329 total results
Discussion
Essential Thrombocythemia
Hello, I would like to know if there are any non-hormonal treatment options for a 52-year-old woman with essential thrombocythemia? It is so hard to...
Discussion
Essential Thrombocythemia treatment with Besremi
At my last appointment with my haematologist 2 weeks ago, he gave me the choice of starting HU or Besremi injections every two weeks. After...
Discussion
Essential Thrombocythemia and relationship to stroke
I have been reading posts and haven't seen any which address the relationship of ET and stroke. I have had TIAs and was hospitalized for...
Discussion
ET - Essential Thrombocythemia & Fainting
What causes fainting, for those of us who have ET? I am concerned and am looking for clarification, in order to better understand what's behind...
Discussion
Finding a specialist for Essential Thrombocythemia
Hi there. My husband has "pure" ET (which I'm assuming means it is from a genetic flaw, but I really don't know) and has been...
Discussion
Polycythemia Vera or Essential Thrombocythemia ?
My wife, Pam had a follow-up appt on Friday, due to extreme weather and bad roads, it was rescheduled to afternoon. We repeatedly asked about...
Discussion
Essential Thrombocythemia (ET) and viruses
I was diagnosed with Essential Thrombocythemia a few months ago, and I’m positive for JAK 2. So far, I have a “mild” case (platelets are...
Discussion
Nutrition for Essential thrombocythemia (ET) diagnosis
Hello,Newly diagnosed with Jak2 ET. Started Hydrea and 81 mg aspirin. Very low iron levels.Has anyone come across a specific diet recommendation to accompany this...
Discussion
Anyone with Essential Thrombocythemia & Sjogrens or autoimmune?
I developed Sjogrens's a couple of years after being diagnosed with Essential Thrombocythemia. Anyone else experience the same?Go fight, my warrior friends
Discussion
Is Essential Thrombocythemia a blood disease or cancer?
I’m confused because I think Hydroxyurea is a chemo drug. Can someone clarify this for me?
Comment
Hi @skholman, welcome. I moved your message about sharing treatments for essential thrombocythemia to this existing...
https://connect.mayoclinic.org/comment/1264798/
Comment
Hi Beth, I moved your message about the update on your diagnosis to your original discussion....
Comment
Hi @akiannejad123 and welcome to Connect. That pain and weakness must be so confusing to have...
Comment
@sdduan, I moved your message to this existing discussion where you can connect with many members...
Connect