Blood Cancers & Disorders Support Group

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Comment

Yes. I have Myelofibrosis “and” Erdheim Chester Disease, and the first sign - although no doctor...

https://connect.mayoclinic.org/comment/1511367/

Discussion: MDS-CMML-1: Anyone dealing with pruritus (itching)?

Support Group: Blood Cancers & Disorders

Posted: Feb 21 2:55pm

Comment

Ocular migraines, itching after shower or bath and night sweats.

https://connect.mayoclinic.org/comment/872208/

Discussion: I am curious: What symptoms did everyone have in the beginning for PV?

Support Group: Blood Cancers & Disorders

Posted: Jun 4, 2023

Comment

@heimbca Yes, that’s Jakafi. Not for everyone. Wasn’t for me. Felt like it was killing me....

https://connect.mayoclinic.org/comment/1503650/

Discussion: Anyone have Myelofibrosis (CMS-HCC)?

Support Group: Blood Cancers & Disorders

Posted: Feb 12 4:33am

Comment

Thank you for sharing the scripts that helped lessen your itching.

https://connect.mayoclinic.org/comment/1432240/

Discussion: MDS-CMML-1: Anyone dealing with pruritus (itching)?

Support Group: Blood Cancers & Disorders

Posted: Nov 6, 2025

Comment

I've just been diagnosed with MDS. Is skin itching part of MDS?

https://connect.mayoclinic.org/comment/1527273/

Discussion: Myelodysplastic syndrome (MDS) and skin itching

Support Group: Blood Cancers & Disorders

Posted: Mar 15 8:48am

Comment

@carolgk I feel for you. Itching is maybe worse than pain.

https://connect.mayoclinic.org/comment/1512015/

Discussion: MDS-CMML-1: Anyone dealing with pruritus (itching)?

Support Group: Blood Cancers & Disorders

Posted: Feb 22 11:40am

Comment

Good Morning. Are you sure there is no correlation between itching, hives and essential thrombocytosis? I...

https://connect.mayoclinic.org/comment/817435/

Discussion: Essential thrombocythemia (ET) and breaking out in hives: What helps?

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2023

Comment

@emaddox how are you doing? Has your hematologist suggested anything for the itching?

https://connect.mayoclinic.org/comment/906440/

Discussion: Myelodysplastic syndrome (MDS) and skin itching

Support Group: Blood Cancers & Disorders

Posted: Aug 2, 2023

Comment

@carolgk Xanax!!! Xanax stopped mine in its tracks, and the itching was horrible.

https://connect.mayoclinic.org/comment/1511369/

Discussion: MDS-CMML-1: Anyone dealing with pruritus (itching)?

Support Group: Blood Cancers & Disorders

Posted: Feb 21 2:59pm

Comment

Welcome Christine, I moved your "just diagnosed" message to this existing discussion of the same name:...

https://connect.mayoclinic.org/comment/749672/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Sep 14, 2022

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