Blood Cancers & Disorders Support Group

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Comment

I was exposed to Agent Orange in 1968-69, at the height of the Vietnam War. I...

https://connect.mayoclinic.org/comment/1434552/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Nov 9, 2025

Comment

@raye, I love your grandfather's saying about duck's and crane's legs not changing with worry. I...

https://connect.mayoclinic.org/comment/752280/

Discussion: Philadelphia chromosome: Anxiety awaiting diagnosis

Support Group: Blood Cancers & Disorders

Posted: Sep 21, 2022

Comment

Lori's suggestion to ask for another CBC sounds wise to me. I am 68, diagnosed with...

https://connect.mayoclinic.org/comment/748608/

Discussion: Should I be concerned about Blood Cancer or other disease?

Support Group: Blood Cancers & Disorders

Posted: Sep 12, 2022

Comment

I have been taking 500 mg. per day of hydroxyurea since August of 2023. Daily leg...

https://connect.mayoclinic.org/comment/1004707/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Jan 27, 2024

Comment

Hi - I am new to this group and new to being diagnosis with ET (Platelets)...

https://connect.mayoclinic.org/comment/972281/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Nov 29, 2023

Comment

Hi all. I’m Jacqueline from NZ. This is my first post. I have been struggling with...

https://connect.mayoclinic.org/comment/861388/

Discussion: Essential thrombocytosis with MPL mutation

Support Group: Blood Cancers & Disorders

Posted: May 17, 2023

Comment

Welcome @emcobb76. To help you connect with others who have essential thrombocythemia (ET), I moved your...

https://connect.mayoclinic.org/comment/776741/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Nov 23, 2022

Comment

Hi @remo1110 Blood conditions and blood cancers can be confusing. You’ve been diagnosed with Essential Thrombocytosis...

https://connect.mayoclinic.org/comment/980332/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Dec 14, 2023

Comment

Welcome to @laurenashleyy. My daughter is just a couple years older than you are and I...

https://connect.mayoclinic.org/comment/895467/

Discussion: Overwhelmed- diagnosed with Thrombocytosis & Leukocytosis

Support Group: Blood Cancers & Disorders

Posted: Jul 14, 2023

Comment

Hmm. A bone marrow biopsy is usually the gold standard for ET diagnosis. I wonder if...

https://connect.mayoclinic.org/comment/1056982/

Discussion: Platelets are too high: What can be done to find root cause?

Support Group: Blood Cancers & Disorders

Posted: Apr 25, 2024

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