Blood Cancers & Disorders Support Group

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Comment

@allessio77 I’ve had PN for several years with pain increasing. Diagnosed with myelofibrosis, I began Hydrea...

https://connect.mayoclinic.org/comment/1459116/

Discussion: Does anyone have neuropathy related to MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 12, 2025

Comment

I also have MGus. I have had this for at least 15 years, but was just...

https://connect.mayoclinic.org/comment/1427189/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Oct 30, 2025

Comment

I am so sorry to hear that you are dealing with all of this. You did...

https://connect.mayoclinic.org/comment/1391566/

Discussion: WM / MZL

Support Group: Blood Cancers & Disorders

Posted: Sep 11, 2025

Comment

Sorry I also see a cardiologist and dermatologist because of possible side effects of Waldenstroms. Also...

https://connect.mayoclinic.org/comment/1375341/

Discussion: Waldenstrom macroglobulinemia (WM) 3 years: Might I be in remission?

Support Group: Blood Cancers & Disorders

Posted: Aug 20, 2025

Comment

@breathernow Hi Michael and welcome to Connect. Shoulder shrugging sure isn’t much of an answer when...

https://connect.mayoclinic.org/comment/1346952/

Discussion: Lymphoma doc at Mayo Rochester

Support Group: Blood Cancers & Disorders

Posted: Jul 13, 2025

Comment

Waldenstroms for goin on two years Imbruvica and prednisone with rituxin stripped working. Bad numbers up...

https://connect.mayoclinic.org/comment/1293434/

Discussion: Waldenstroms Macroglobulemia

Support Group: Blood Cancers & Disorders

Posted: Apr 30, 2025

Comment

I'm new to the world of Waldenström's Macroglobulinemia - having been diagnosed last month. I'm on...

https://connect.mayoclinic.org/comment/1246861/

Discussion: Waldenstroms Macroglobulemia

Support Group: Blood Cancers & Disorders

Posted: Feb 27, 2025

Comment

I was diagnosed with MGUS approximately 20 years ago and was being regularly monitored every 3...

https://connect.mayoclinic.org/comment/1232582/

Discussion: Could we talk about anxiety with MGUS

Support Group: Blood Cancers & Disorders

Posted: Feb 8, 2025

Comment

Oncologist sent me to cardiologist for a ton of tests to make sure my heart wasn’t...

https://connect.mayoclinic.org/comment/1216467/

Discussion: Waldenstrom's: Should I take the new medication (rituximab)?

Support Group: Blood Cancers & Disorders

Posted: Jan 19, 2025

Comment

Hi @lynnstefanik89, Welcome to the community! (and sorry you need to be here) I started my...

https://connect.mayoclinic.org/comment/1203242/

Discussion: Marginal zone lymphoma & chronic lymphocytic leukemia, anyone?

Support Group: Blood Cancers & Disorders

Posted: Jan 3, 2025