Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

387 total results

Comment

I have polycythmia Vera, and 9 different rare diagnosis. Told my doctor I only collected rare...

https://connect.mayoclinic.org/comment/798518/

Discussion: Polycythemia Vera: Is there anything I can do for fatigue at home?

Support Group: Blood Cancers & Disorders

Posted: Jan 18, 2023

Comment

They can tell from your red and white cells, platelets and hematocrit . The name of...

https://connect.mayoclinic.org/comment/986546/

Discussion: Polycythemia diagnosis

Support Group: Blood Cancers & Disorders

Posted: Dec 26, 2023

Comment

I have had Pilycthemia Vera for almost 20 years. It’s now has changed to Myelofbrosis. Just...

https://connect.mayoclinic.org/comment/1098999/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2024

Comment

@simple27 -- Agree that my anemic hematocrit points AWAY from PV. I wish I could convince...

https://connect.mayoclinic.org/comment/231792/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Feb 12, 2019

Comment

Welcome to Connect, @isabellereine. You’re not crazy but you certainly are complicated! ☺️ For being only...

https://connect.mayoclinic.org/comment/1197279/

Discussion: Are the symptoms in my head? Polycythemia Vera + Mastocytosis (age-23)

Support Group: Blood Cancers & Disorders

Posted: Dec 26, 2024

Comment

What does ET stand for? I was diagnosed 2 years ago with Polycythaemia Ruba Vera with...

https://connect.mayoclinic.org/comment/918920/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 25, 2023

Comment

Vent all you want here. Firstly, your getting it out and you have people with the...

https://connect.mayoclinic.org/comment/1324057/

Discussion: Getting nowhere with current Hematologist

Support Group: Blood Cancers & Disorders

Posted: Jun 10, 2025