Brain Tumor Support Group

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Comments (151)

I have had 6 surgeries and feel very lucky to have had that option. The most...

https://connect.mayoclinic.org/comment/154032/

Discussion: Pleomorphic xanthoastrocytoma tumor (Pxa): help

Support Group: Brain Tumor

Posted: Jul 6, 2017

First and foremost - I have read a number of the replies and I feel for...

https://connect.mayoclinic.org/comment/84342/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Nov 18, 2017

I can tell you, do whatever the doctors tell you. I had my surgery at John...

https://connect.mayoclinic.org/comment/84458/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Aug 25, 2018

@Ellene. I had never really paid any attention to the relationship between balance and my ears...

https://connect.mayoclinic.org/comment/335787/

Discussion: Balance, Dizziness, Disequilibrium, Oscillopsia, etc.

Support Group: Hearing Loss

Posted: Feb 20, 2021

Hi Tracy: My name is Rose. I was diagnosed with a acoustic neuroma in 2014. Very...

https://connect.mayoclinic.org/comment/84224/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Mar 15, 2016

I write the following for two reasons: first, to warn those of you thinking of having...

https://connect.mayoclinic.org/comment/84674/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Sep 8, 2019

I had Gamma Knife in April of 2020 for bilateral Vestibular Schwannomas (an acoustic neuroma on...

https://connect.mayoclinic.org/comment/322746/

Discussion: What were your experiences with the head frame for Gamma Knife?

Support Group: Brain Tumor

Posted: Sep 22, 2020

Hi @moms I moved your message to this discussion about acoustic neuromas where other Connect members...

https://connect.mayoclinic.org/comment/84361/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Apr 19, 2018

Curious about tinnitus and acoustic neuromas - Will an MRI be effective in detecting a tumor?...

https://connect.mayoclinic.org/comment/630165/

Discussion: Tinnitus and brain tumor

Support Group: Brain Tumor

Posted: Aug 26, 2021

@rose4622 Hi Rose: Thank you for the additional information about your surgery. This is often called...

https://connect.mayoclinic.org/comment/84452/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Aug 24, 2018

I often joke that someone is going to call the police after they see me stagger...

https://connect.mayoclinic.org/comment/335789/

Discussion: Balance, Dizziness, Disequilibrium, Oscillopsia, etc.

Support Group: Hearing Loss

Posted: Feb 20, 2021

The Mayo Clinic team works together so well. Great to hear your testmonials to the team....

https://connect.mayoclinic.org/comment/84628/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Jan 30, 2019

Hi @ruby1west, welcome to Mayo Clinic Connect. It does help to meet other survivors like @vickid117...

https://connect.mayoclinic.org/comment/84660/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Jul 17, 2019

Hi @kanaazpereira, thanks for this info! I wish there was someone out there with the same...

https://connect.mayoclinic.org/comment/282470/

Discussion: Has anyone else been diagnosed with an endolymphatic sac tumor?

Support Group: Brain Tumor

Posted: Nov 16, 2019

I was happy to hear that all is well. It is interesting to hear your tumor...

https://connect.mayoclinic.org/comment/131895/

Discussion: So scared: Brain tumor on watch and wait has grown

Support Group: Brain Tumor

Posted: Jan 17, 2017

Hi @saucy I encourage you to join this discussion about acoustic neuromas https://connect.mayoclinic.org/discussion/my-name-is-tracy-daley-i-live-in-omaha-nebraska-my-diagnosis/ where other Connect...

https://connect.mayoclinic.org/comment/170568/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Oct 1, 2017

@alexie1942, here is the discussion where members like @sarasally2 @ellene @vickid117 @dlmassot @saucy @sepdvm are talking...

https://connect.mayoclinic.org/comment/775510/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Nov 20, 2022

GoodMorning KKK: I don't know where you live, or who your Doctors are. But the U...

https://connect.mayoclinic.org/comment/84319/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Apr 23, 2017

I had surgery 4 months ago for acustic neuroma

https://connect.mayoclinic.org/comment/84300/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Apr 20, 2017

Hi Tracey, my name is Steve. I was Diagnosed with a 4.7cm AN. Today is the...

https://connect.mayoclinic.org/comment/84656/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Mar 20, 2019

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