discussion: New member: stopping AI is a greater risk of reoccurrence?

Support Group: Breast Cancer

Posted: Dec 27, 2025

I'm so happy to have found you ladies - after two weeks from diagnosis for ILC...

https://connect.mayoclinic.org/comment/772667/

Discussion: Time From Needle Biopsy to MRI With Invasive Lobular?

Support Group: Breast Cancer

Posted: Nov 13, 2022

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