Blood Cancers & Disorders Support Group

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I have ET with JAK2. Please see my post: https://connect.mayoclinic.org/discussion/essential-thrombocythemia-treatment-with-besremi/?pg=3#comment-1321409 I am happy to answer any...

https://connect.mayoclinic.org/comment/1321411/

Discussion: Essential Thrombocythemia treatment with Besremi

Support Group: Blood Cancers & Disorders

Posted: Jun 6, 2025

Comment

I was diagnosed with Essential Thrombocythemia, JAK2 mutation, earlier this year. My hematologist (who was also...

https://connect.mayoclinic.org/comment/877333/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Jun 12, 2023

Comment

@mw2023 I have Essential Thrombocythemia and take Hydroxyurea. I'll talk to my hematologist and see what...

https://connect.mayoclinic.org/comment/1584940/

Discussion: Hydroxyurea and Sun Exposure

Support Group: Blood Cancers & Disorders

Posted: May 27 10:50pm

Comment

I was recently diagnosed with Essential Thrombocythemia. My platelets were up to 700,000. I am taking...

https://connect.mayoclinic.org/comment/783337/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Dec 10, 2022

Comment

Welcome to Connect, @pearly, and thank you for sharing your history. Essential thrombocythaemia (ET) is indeed...

https://connect.mayoclinic.org/comment/146291/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Apr 9, 2017

Comment

The way I understand it MPN specialists are hematologists with sub speciality of MPN’s such as...

https://connect.mayoclinic.org/comment/797781/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Jan 16, 2023

Comment

I was diagnosed with essential thrombocythemia Dec 2016, platelets in the millions, put on hydroxyurea, started...

https://connect.mayoclinic.org/comment/50531/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Jun 2, 2017

Comment

Hello!I am 46 years old and was diagnosed with jk2 positive essential thrombocythemia 3 years ago.What...

https://connect.mayoclinic.org/comment/1237185/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Feb 15, 2025

Comment

A high platelet count typically is indicative of Essential Thrombocythemia. The normal treatment is Hydroxyurea which...

https://connect.mayoclinic.org/comment/328578/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Jan 3, 2021

Comment

Hi @birgitr. Welcome to Mayo Connect. There are several medications which can be used to help...

https://connect.mayoclinic.org/comment/1488653/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jan 22 9:17am

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