Blood Cancers & Disorders Support Group

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Comment

Was diagnosed with SMZL in 2022. Was treated with rutiximab with complete response however still had...

https://connect.mayoclinic.org/comment/1245993/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2025

Comment

Hi, my diagnosis involved bloodwork, a full body X-ray (originally thought I had Multiple Myeloma because...

https://connect.mayoclinic.org/comment/1241683/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Feb 20, 2025

Comment

Hello, I will definitely report out on what the infusion experience was like. My Hemoglobin and...

https://connect.mayoclinic.org/comment/642872/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Oct 7, 2021

Comment

My biggest symptom is fatigue and joint and stomach pain. I am tracking my food intake,...

https://connect.mayoclinic.org/comment/660262/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Dec 7, 2021

Comment

@caroldk I also am JAK2 negative & CD20 negative. Please don't feel alone there are a...

https://connect.mayoclinic.org/comment/218739/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Feb 14, 2019

Comment

Update, I will be getting 4 weekly Rituximab infusions starting August 23. The addition of recent...

https://connect.mayoclinic.org/comment/734472/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Aug 5, 2022

Comment

Congrats on the good report Stan! It is always a relief to have those check ups...

https://connect.mayoclinic.org/comment/704316/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: May 1, 2022

Comment

Stan, Thank you for sharing. Any idea if recurrence is generally the same B cell profile,...

https://connect.mayoclinic.org/comment/1008066/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Feb 1, 2024

Comment

I’ve experienced the frustration of having a dismissive doctor too. It’s an incredibly discouraging situation not...

https://connect.mayoclinic.org/comment/1248055/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Mar 1, 2025

Comment

Hi Laurie, thanks for your concern & I too was in shock for some time about...

https://connect.mayoclinic.org/comment/716613/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Jun 11, 2022