Blood Cancers & Disorders Support Group

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Comment

@steiner Jakafi is the drug I take for CMML and myelofibrosis. The cancers were separate. Each...

https://connect.mayoclinic.org/comment/1432393/

Discussion: MDS-CMML-1: Anyone dealing with pruritus (itching)?

Support Group: Blood Cancers & Disorders

Posted: Nov 6, 2025

Comment

Welcome @joesim. I think you know what I'm going to say. I recommend contacting Mayo Clinic....

https://connect.mayoclinic.org/comment/683175/

Discussion: Looking for recommendations of doctors with expertise in CMML

Support Group: Blood Cancers & Disorders

Posted: Feb 21, 2022

Comment

Thank you Lori. I will do my blood work next week to see if the white...

https://connect.mayoclinic.org/comment/1330041/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jun 18, 2025

Comment

@loribmt thank you for the information , much appreciated . I am 65 yo and I...

https://connect.mayoclinic.org/comment/1610502/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jul 1 11:55am

Comment

Are you seeing a hematologist? You should be seeing a specialist to get the best information....

https://connect.mayoclinic.org/comment/1362239/

Discussion: Low WBC, Low Platelets, Low RBC, Large cells - is it always Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Aug 2, 2025

Comment

I was on hydroxides for several years but it reached a point where it wasn’t working...

https://connect.mayoclinic.org/comment/1366935/

Discussion: I would deeply appreciate feedback on patients diagnosed with CMML

Support Group: Blood Cancers & Disorders

Posted: Aug 9, 2025

Comment

@hlmcneely I have CMML and MF and take Jakafi. I have had laser cataract surgery on...

https://connect.mayoclinic.org/comment/1426707/

Discussion: Anyone had cataract surgery living with MDS?

Support Group: Blood Cancers & Disorders

Posted: Oct 30, 2025

Comment

Hi Jacklyn, You’ll be having lots of ‘regular’ blood work in the near future…just another delightful...

https://connect.mayoclinic.org/comment/1099095/

Discussion: I've had CML for 20 years and want to encourage others

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2024

Comment

@loribmt, dhbskier I was having no symptoms to my knowledge and had no idea about the...

https://connect.mayoclinic.org/comment/1593651/

Discussion: Diagnosed with a myeloid neoplasm (chronic myelomonocytic leukemia)

Support Group: Blood Cancers & Disorders

Posted: Jun 8 1:38pm

Comment

Hi Ismat, There are so many abbreviations for diseases, it’s a challenge to keep them all...

https://connect.mayoclinic.org/comment/1367584/

Discussion: I would deeply appreciate feedback on patients diagnosed with CMML

Support Group: Blood Cancers & Disorders

Posted: Aug 10, 2025

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