Blood Cancers & Disorders Support Group

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Comment

@bracha At UCIrvine, much research going on regarding JAK2/polycytemia vera at the Fleischmann Lab.

https://connect.mayoclinic.org/comment/1496932/

Discussion: PV JAK2 and evolution of treatment over time

Support Group: Blood Cancers & Disorders

Posted: Feb 3 5:36am

Comment

I can only respond from my personal experience. I was diagnosed four years ago. Medications will...

https://connect.mayoclinic.org/comment/1505369/

Discussion: Polycythemia Vera: What is next when treatment stops working?

Support Group: Blood Cancers & Disorders

Posted: Feb 14 7:33am

Comment

Thank you Lori. I think there is a misunderstanding here, you appear to have misunderstood me...

https://connect.mayoclinic.org/comment/936285/

Discussion: Jak2 Detected, Healthy otherwise, What's next?

Support Group: Blood Cancers & Disorders

Posted: Sep 25, 2023

Comment

Hi there/ this is my second time posting for fatigue with a more clear idea of...

https://connect.mayoclinic.org/comment/601674/

Discussion: Polycythemia Vera: Is there anything I can do for fatigue at home?

Support Group: Blood Cancers & Disorders

Posted: May 14, 2021

Comment

I’m also thankful for this group! My very supportive husband found this for me. I was...

https://connect.mayoclinic.org/comment/975461/

Discussion: Essential Thrombocytosis: What amount of hydroxy do you take?

Support Group: Blood Cancers & Disorders

Posted: Dec 5, 2023

Comment

Hi, A friend has been diagnosed with polycythaemia vera very recently and is in a bit...

https://connect.mayoclinic.org/comment/811484/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Feb 14, 2023

Comment

Hi Colleen. I was diagnosed with Polycytemia vera. Currently being treated with hydroxyurea and aspirin since...

https://connect.mayoclinic.org/comment/1464085/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2025

Comment

Polycythemia SECONDARY,NOT VERA

https://connect.mayoclinic.org/comment/1357371/

Discussion: Does anyone have any info on MGUS treatment or risk of progression?

Support Group: Blood Cancers & Disorders

Posted: Jul 27, 2025

Comment

hmm, 20 tablets a week? I wonder if there was a disconnect in the conversation. Have...

https://connect.mayoclinic.org/comment/1094130/

Discussion: Any correlation between Essential Thrombocythemia & high B12?

Support Group: Blood Cancers & Disorders

Posted: Jun 25, 2024

Comment

I went to my GP with other issues & checked with him re Sleep Apnea. He...

https://connect.mayoclinic.org/comment/1036484/

Discussion: Polycythaemia Ruba Vera, Jak2 mutation & link to Sleep Apnea

Support Group: Blood Cancers & Disorders

Posted: Mar 19, 2024