Support Groups

Blood Cancers & Disorders Support Group

Public Support Group
275 total results
Discussion
Essential Thrombocythemia (ET) and viruses
I was diagnosed with Essential Thrombocythemia a few months ago, and I’m positive for JAK 2. So far, I have a “mild” case (platelets are...
Last active: Dec 13, 2023
Discussion
Polycythemia Vera or Essential Thrombocythemia ?
My wife, Pam had a follow-up appt on Friday, due to extreme weather and bad roads, it was rescheduled to afternoon. We repeatedly asked about...
Last active: Jun 3, 2024
Discussion
Finding a specialist for Essential Thrombocythemia
Hi there. My husband has "pure" ET (which I'm assuming means it is from a genetic flaw, but I really don't know) and has been...
Last active: Sep 7, 2024
Discussion
Essential Thrombocythemia treatment with Besremi
At my last appointment with my haematologist 2 weeks ago, he gave me the choice of starting HU or Besremi injections every two weeks. After...
Last active: Mar 25 2:25pm
Discussion
ET - Essential Thrombocythemia & Fainting
What causes fainting, for those of us who have ET? I am concerned and am looking for clarification, in order to better understand what's behind...
Last active: Aug 10, 2020
Discussion
Essential Thrombocythemia and relationship to stroke
I have been reading posts and haven't seen any which address the relationship of ET and stroke. I have had TIAs and was hospitalized for...
Last active: May 9, 2024
Discussion
Essential Thrombocythemia (ET): foods, diet, nutrition?
Hello, My name is Isabelle, I’m 55 and I was diagnosed a month ago with Essential Thrombocythemia, JAK2 mutation. I’m waiting on my bone marrow...
Last active: Mar 19 1:31pm
Discussion
Essential Thrombocythemia, anemia and Celiac Disease, the Trifecta
I learned I had ET through a routine blood test during my annual Medicare checkup last fall. Since then I have found I have the...
Last active: Mar 25, 2023
Discussion
Essential Thrombocythemia: Making treatment decisions
I have ET and was diagnosed 2 years ago. I am 50 Years old and my latest platelet count was 1,183,000. I only take a...
Last active: Apr 2 9:38am
Discussion
Essential Thrombocythemia: Looking for information and support
I was recently diagnosed with Essential Thrombocythemia, a rare incurable blood cancer. Platelet count aside, I am asymptotic. This current condition morphed from (constitutional) thrombcytosis,...
Last active: Jan 15 7:36am