Brain Tumor Support Group

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Comments (181)

@windyshores My ENT suspected an acoustic neuroma because of much decreased in hearing within one year....

https://connect.mayoclinic.org/comment/1503343/

Discussion: Trigeminal neuralgia worse 10 years after MVD now tentorial meningioma

Support Group: Brain & Nervous System

Posted: Feb 11 3:24pm

Three years ago I flew to visit a granddaughter. Collapsed on arrival, and after 3 days...

https://connect.mayoclinic.org/comment/84345/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Jan 12, 2018

I had an acoustic neuroma (actually, vestibular schwannoma) removed 30 years ago, at age 35. It...

https://connect.mayoclinic.org/comment/783648/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Dec 11, 2022

Hi. I've just had acoustic neuroma surgery June 8th, 2018. I lost complete hearing in my...

https://connect.mayoclinic.org/comment/84474/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Sep 18, 2018

Hi @hopemay, you've already received some helpful suggestions from @thessie and @tink4iggy. I'm also going to...

https://connect.mayoclinic.org/comment/1088079/

Discussion: Acoustic Neuroma: What treatment options and specialists?

Support Group: Brain Tumor

Posted: Jun 16, 2024

About a year ago I was diagnosed with a small acoustic neuroma. (I am now 69....

https://connect.mayoclinic.org/comment/84314/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Apr 21, 2017

Hi ljanes: I had no idea what an acoustic neuroma was until I learned I had...

https://connect.mayoclinic.org/comment/84230/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Mar 23, 2016

What kind of attack are you having three times a day? Of trigeminal neuralgia type pain?...

https://connect.mayoclinic.org/comment/700343/

Discussion: Trigeminal neuralgia worse 10 years after MVD now tentorial meningioma

Support Group: Brain & Nervous System

Posted: Apr 19, 2022

I had an acoustic neuroma surgically removed in 1999, 25 years ago. The surgery was 6-7...

https://connect.mayoclinic.org/comment/1191210/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Dec 15, 2024

After gradual hearing loss in my right ear over many years, after an MRI, I was...

https://connect.mayoclinic.org/comment/170571/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Oct 1, 2017

It is very unlikely that they misdiagnosed your tumor. I think you need to give yourself...

https://connect.mayoclinic.org/comment/137133/

Discussion: Surgery for pilocytic astrocytoma: When will I feel like myself again?

Support Group: Brain Tumor

Posted: Feb 11, 2017

Hi all. I am coming up on my 2 year anniversary on 6-8-2020. I've noticed more...

https://connect.mayoclinic.org/comment/84694/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Jun 6, 2020

I have an acoustic neuroma and was going to go through that big, bad surgery. I...

https://connect.mayoclinic.org/comment/84383/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Apr 27, 2018

I'm a 63 yr old female, My left acoustic neuroma was dx in 2014. I had...

https://connect.mayoclinic.org/comment/1460884/

Discussion: Acoustic Neuroma: Balance issues years after treatment

Support Group: Brain Tumor

Posted: Dec 14, 2025

Hi. I just had acoustic neuroma surgery on June 8th,2018. I have went for vestibular therapy....

https://connect.mayoclinic.org/comment/84446/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Aug 23, 2018

Hi @kayjaylauren, and welcome to Connect. Although I couldn’t find members who’ve discussed this exact condition,...

https://connect.mayoclinic.org/comment/282467/

Discussion: Has anyone else been diagnosed with an endolymphatic sac tumor?

Support Group: Brain Tumor

Posted: Nov 9, 2019

My 2nd MRI is scheduled Aug 8 and I see a neurosurgeon Aug 31. I googled...

https://connect.mayoclinic.org/comment/84428/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Jul 29, 2018

In the fall of 1992 I was diagnosed with an acoustic neuroma. I was at Mayo...

https://connect.mayoclinic.org/comment/84346/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Jan 12, 2018

Hi Donna: I certainly understand how scared you are. i was diagnosed with an acoustic neuroma...

https://connect.mayoclinic.org/comment/84236/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: May 6, 2016

Gloria Jean my story is similar to yours in the beginning. The ER admitted me after...

https://connect.mayoclinic.org/comment/184177/

Discussion: Watching a Meningioma Brain Tumor

Support Group: Brain Tumor

Posted: Oct 9, 2018

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