Blood Cancers & Disorders Support Group

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Comment

Hi. Same here. Itching is gone, but the fatigue is here. Hemoglobin level is +/- 11,...

https://connect.mayoclinic.org/comment/875420/

Discussion: I am curious: What symptoms did everyone have in the beginning for PV?

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2023

Comment

@mrb2491 Oh gosh, that itching is so horrible and truly, I’m sorry you’re not finding much...

https://connect.mayoclinic.org/comment/1524134/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Mar 10 4:06pm

Comment

Jakafi stopped the itching for me as well as many other PV side effects.

https://connect.mayoclinic.org/comment/943008/

Discussion: PV: terrible itching after shower or bath

Support Group: Blood Cancers & Disorders

Posted: Oct 6, 2023

Comment

I've had 32 28 day sessions with lenalidomide and Darzalex Fast Pro without any rashes. BUT,...

https://connect.mayoclinic.org/comment/1564786/

Discussion: Anyone get an abdominal rash with lenalidomide?

Support Group: Blood Cancers & Disorders

Posted: May 2 10:36am

Comment

What are you doing for the itching? I have the same t-cell lymphoma and MGUS.

https://connect.mayoclinic.org/comment/886704/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Jun 28, 2023

Comment

sandy1959 @sandy1959, Itch (also known as pruritus) Yes! Itching is 100% sign of cancer look under...

https://connect.mayoclinic.org/comment/817590/

Discussion: Essential thrombocythemia (ET) and breaking out in hives: What helps?

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2023

Comment

My mum had stage IV CTCL and by far for her the itching was the worst....

https://connect.mayoclinic.org/comment/1361930/

Discussion: Cutaneous T-cell lymphoma consistent with mycosis fungoides

Support Group: Blood Cancers & Disorders

Posted: Aug 2, 2025

Comment

Started with horrible itching after bathing. Elevated hematocrit (57) led to biopsy to confirm. Now, 2...

https://connect.mayoclinic.org/comment/875363/

Discussion: I am curious: What symptoms did everyone have in the beginning for PV?

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2023

Comment

Hi @mrb2491 While you’re waiting for a reply from @cindylb I just wanted to welcome you...

https://connect.mayoclinic.org/comment/1523965/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Mar 10 12:05pm

Comment

Yes I have itching again too. Worse before PV diagnosed, then it subsided and disappeared (meds?...

https://connect.mayoclinic.org/comment/817347/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2023

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