Blood Cancers & Disorders Support Group

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Comment

My Naturopathic Physician suggested I see a Oncologist or Hemotologist in 2013 because my Platelets were...

https://connect.mayoclinic.org/comment/194297/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 17, 2019

Comment

I was first alerted in May 2022 that all red blood count were high. No one...

https://connect.mayoclinic.org/comment/825133/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 12, 2023

Comment

Welcome to Connect, @jtcat7. Looks like you have a full deck of mutations in your hand....

https://connect.mayoclinic.org/comment/1367613/

Discussion: Prefibrotic Myelofibrosis: Diagnosis Favors Essential Thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Aug 10, 2025

Comment

Ok from what I’m understanding is that you’ve been diagnosed with polycythemia vera. This is a...

https://connect.mayoclinic.org/comment/1137715/

Discussion: Polycythemia vera (PV) and bone pain: What helps?

Support Group: Blood Cancers & Disorders

Posted: Sep 7, 2024

Comment

Good questions. I’m not a medical doctor. My career was at the diagnostic end (lab). Therefore,...

https://connect.mayoclinic.org/comment/981500/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2023

Comment

So I have a quick question for you, knowing your background. I was diagnosed with polycythemia...

https://connect.mayoclinic.org/comment/980944/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Dec 15, 2023

Comment

I was diagnosed with PV in February 2021. My hematologist goes by my hemoglobin number, which...

https://connect.mayoclinic.org/comment/843409/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 15, 2023

Comment

My platelet and red cell counts and hematocrit showed an increase last April on my annual...

https://connect.mayoclinic.org/comment/1538205/

Discussion: Hair Loss on hydroxyurea: Any experience with hair loss products?

Support Group: Blood Cancers & Disorders

Posted: Mar 29 5:21pm

Comment

@chorusgirl500 There are different forms of polycythemia. Primary Polycythemia Vera generally involves an acquired mutation in...

https://connect.mayoclinic.org/comment/1467028/

Discussion: Diagnosed polycythemia vera at 26: Any young PV patients out there?

Support Group: Blood Cancers & Disorders

Posted: Dec 24, 2025

Comment

I have a different diagnosis than you so you can look at my list and substitute...

https://connect.mayoclinic.org/comment/1308354/

Discussion: Diagnosed with MGUS. What questions should I ask the hematologist?

Support Group: Blood Cancers & Disorders

Posted: May 20, 2025

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