Brain Tumor Support Group

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Comments (181)

Donna, Thank you for your message. I am sorry to hear about your the problems you...

https://connect.mayoclinic.org/comment/84233/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: May 6, 2016

I am in the same situation as you, Lynn, except my acoustic neuroma is considered "large,"...

https://connect.mayoclinic.org/comment/1412889/

Discussion: Upcoming surgery for Acoustic neuroma: Sharing my story

Support Group: Brain Tumor

Posted: Oct 10, 2025

@kkkk your thyroid nodules are caused from your acoustic neuroma. I know because mine caused hypothyroidism....

https://connect.mayoclinic.org/comment/84644/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Mar 2, 2019

Hi @hopemay I had a large 3 cm acoustic neuroma about 22 years ago. I had...

https://connect.mayoclinic.org/comment/1089793/

Discussion: Acoustic Neuroma: What treatment options and specialists?

Support Group: Brain Tumor

Posted: Jun 19, 2024

I was diagnosed 7 days ago with a low grade glioma in my temporal lobe. Prior...

https://connect.mayoclinic.org/comment/1144077/

Discussion: Share Your Brain Tumor type & Years since Diagnosis

Support Group: Brain Tumor

Posted: Sep 19, 2024

An acoustic neuroma on the right side of my brain destroyed hearing in my right ear....

https://connect.mayoclinic.org/comment/84330/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Oct 2, 2017

Tracy. Are you still part of this group? I am recently diagnosed with an acoustic neuroma....

https://connect.mayoclinic.org/comment/84413/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Jul 18, 2018

@saucy yes my daughter has one. They are just watching it right now and aren't worried...

https://connect.mayoclinic.org/comment/170564/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Oct 1, 2017

Hi @jjanes3, I'm glad you found us here at Connect. Welcome. Here is some basic information...

https://connect.mayoclinic.org/comment/84223/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Feb 19, 2016

@lynnrn hello and thank you for sharing your experience. My acoustic neuroma is considered small but...

https://connect.mayoclinic.org/comment/1444221/

Discussion: Upcoming surgery for Acoustic neuroma: Sharing my story

Support Group: Brain Tumor

Posted: Nov 21, 2025

Tracy, I had a acoustic neuroma removed at Mayo in 1992. I lost the hearing in...

https://connect.mayoclinic.org/comment/84299/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Dec 17, 2016

Hey Tracey: I was diagnosed with an acoustic neuroma 2 years ago. I went into my...

https://connect.mayoclinic.org/comment/84254/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Sep 16, 2016

I had a consultation last week. The doc described the tumor as schwannoma, though not specifically...

https://connect.mayoclinic.org/comment/1203408/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Jan 3, 2025

I was diagnosed about 3 years age with an acoustic Schwannoma, basically the same as acoustic...

https://connect.mayoclinic.org/comment/1195081/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Dec 22, 2024

Welcome to Connect, @jillshaw12. I'm tagging @tracylynnedaley72 on this message in the hopes that she'll a...

https://connect.mayoclinic.org/comment/84414/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Jul 18, 2018

Donna3 When I went to Mayo Clinic I was offered the Radiation Surgery. It is supposed...

https://connect.mayoclinic.org/comment/84648/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Mar 2, 2019

An MRI that was used to diagnose hydrocelphalis also found the acoustic neuroma. The hearing in...

https://connect.mayoclinic.org/comment/84264/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Sep 18, 2016

When I asked my ENT doctor about surgery that way, he said that I was not...

https://connect.mayoclinic.org/comment/84323/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Apr 26, 2017

Donna, On a side note, there are two brain tumor support groups in Omaha; one is...

https://connect.mayoclinic.org/comment/84234/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: May 6, 2016

I was recently diagnosed with an Acoustic Neuroma and I am due to visit with a...

https://connect.mayoclinic.org/comment/1095131/

Discussion: What is the waiting area like for families at St. Mary's?

Support Group: Brain Tumor

Posted: Jun 27, 2024

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