Brain Tumor Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

198 total results

Comments (181)

I was diagnosed with a very small acoustic neuroma in 2012 while searching for a source...

https://connect.mayoclinic.org/comment/84356/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Jan 22, 2018

Hi, i had Gamma Knife Surgery last March for my 3.8 Acoustic Neuroma. Days after i...

https://connect.mayoclinic.org/comment/1415590/

Discussion: Dry cornea & facial paralysis after middle cranial fossa

Support Group: Brain Tumor

Posted: Oct 14, 2025

Good question about MRI follow-up, @vickid117. How often and for how long one needs follow up...

https://connect.mayoclinic.org/comment/84697/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Aug 30, 2020

I had a Crainiotomy for tumor. My Vestibular nerve was cut. The acoustic neuroma was near...

https://connect.mayoclinic.org/comment/84448/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Aug 23, 2018

Hi @pedie. Sorry to hear about your vertigo symptoms and your medical team's inability to help...

https://connect.mayoclinic.org/comment/182049/

Discussion: Acoustic neuroma, hydrocephalis, and vertigo

Support Group: Brain Tumor

Posted: Jan 20, 2018

Hi vickid117, I was diagnosed with an acoustic neuroma a year ago, and I am currently...

https://connect.mayoclinic.org/comment/84654/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Mar 16, 2019

I am now at 10 years of monitoring a slow growing acoustic neuroma on one side....

https://connect.mayoclinic.org/comment/775783/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Nov 21, 2022

I was diagnosed with left acoustic neuroma 9 years ago. I had gamma knife surgery at...

https://connect.mayoclinic.org/comment/84688/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Apr 8, 2020

I had surgery to remove my acoustic neuroma 16 years ago and now I have to...

https://connect.mayoclinic.org/comment/1451555/

Discussion: Acoustic Neuroma: Balance issues years after treatment

Support Group: Brain Tumor

Posted: Dec 2, 2025

I should do more homework on how to do this site, but hopefully I am on...

https://connect.mayoclinic.org/comment/84285/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Nov 22, 2016

I will be having surgery for acoustic neuroma next month. I am terrified.I already have hearing...

https://connect.mayoclinic.org/comment/84449/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Aug 24, 2018

I wrote on here after my AC diagnosis. My AC was discovered about three years ago....

https://connect.mayoclinic.org/comment/84427/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Jul 29, 2018

I have an acoustic neuroma. I am about to have a gamma knife stereotactic procedure. This...

https://connect.mayoclinic.org/comment/1257167/

Discussion: Acoustic Neuroma: Auditory symptoms are overwhelming

Support Group: Brain Tumor

Posted: Mar 13, 2025

Thanks, Colleen! I had my 1.7 cm acoustic neuroma removed by the retrosigmoid approach in late...

https://connect.mayoclinic.org/comment/1232492/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Feb 8, 2025

Our daughter is working for an American company and living in Poland for a few years....

https://connect.mayoclinic.org/comment/1215012/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Jan 17, 2025

Hi @janoh, I'm just catching up on your daughter's experience with acoustic neuroma (vestibular schwannoma). Here...

https://connect.mayoclinic.org/comment/272137/

Discussion: SRS (Stereotactic Radiosurgery) for a benign schwannoma?

Support Group: Brain Tumor

Posted: Aug 20, 2019

I was diagnosed with acoustic neuroma in 2000 - it was 4 cm or the size...

https://connect.mayoclinic.org/comment/1136770/

Discussion: Acoustic Neuroma: What treatment options and specialists?

Support Group: Brain Tumor

Posted: Sep 5, 2024

I was diagnosed with an acoustic neuroma in July of 2024. I was referred to Mayo...

https://connect.mayoclinic.org/comment/1263712/

Discussion: Acoustic Neuroma: Auditory symptoms are overwhelming

Support Group: Brain Tumor

Posted: Mar 21, 2025

I was diagnosed with an Acoustic Neuroma on my left side in February 2006. It's size...

https://connect.mayoclinic.org/comment/84552/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Nov 7, 2018

Several yeas ago I had an operation for bilateral acoustic neuroma at Barrows Neurological Institute in...

https://connect.mayoclinic.org/comment/170579/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: May 18, 2018

Eye Conditions

6570

39 minutes ago

Brain & Nervous System

14937

45 minutes ago

Headache & Migraine

2266

45 minutes ago

Adolescent & Young Adult (AYA) Cancer

884

49 minutes ago

About Kids & Teens

3139

1 hour ago