Blood Cancers & Disorders Support Group

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118 total results

Comment

It is hard to understand I was told I have Essential Thrombocytosis with a JAK 2...

https://connect.mayoclinic.org/comment/980116/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Dec 13, 2023

Comment

@milkweed, I added this discussion to the Blood Cancer & Disorders support group as well to...

https://connect.mayoclinic.org/comment/836092/

Discussion: Multiple Stress Fractures while on meds for Essential Thrombocytosis

Support Group: Osteoporosis & Bone Health

Posted: Apr 2, 2023

Comment

@lefsequeen, I read in another thread that you've been living with Essential Thrombocytosis (ET) and managing...

https://connect.mayoclinic.org/comment/334494/

Discussion: People living with ET and taking Hydrea: Anybody setting records?

Support Group: Blood Cancers & Disorders

Posted: Feb 14, 2021

Comment

I recommend trying to get on your state’s Medicaid insurance. You need treatment and medication most...

https://connect.mayoclinic.org/comment/1457413/

Discussion: Needing help understanding ET and how it affects my life

Support Group: Blood Cancers & Disorders

Posted: Dec 9, 2025

Comment

I have been taking Jakafi for post essential thrombocytosis (PET) Myelofibrosis since Nov 2020 and had...

https://connect.mayoclinic.org/comment/1091493/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Jun 22, 2024

Comment

The Bone Marrow procedure is a first step. He should also do a molecular panel to...

https://connect.mayoclinic.org/comment/328572/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Dec 12, 2020

Comment

Welcome @jak2mpnpositive, allow me to tag other members like @claire39 @bluegrasspv2018 @jam5 @dwlowrance @levieta @lzimmerman @mpt77...

https://connect.mayoclinic.org/comment/686214/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Mar 3, 2022

Comment

Thank you so much. I figured out the acronym for PV. Feeling a tad overwhelmed due...

https://connect.mayoclinic.org/comment/1171920/

Discussion: How long before side effects from Hydrea start?

Support Group: Blood Cancers & Disorders

Posted: Nov 11, 2024

Comment

I’ve been taking Hydroxyurea for 3 years or more for very high platelets 800 to 990...

https://connect.mayoclinic.org/comment/1234794/

Discussion: Essential Thrombocythemia treatment with Besremi

Support Group: Blood Cancers & Disorders

Posted: Feb 11, 2025

Comment

I have started teriparatide for osteoporosis treatment, I also have had essential thrombocytosis (ET) a, myeloproliferative...

https://connect.mayoclinic.org/comment/859231/

Discussion: Teriparatide and ET are there associated risks with this treatment?

Support Group: Blood Cancers & Disorders

Posted: May 13, 2023