Blood Cancers & Disorders Support Group

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428 total results

Comment

They can tell from your red and white cells, platelets and hematocrit . The name of...

https://connect.mayoclinic.org/comment/986546/

Discussion: Polycythemia diagnosis

Support Group: Blood Cancers & Disorders

Posted: Dec 26, 2023

Comment

If you contact Dr. Angela Fleischman, Fleischman Lab, Division of Hematology/Oncology, U.C. Irvine, she has a...

https://connect.mayoclinic.org/comment/1489645/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jan 23 5:55pm

Comment

@lyd0218 My personal experience The symptoms you mentioned I had and suffered from them ! I...

https://connect.mayoclinic.org/comment/1421550/

Discussion: Myelofibrosis: Anyone have experience with Vonjo (pacritinib)?

Support Group: Blood Cancers & Disorders

Posted: Oct 23, 2025

Comment

Welcome to Connect, @isabellereine. You’re not crazy but you certainly are complicated! ☺️ For being only...

https://connect.mayoclinic.org/comment/1197279/

Discussion: Are the symptoms in my head? Polycythemia Vera + Mastocytosis (age-23)

Support Group: Blood Cancers & Disorders

Posted: Dec 26, 2024

Comment

I have had Pilycthemia Vera for almost 20 years. It’s now has changed to Myelofbrosis. Just...

https://connect.mayoclinic.org/comment/1098999/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2024

Comment

@simple27 -- Agree that my anemic hematocrit points AWAY from PV. I wish I could convince...

https://connect.mayoclinic.org/comment/231792/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Feb 12, 2019

Comment

What does ET stand for? I was diagnosed 2 years ago with Polycythaemia Ruba Vera with...

https://connect.mayoclinic.org/comment/918920/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 25, 2023

Comment

I can only respond from my personal experience. I was diagnosed four years ago. Medications will...

https://connect.mayoclinic.org/comment/1505369/

Discussion: Polycythemia Vera: What is next when treatment stops working?

Support Group: Blood Cancers & Disorders

Posted: Feb 14 7:33am

Comment

Vent all you want here. Firstly, your getting it out and you have people with the...

https://connect.mayoclinic.org/comment/1324057/

Discussion: Getting nowhere with current Hematologist

Support Group: Blood Cancers & Disorders

Posted: Jun 10, 2025