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Brain Tumor Support Group

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Discussion
Your tips: How to support someone recovering from brain surgery?
My sister-in-law is having a large meningioma removed today. For those of you that have had surgery, how was recovery, and what did you find...
Support Group: Brain Tumor
Last active: Mar 9 12:36pm
Discussion
Trigeminal neuralgia worse 10 years after MVD now tentorial meningioma
I had MVD surgery for trigeminal neuralgia 10 yrs ago. The surgery was partially successful for a while although I continued to have terrible eye...
Support Group: Brain & Nervous System
Last active: May 30, 2022
Discussion
Atypical Grade 2 Meningioma Recurrence
I had a craniotomy to remove an atypical grade 2 meningioma about 5 years ago, right frontal cortex. It looks like the surgeon missed a...
Support Group: Brain Tumor
Last active: Sep 1 12:16pm
Discussion
Are any of you making life changes due to tumors? Hair coloring? etc?
At age 66 I am recently diagnosed with a 4.2 cm meningioma and 2 cm vestibular schwannoma. I am seeing the team at Mayo and...
Support Group: Brain Tumor
Last active: Jul 4, 2024
Discussion
Grade 3 meningioma with double vision
My husband had craniotomy in 2022 for 5cm meningioma. Initially diagnosed as grade two. He did radiation following surgery. When it started to grow a...
Support Group: Brain Tumor
Last active: Aug 12, 2024
Discussion
Should I choose to do surgery right away or wait a while?
I was diagnosed with having meningioma measuring 2.9cm in the left posterior fossa. There is focal mass effect on left pons with suggestion of impingement...
Support Group: Brain Tumor
Last active: Feb 13 8:26pm
Discussion
1.5 cm calcified Parafalcine meningioma
My CT scan recently showed the above. I am waiting for a MRI. I’m 63. I’m losing sleep. MD doesn’t think it will require surgery...
Support Group: Brain Tumor
Last active: Jun 23 2:31pm
Discussion
Meningioma in my Superior left parietal lobe-4 yr DX ann. Help!?
Good evening friends! Thanks in advance, for all of your support & info for me to consider, when it comes to my diagnosis of a...
Support Group: Brain Tumor
Last active: Nov 9, 2022
Discussion
Family reaction to my brain tumor (meningioma resection) was bizarre
I was reared with a large loving family. My meningioma was discovered by my blindness in my one eye. I had to rush to have...
Support Group: Brain Tumor
Last active: Aug 2, 2024
Discussion
Encephalomalacia and Gliosis
I had a craniotomy 5 months ago to remove a large frontal lobe meningioma. I recently had an MRI and the report included encephalomalacia and...
Support Group: Brain Tumor
Last active: Jul 3 12:44pm