Blood Cancers & Disorders Support Group

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118 total results

Comment

Lori's suggestion to ask for another CBC sounds wise to me. I am 68, diagnosed with...

https://connect.mayoclinic.org/comment/748608/

Discussion: Should I be concerned about Blood Cancer or other disease?

Support Group: Blood Cancers & Disorders

Posted: Sep 12, 2022

Comment

I was exposed to Agent Orange in 1968-69, at the height of the Vietnam War. I...

https://connect.mayoclinic.org/comment/1434552/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Nov 9, 2025

Comment

I have been taking 500 mg. per day of hydroxyurea since August of 2023. Daily leg...

https://connect.mayoclinic.org/comment/1004707/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Jan 27, 2024

Comment

Hi all. I’m Jacqueline from NZ. This is my first post. I have been struggling with...

https://connect.mayoclinic.org/comment/861388/

Discussion: Essential thrombocytosis with MPL mutation

Support Group: Blood Cancers & Disorders

Posted: May 17, 2023

Comment

Hmm. A bone marrow biopsy is usually the gold standard for ET diagnosis. I wonder if...

https://connect.mayoclinic.org/comment/1056982/

Discussion: Platelets are too high: What can be done to find root cause?

Support Group: Blood Cancers & Disorders

Posted: Apr 25, 2024

Comment

Hi - I am new to this group and new to being diagnosis with ET (Platelets)...

https://connect.mayoclinic.org/comment/972281/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Nov 29, 2023

Comment

Hi @gajokos , Thank you for sharing. I think JAK2 is the most common mutation found...

https://connect.mayoclinic.org/comment/1494798/

Discussion: Are there support groups for Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 31 9:36am

Comment

The listed hydrea side effects ARE scary. I read about essential Thrombocytosis before my first oncology...

https://connect.mayoclinic.org/comment/1096656/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Jun 30, 2024

Comment

Welcome @emcobb76. To help you connect with others who have essential thrombocythemia (ET), I moved your...

https://connect.mayoclinic.org/comment/776741/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Nov 23, 2022

Comment

Hi @irishnanny3 , I wear sunscreen and a wide brimmed hat daily and have been for...

https://connect.mayoclinic.org/comment/1464513/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Dec 20, 2025