Blood Cancers & Disorders Support Group

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Comment

Hi @martine0224, welcome. PV stands for Polycythemia Vera, a type of blood cancer that causes the...

https://connect.mayoclinic.org/comment/1100471/

Discussion: Does anyone have Hemocromatosis and??

Support Group: Blood Cancers & Disorders

Posted: Jul 6, 2024

Comment

@sen1991 Welcome to Mayo Clinic Connect. Ow! Having pain in the big toe can be pretty...

https://connect.mayoclinic.org/comment/840862/

Discussion: Polycythemia and joint pain in big toe

Support Group: Blood Cancers & Disorders

Posted: Apr 10, 2023

Comment

While waiting for other members to respond to your question about upper body pain associated with...

https://connect.mayoclinic.org/comment/1364893/

Discussion: Chronic upper body pain-Is it PV related?

Support Group: Blood Cancers & Disorders

Posted: Aug 6, 2025

Comment

Welcome to Connect, @thicksotropic. Blood conditons can surely create some challenges in our everyday lives. Do...

https://connect.mayoclinic.org/comment/986211/

Discussion: Polycythemia: Does anyone have a problem with dryness?

Support Group: Blood Cancers & Disorders

Posted: Dec 25, 2023

Comment

@kellysc, your deduction sounds reasonable that there would be invisible (occult) blood present in the GI...

https://connect.mayoclinic.org/comment/1509192/

Discussion: Could polycythemia vera cause a positive Cologuard test?

Support Group: Blood Cancers & Disorders

Posted: Feb 18 6:15pm

Comment

For me, the positive aspect of this drug is that it works well and my doctor...

https://connect.mayoclinic.org/comment/1319829/

Discussion: What are pros of hydroxyurea vs other methods of lowering platelets?

Support Group: Blood Cancers & Disorders

Posted: Jun 4, 2025

Comment

Blurred vision is not uncommon with Polycythemia Vera. Not sure if it’s from too high red...

https://connect.mayoclinic.org/comment/1092197/

Discussion: I have ET a blood Cancer and I need advice.. Terry

Support Group: Blood Cancers & Disorders

Posted: Jun 23, 2024

Comment

Here is the WSJ article. This is a way to read it without being a subscriber....

https://connect.mayoclinic.org/comment/1324979/

Discussion: New research seems to give hope of new treatment for PV

Support Group: Blood Cancers & Disorders

Posted: Jun 11, 2025

Comment

I have edema in my legs and burning in my ankles. My peripheral neuropathy is getting...

https://connect.mayoclinic.org/comment/1478301/

Discussion: Does anyone have Amyloidosis as their primary condition?

Support Group: Blood Cancers & Disorders

Posted: Jan 9 2:12pm

Comment

I’m on my second month of Jakafi. I’ve had no side effects and so far my...

https://connect.mayoclinic.org/comment/1200841/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Dec 31, 2024