Blood Cancers & Disorders Support Group

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Comment

Hello @atir, welcome to Connect. I'd like to invite @chadknudson, @mwear, and @juiceinjc to this discussion...

https://connect.mayoclinic.org/comment/231772/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Nov 30, 2018

Comment

Hi @dragonflylynda. For clarification, you actually have PV (polycythemia vera) caused by a defect in the...

https://connect.mayoclinic.org/comment/1464228/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2025

Comment

Hopefully good news! Could be just Polycythemia, not PV. If so they’ll do tests to see...

https://connect.mayoclinic.org/comment/852367/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: May 1, 2023

Comment

In regards to your question #3, I have yet to find anywhere that has a use...

https://connect.mayoclinic.org/comment/194257/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 30, 2018

Comment

@mcvorbs, you might also be interested in these related discussions: - What's the latest Jakafi (ruxolitinib)...

https://connect.mayoclinic.org/comment/1178780/

Discussion: Anyone had adverse effects from Jakafi (ruxolitinib) for PV?

Support Group: Blood Cancers & Disorders

Posted: Nov 23, 2024

Comment

Good morning, @serenity55 I love your @name of Serenity. It’s a word in my morning affirmations…and...

https://connect.mayoclinic.org/comment/828909/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 20, 2023

Comment

I’m going through the same thing. I really feel it would alleviate many of the side...

https://connect.mayoclinic.org/comment/1330295/

Discussion: Leiden Factor V: Can I use hormone replacement therapy for menopause?

Support Group: Blood Cancers & Disorders

Posted: Jun 19, 2025

Comment

Here is another article: https://www.curetoday.com/view/expanding-on-a-new-way-to-manage-polycythemia-vera-without-iron-deficiency This drug manages your iron level to control the red blood...

https://connect.mayoclinic.org/comment/1324827/

Discussion: New research seems to give hope of new treatment for PV

Support Group: Blood Cancers & Disorders

Posted: Jun 11, 2025

Comment

Hi, @clarissa37, and welcome to Mayo Clinic Connect. It sounds like your mom has been through...

https://connect.mayoclinic.org/comment/231804/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 9, 2020

Comment

When I first heard I had polycythemia Vera JAK 2 positive (Im sure everyone knows you...

https://connect.mayoclinic.org/comment/1455166/

Discussion: Polycythemia vera (PV): Does altitude matter?

Support Group: Blood Cancers & Disorders

Posted: Dec 7, 2025