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Public Support Group 411 total results
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Welcome Christine, I moved your "just diagnosed" message to this existing discussion of the same name:...
https://connect.mayoclinic.org/comment/749672/
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Is there anyone out there that has been diagnosed with both polycythemia vera and myelo fibrosis?...
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I found wonderful relief using full strength tea tree oil. I’ve had polycythemia vera for 20...
Discussion
Am I alone with so many maladies?
20 some odd years ago I was diagnosed with Diffused large-cell lymphoma and through the strength and support of my family and friends (and amazing...
Discussion
Polycythaemia Ruba Vera, Jak2 mutation & link to Sleep Apnea
https://connect.mayoclinic.org/discussion/polycythaemia-ruba-vera-jak2-mutation-link-to-sleep-apnea/
I was diagnosed with Polycythaemia Ruba Vera with a jak2 mutation almost 2 years ago via blood test of course. I saw a post here...
Discussion
Jak2 Detected, Healthy otherwise, What's next?
Hi All,Appreciate guidance from this group as I am panicking a bit.JAK2 V617F mutation was deleted in routine blood test. AK2 V617F Percent Mutated Alleles...
Discussion
Need help newly diagnosed with a high platelet count and the JAK2 gene
Hi, I am new here and need some help. My platelet counts have been running high around 680. I just had a bone marrow biopsy,...
Discussion
Anyone else find the side effects of Hydrea 500MG frightening?
I was diagnosed with having a blood cancer that looks and acts a lot like Polycythemia Vera (PV) about 6 years ago. I’ve been rolling...
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