Blood Cancers & Disorders Support Group

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Comment

Hi @beccak, Welcome to Connect. From the numbers you mentioned I’m expecting you were diagnosed with...

https://connect.mayoclinic.org/comment/1072291/

Discussion: Polycythemia Vera or Essential Thrombocythemia ?

Support Group: Blood Cancers & Disorders

Posted: May 21, 2024

Comment

Hi @nolan, welcome to Mayo Clinic Connect. You'll notice that I moved your message to this...

https://connect.mayoclinic.org/comment/194373/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 1, 2021

Comment

Welcome, @as86. when getting a new diagnosis, it can be hard to even know what questions...

https://connect.mayoclinic.org/comment/1099256/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2024

Comment

Hi, I have Essential Thrombocythemia with JAK 2 mutation and perhaps these folks looking for answers...

https://connect.mayoclinic.org/comment/194318/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jul 19, 2019

Comment

@jsslmt53, welcome. We have many members who are living with Essential Thrombocythemia and talk about JAK2...

https://connect.mayoclinic.org/comment/782514/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Dec 8, 2022

Comment

Hi Lynn, welcome. Both @nohrt4me @huronshores have ET and have had joint replacement therapies. They may...

https://connect.mayoclinic.org/comment/851903/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 30, 2023

Comment

Today I saw the hem/onc at UCLA. I will be having a guided Bone Marrow Biopsy...

https://connect.mayoclinic.org/comment/1319791/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: Jun 3 9:38pm

Comment

The way I understand it MPN specialists are hematologists with sub speciality of MPN’s such as...

https://connect.mayoclinic.org/comment/797781/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Jan 16, 2023

Comment

Hi @shenriq According to the NIH there are several patients with essential thrombocythemia that complain of...

https://connect.mayoclinic.org/comment/337924/

Discussion: ET symptom of neuropathy

Support Group: Blood Cancers & Disorders

Posted: Mar 28, 2021

Comment

I have essential thrombocythemia, a liver mutation resulting in overproduction of platelets. My B is off...

https://connect.mayoclinic.org/comment/198919/

Discussion: High Levels of Vitamin B12 and Ferritin: Any pointers?

Support Group: Blood Cancers & Disorders

Posted: Jul 18, 2020