Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

75 total results

Comment

Welcome to Connect, @darenh! It’s really interesting the different treatments for CTCL with unique results for...

https://connect.mayoclinic.org/comment/1307589/

Discussion: Cutaneous T-cell lymphoma consistent with mycosis fungoides

Support Group: Blood Cancers & Disorders

Posted: May 19, 2025

Comment

I have CTCL- MF. Initially, that is about 8yrs ago, I had 72 UVB light treatments...

https://connect.mayoclinic.org/comment/953777/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Oct 25, 2023

Comment

Welcome to Connect, @58skywagon. Thanks for sharing your positive news about the treatments you’ve used for...

https://connect.mayoclinic.org/comment/1096226/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2024

Comment

Thank you for the reassuring words. The cream works remarkably quickly. I noticed a change within...

https://connect.mayoclinic.org/comment/808036/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Feb 8, 2023

Comment

@penelopem Good luck with everything today! This is a new experience for you so I know...

https://connect.mayoclinic.org/comment/1544757/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Apr 7 9:37am

Comment

Thanks for your kind words. The best, if somewhat overwhelming information, is on the CTCL. I...

https://connect.mayoclinic.org/comment/1035865/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Mar 18, 2024

Comment

I am waiting for my biopsy report to be completed, however it appears I will get...

https://connect.mayoclinic.org/comment/1186551/

Discussion: Is Cutaneous T-Cell Lymphoma a Death Sentence?

Support Group: Blood Cancers & Disorders

Posted: Dec 8, 2024

Comment

@shufie Hi. It is important to get a specific diagnosis of exactly what type of CTCL....

https://connect.mayoclinic.org/comment/1545671/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Apr 8 11:13am

Comment

Hi Wendy, @hariet1. Somehow this post snuck past me! So let me wish you a delayed...

https://connect.mayoclinic.org/comment/1293333/

Discussion: Is Cutaneous T-Cell Lymphoma a Death Sentence?

Support Group: Blood Cancers & Disorders

Posted: Apr 30, 2025

Comment

I was diagnosed with CTCL in October of 2022. The diagnosis was finally done after a...

https://connect.mayoclinic.org/comment/1095666/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Jun 28, 2024

1
2
3
4
5
6
…
8